New to Hypothyroid

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Hi,

I am 29 years old. I recently got my thyroid tested and my TSH was 8.2, my doctor told me that it is very high and put me on medication right away. I was planning to conceive that time, however I was told to hold on for at least two months, so that my thyroid stabilizes and only then should I plan a baby.  

My T3 and T4 results are still awaited, however it’s been 3 weeks since I am taking the thyroid pills (thyronorm 50 mg), empty stomach, first thing in the morning.

I have read a lot of articles on the internet and I could not relate to any of the hypothyroid symptom. I am more or less fit, active throughout the day, hair, nails, skin also do not have any issues. I was a happy person with an athletic build and no health issues in particular until I decided to have a baby and was tested positive for hypothyroid. I exercise regularly so there was not any drastic weight gain. Yes, I have gained some pounds, but it wasn’t drastic and there could be many other reasons to it (sedentary job, newly wed etc.).

However, ever since I have started taking these medication, I am suffering from severe mood swings. I feel irritated most of the time, partly depressed, partly lonely etc. It is difficult to explain, mainly because I have never had such issues ever in live. It is harder to concentration, and even though everything else in life is the same, I am not happy at all.

Could you please tell me if this is normal? And how do I control this, I really do not like this new version of myself. I feel like crying as soon as I get up and even though my husband is next to me, I feel so lonely all the time. Should I change my medication? Could it be the medicine? It could also be pre pregnancy anxiety as I am quite terrified of getting pregnant but I really cannot pin it down to that.  Please help.

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  • Posted

    hey i am 28 and have 2 kids so i'm not worried about falling pregnant but one thing is i felt loads beta if i took my medication when i hopped into bed at night rather than in the morning. you are meant to have an emply stomach for 1 hour after and i'm normally hungry in the morning! also, i have just started going natural for my hypothroidism, i didn't want to be on medication for the rest of my life i went and visited a nathuropath and she was SO helpful. i hope to be off medication by the end of the year and my thyroid working!
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    • Posted

      Thanks a lot, taking med at night never ocured to me. I will check this with my doc and will follow the same.

      I am also glad, to see there is hope for going off medication. Right now, having a baby is my top priority but its good to know that there are alternatives available. I will explore those options later.

      However, are these symptoms of anxiety and depression normal ? I am much worried about that.

      Thanks again for taking out time and your valuable inputs

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  • Posted

    Hi, I can relate to your symptoms. I've been on thyroxine for the last 30 years 175mg. I get the same symptoms as you everytime they put my dosage up. They don't last forever it just feels like it.  I can't give you a time scale to when you stop but it does stop.  Just be kind to yourself if your having a bad day just do the bare basics to get you through the day.  If you have a good close friend who let you vent then do so even your husband.  I know when I get down a hug from my long sufferering husband makes me feel better.  He also bares the brunt of my mood swings too.  When I'm finished he tells me he loves it makes it worth while.  I hope this helps.  As for getting pregnant you need to be well in yourself first. I did that when I was having my son.  I fell pregnant with my daughter 9 months after he was born and I wasn't in a fit state.  I had constant threaten miscarriage for the 1st 8 weeks spent 1st half of my pregnancy flat on my back trying to stay pregnant. The last 6 to 8 weeks flat on my back in hospital trying not to go into premature labour.  You need to be mentally and physically fit to be pregnant with thyriod problems.  Hang in there you will get there in the end.   Sorry for long post but thyriod is not easy to deal with. No 1 size fits all I'm afraid.
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    • Posted

      Hey, thanks for sharing all that and I am glad you wrote such a long post. I am still absorbing the fact that I have hypothyroid. It just dropped like a bomb,  I thought, I am perfectly healthy and went for a check up, just for some pre pregnancy consulting. Doc asked to get some test done for the precaution sake and boom, high TSH!

      Its been 3 weeks since I started the medication and all these mood swings cropped in. I hardly had any before and its so difficult to cope with. My friends and husband are understanding but they are not used to me being so un-me.. plus I dont like me like this.

      Well, thanks to you, the good news is that this wont last for long. I just want to have normal thyroid levels untill I deliver a baby. Hopfully I will indulge in alternative methods post that.

      confused

       

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  • Posted

    yes i get very anxious and poor hubby has to tell me to chill out ... haven't really had bad depression but yeah there has been days that you dont even want to get out of bed cause you don't what the day to start. i would make sure you get the right doseage etc and feel a bit beta before you get pregnant cause having a baby is hard yakka - before and after - and you have to be fit and positive about the whole deal! hey good luck you will be fine - just real important to get on top of things .... it does get better believe me!
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  • Posted

    So are you saying you felt great before your dianosis and only started feeling bad when you were put on medication after doing bloodwork?
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    • Posted

      Yes, thats true. I have never really been on such permanent medication except for occassion cold or flu and I never liked it anyway.

      Even since I started taking these medicine , I have been feeling terrible and mood swings have been on a high. I am difficult to myself and the people near me. I just wanted to know if thats normal with thyroid medication or its just that its not suiting me,

       

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  • Posted

    Hi Supernova,  Your post is alarming but not surprising as I've heard of others who have been put on thyroxine based only on a TSH test.  This is the doings of a doctor who is not up to date on thyroid treatment and is looking only at the TSH result and not at your symptoms - of which you have NIL!

