new to forum, diagnosed with costchondritis
Posted , 11 users are following.
first diagnosed 3 years ago. Suddenly had pain in left side of chest, sharp stabbing pains, hurt to breath and any kind of movement. Had breast cancer (had implants as a result) so instantly thought something had gone wrong with them).Was sent to breast clinic, but mammagams, scans etc, showed all was fine and was diagnosed with costochondritis. this has been ongoing for the past 3 years. now at the stage where it affects me day to day. Now have daily pain in chest, shoulder, back and neck, all on the left side..At it's worst,breathing alone is difficult and i can concur with the feeling of experiencing a heart attack. Walking becomes, slow and laboured, because of the pain. I feel for you all going through this, and hope we can share some hope, experiance and help amongst us
0 likes, 70 replies
laura18022 megan36568
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Oh Megan, that is not what I wanted to hear. 3 yrs.....I am going on 2 wks and can't deal. Doesn't hurt to breath though. Walking is what I can do....sitting or laying too long hurts too bad. I think everyone is going to have so many different areas of pain. My job is working at a computer all day long doing payroll with a deadline....that was the worst. I have to go back to work on Monday and not sure how I can do it. Pain managment tomorrow and going to try acupunture as well.
Something has to give! I hope you feel relief soon!
megan36568 laura18022
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grace28398 megan36568
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megan36568 grace28398
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grace28398 megan36568
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kim27383 grace28398
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grace28398 kim27383
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Hi Kim, Yes I have still have Costro as well as Fibramyalgia. The neurontin helps the pain as well as ice packs and XS tylenol. Also Arnica gel and muscle rub helps to numb it. Theres also lidocaine patcjhes that help some people alot. How r u feeling?
I have good days and not so great days. But overall I'm better. Good luck hang in there
kim27383 grace28398
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I'm taking Tylenol and that's about it. Still not feeling well but hanging in there. I still worry constantly buy I'm trying to slow down and stop worrying all the time it's making me miserable. I sleep but am up very early in the morning.
grace28398 kim27383
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kim27383 grace28398
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I'm gonna have to look up the arnica gel and I am definitely going to start therapy. I constantly worry about my health now and mentally is has changed me.
grace28398 kim27383
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kim27383 grace28398
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elaine16907 grace28398
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Hello Grace
I'm following this post and just wanted to ask as you are working like me how are you finding coping with pain and work. What precentage would you say you feel cured?
Have you tried the backpod also ?
Best
Elaine
grace28398 elaine16907
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Hi Elaine. No I havent tried the back pod. Im a stay at home Mom. But for months I couldn't do much , including cooking. I now can cook, clean, do laundry etc. I don't know if I'm considered cured. But I'm like 75% better. But I also have Fibramyalgia. With that I have good days and not so good days. Have you tried the Backpod?
Take care,
Grace
kim27383 grace28398
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I'm so glad you are feeling a little better grace.
kim27383 elaine16907
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elaine16907 grace28398
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More recently I find I have been getting a mild soar throat and cough that comes and goes its really odd not sure if even related but its like snowball of syptoms that have been picked up since having Costo
Best wishes
Elaine
elaine16907 kim27383
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Sorry you still my earlier post has still not come through I have no idea why ?
Best wishes
Elaine
grace28398 elaine16907
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I agree. Since my Costro was diagnosed two years ago I have other health issues come up. But I don't know if it has anything to do with the Costro or not. Either way Im very grateful Its not life threatening nor are my other health issues...Thank God! I do pray and it really helps me. I also have a counselor I talk to once a week. Shes wonderful and prays for me at the end of every session. This cxondition is anxiety provoking for sure, but there are things we can do to not get so anxious. Again we are all lucky its not life threatening, and I'm grateful for this site. We all share our stories and help each other. Hang in there.
Take care,
Grace
elaine16907 grace28398
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kim27383 elaine16907
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I have headaches as well and have lost weight. . I'm also having an eye problems at the moment which I'm hoping will go away. We have a lit in common with this condition.
elaine16907 kim27383
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I grateful for this forum and that we all share, it's so important we know where not alone! Yes there are a lot of commonalities with our symptoms. Today I've tried to hold off taking paracetamol and ibroupen tablets I've only used topical gel. I'm still not happy to take Amiitriptyline 10 mg as patient reviews sound awful. Are you under NHS or having care private?
Best
Elaine
kim27383 elaine16907
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elaine16907 kim27383
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I'm based in the NHS is our health system tax payers put into.
How are you feeling.
Best
Elaine
elaine16907 kim27383
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Sorry using my mobile I'm based in the UK
kim27383 elaine16907
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Im in the US and I have stare insurance. Yesterday I got some news about the flashing light in my eye. The eye doctor thinks I have a condition called Ocular Histopomosis I think that's how you spell it where a fungus can attach to the eye and cause vision loss. He gave me an Ansler Grid to watch for Changes in my vision. I'm trying not to get down about it and hope it goes away on it's own and doesn't cause vision loss for me. It seems to he one thing after another.
kim27383 elaine16907
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elaine16907 kim27383
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Hi Kim
I am sorry that you have received this news. I'm not familiar with this eye condition but from what I have just read is treatable? Please try not to get down this forum will hopefully continue to be of support to you. Are you planning to update your GP with this information and whether this maybe connected to Costo inflammation at all? Will your optician review you again in a months time ?
Please stay strong and continue you to press for any investigations as neccessary. Answers are needed.
Warm regards and thinking of you.
Elaine
kim27383 elaine16907
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You're so sweet Elaine I'm so glad we starting chatting on here. I go back to the eye doctor in a couple of weeks and yes my GP will get the information I wonder if they are related at all. Maybe inflection latched on to my chest wall? Who knows. Yes I think the eye condition is treatable to try and keep vision from getting damaged. I also have an upper gastric scope scheduled for Monday. Some days I just want to run and hide. Lol. I'm trying not to worry about everything. I'm off work today and clean house, doing laundry, and spending the day with my children. They really mean the world to me. I hope your day is fantastic as well. The sun is shining bright here in Iowa today. It's getting cold but the blue sky makes me think of springs warm weather. I can't wait to feel it in my skin and breathe it in my lungs.
elaine16907 kim27383
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I felt a bit achey this afternoon and with pain later. I am still mostly worried with weight loss due to loss of appetite and have had a few headaches today although I have decreased the amount of tablets taking.
Just want to get back to me again and this vicous cycle is just awful.
Best Regards
Elaine
kim27383 elaine16907
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I definitely understand. I dont take any pain meds but I dont feel like myself most days. My nerves are all bunched up as well. I was going to a chiropractor but I've since stopped. I hope it helps you.
elaine16907 kim27383
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kim27383 elaine16907
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I was going for dizziness and head pressure before the chest pain started. I went once after it and I wasn't sure what was causing it. The chiropractor didn't want me to go after the light started flashing in my eye told me I could be having a stroke and I haven't went back. I did enjoy going but I wondered if it made the chest pain worse but because they think I may have an ulcer I am not able to take any anti inflammatory drugs which would have helped.
elaine16907 kim27383
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anti inflammatorys are so awful!
sending you best wishes.
Elaine
kim27383 elaine16907
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The eye doctor I am seeing thinks I have that ocular Histoplasmosis which explains the flashing in my eye. There can be a lot of different reasons for the flashing. Stroke can be one of the possibilities. I didn't have a stroke tho and they think it's just that eye issue hopefully they are right. My scope is tomorrow so I will find out about the ulcer after that. I'm hoping and praying everything is ok. I have never had one before.
elaine16907 kim27383
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kim27383 elaine16907
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