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New to Gilbert's and this site

Posted , 21 users are following.

EmilyandBilly
EmilyandBilly

Hello there group,

I am very excited to find you all! For amore than 4 years now I have been working with many different doctors and specialists to try to find the root of my many symptoms, and I have recently received some lab work that suggests that I have Gilbert's Syndrome.

And it seems that all the puzzle peices fit!

My symptoms all seem to match up:

-IBS

-cold hands and feet

-Yellow eyes and skin

-Dark urine

I am particularily excited to find this group, as I am in univeristy for Physical Therapy and I have been assigned a project from my professor to join an online support group. I would love to join this group and become part of an active discussion about this little known condition.

I would love to hear your personal stories!

How did you all come to find your diagnosis of Gilbert's Syndrome?

Kindly,

Emily

1 like, 35 replies

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  • Copper-enjoyer
    Copper-enjoyer EmilyandBilly

    Posted

    My blood test showed bilirubin on level 40 for 3 years straight (reference <20). I was 18 years old when i got DNA test for gilbert's syndrome and it came with the result 7/7 (some TA-things in UGT1A1). Do you want to get rid of your symptoms (cold hands and yellow eyes)?

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