    It appears to me that you should not be taking the Thyronorm at all as you previously felt fine and now you are very unwell.  The medication has caused your thyroid to either underwork ‘hypothyroid’ or the medication causing you to be ‘hyperthyroid’.  Others have been down this road and have decided to stop the medication and allow their thyroid to return to it's previous state.  You 'must' enlighten yourself and 'research' about the thyroid and how it works - do not rely GP’s entirely as you will find most of them do not know how to manage the condition.  Change doctors if needed.  .. Such a sad predicament we thyroid patients find ourselves in.  Basically, if you have no symptoms – don’t take the medication.

    The fact that you are young and are hoping to have a family further complicates the situation.  When you see your doctor you must get a copy of the free t4 and free t3 test results.  Regardless of what the result of these tests are it is your decision whether you take the medication or wish to return to your healthy pre-medication state for now.

    Keep in mind that in the future you might develop a thyroid condition and this TSH result could be a warning of that.  IMO you don't want to be taking this medication if it is not needed because once you start - you will be on it for life.  But you have time to stop now if you decide and your thyroid will probably return to it's usual state.  The decision is yours!  Research – find out what is good for keeping the thyroid healthy if you stop the medication.

    Pregnancy with a thyroid condition or perceived thyroid condition can be serious and needs careful monitoring for your sake and the sake of the baby.  You do need a good doctor or Endocrinologist to see you through it.  And you may actually need medication to get through the pregnancy.  Taking plenty of time to normalise your thyroid before considering pregnancy would be a good idea in my opinion.

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    • Posted

      Thanks for detailing it out so well for me Sketchy. Its just been 3 weeks since my test results came out. I tried reading a lot online, but the more I read, the confusing it became. Joining this forum is actually a step towards the research. I am glad to find some real advise here. Symptoms and its explaination is very generic online.

      I have my rest of the tests and doc appointment in the coming week and I am better prepared to see the doctor this time. I will hopeful of getting a second opinion as well. I started with the medicine without doing any homework beacuse I had just gone for a pre pregnancy consulting and finding out that I cant start the concieving prosess right away was quite depressing in itself. I started the meds right away beacuse I do not want to delay my pregnancy any longer.

      Thanks again for sharing your insights.

       

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  • Posted

    If you agree you felt fine until you started taking the meds I would recommend you go to another doctor for a second opinion. Something sounds wrong here. Everyone I know feels awful until they do get on meds. Good luck. Read, read, read about hypothyroidism before you decide what you will do. I will also add that with Hashimotos autoimmune thyroid problems you can sometimes  stop the autoimmune attack with meds and return to normal thyroid function. If you were lucky enough to have a do toe do that for you accidentally or not, then that would be a great thing. In the US it's hard to get treated for hypothyroidism   
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    • Posted

      Thank you. I have just started my journey with this disorder. I am glad to see so many responses and such helpful inputs on dealing with it. Going for a second opinion is on my list. Thanks

       

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  • Posted

    you are young to be dealing with such problem, i have dealing with the same problem for many years now, and the side effects of the medications are such that i gave up, taking the medicine, i try all the medications and came to the conclusion that is not the medication but the amount that the doctor start you with, i dont understand why the doctors make that mistake over and over again, starting the patients with large amounts of the drugs without taken in consideration that the side effects may cause, and they are different from person to person, If you are getting all those swing moods they are the result of the medication, you should go back to your doctor and  if she/he cares about you, he should listen to your side effects and suggest him if he doesn;t say it, that youu will like to start with small dosis like maybe 5mcgs for 3 weeks and then increase it every other week till your body adjust to a greater amount, Also hope that the medication prescribed to you hope that the tablets are white, I guess that if you take the medication in small amounts you will feel a lot better, and I wish that you feel better so you can have your baby soon and a very healthy baby. Would like to know what your doctor say, and if he dosen't change the amount, I wil suggest that you look for an specialist, depend were you live, some are real good I livr in Tampa, fl, and was lucky to find a great doctor who is working with me with my problem, Hoope that my answer help you some, good luck to you.
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    • Posted

      Thanks a lot Jaime, your post is indeed helpful. My doc had asked me to come back with my new reports post one month on medication. Its been 3 weeks so far. I started with 50 mg, but she had told me that she might reduce it to 25mg , depending on my results of T3 and T4. May be i started with a high dose. The only reason I started medication without a second thought was because everyone has been telling me that I have delayed my pregnancy a lot and things get difficult post 30. It took me 2 years to finally take a plunge and start the baby preparation and there was a road block at the very first step. So I just started with the meds right away. I was told , I have get my thyroid at right level before concieving.

      This forum has been really helpful, I wish I had joined it earlier.

      Thanks again for your advise.

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  • Posted

    A normal TSH does not rule out thyroid dysfunction and a low TSH is shown to be an indication of excessive tissue thyroid levels only 20% of the time (80% of the time that is not the case). Endocronologists can't even agree what a normal/abnormal TSH should be according to Dr. Kent Holtorf, MD, director of the National Academy of Hypothroidism in the US.  

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