Newly diagnosed
Posted , 8 users are following.
Hi I'm newly diagnosed and have been given Dermivate I've been using 2 a day for 3 weeks and don't feel any better help please
1 like, 10 replies
Posted , 8 users are following.
Hi I'm newly diagnosed and have been given Dermivate I've been using 2 a day for 3 weeks and don't feel any better help please
1 like, 10 replies
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hanny32508 justine89448
Posted
Quick response: You've found a good place for finding good info. Please do read some of the topics about LS to make yourself hopefully feel a bit more comfortable with this illness. Also look at Dr. Goldstein's website.
wendy14679 justine89448
Posted
claire12259 justine89448
Posted
justine89448
Posted
I'm going to see a dermatologist and I need to get my thyroid checked again. I will just keep trying I guess x
jackie73005 justine89448
Posted
suedm justine89448
Posted
If you can take time to read through several of the threads that have been raised by members you will find that many find similar responses to the anxieties raised by having LS. In Dubai you have the weather to contend with as well Try and keep the undercarriage cool. Do take time to log on to Dr Goldsteins lecture and try and take screen shots of the slides - they do explain a lot and need to be looked at after the talk which takes about an hour- This is easier on a desk or lap top i think. Firstly do try and reduce the biggest stressors in your life if you can - find coping mechanisms- Stress will increase the cortisols racing around the system and wont help matters in the undercarriage. Reducing sugars in one's diet has been helpful for many. Do use the sprays in the WCs to keep the urine off your skin, Use a pea sized amount after a warm relaxing bath , massaged in really well- You are younger than many of us i guess so do think about using a protection on your fingers while applying the Dermivate ointment as you are in for the long haul i am afraid. Do get a mirror and check yourself regularly. Enough for now - but you have found a helpful site Take care and try not to scratch or worry
Sue,
justine89448 suedm
Posted
suedm justine89448
Posted
If you look at Dr G' site the link is https://patient.info/forums/discuss/dr-goldstein-lecture-271556 he gives info re applying the ointments. Urine is a major irritant if it gets to the skin , as of course are mentral fluids and faecal material, so keeping those fluids at bay will help a lot. No tight pants jeans or thongs!. When possible use a cold wet pack (or an ice pack wrapped in a soft material - you dont want ice burns on top of everything, for a short while) to reduce the itch Drink a LOT of water to keep the urine dilute - strong urine stings Do chat away on this site with any thoughts or worries - while we cant cure this condition we can at least support each other with ways we have coped with our own issues
Take care and keep cool Sue
ChicaNZ justine89448
Posted
I had my second daughter at 40 and thought (so did doctor) that I was suffering with thrush for a year after her birth. It all subsided with flare ups from time to time till this year (my daughter is nearly 9) when I got really bad IBS after a trip overseas earlier this year. I instantly got out the baking soda and sat in a bowl of that with warm water- instant relief - twice a day. I also have a bottle of Manuka/kanuka oil (easy to get in NZ) which is what makes Manuka Honey potent. This is tea tree oil - melaleuca alternifolia and a well known cure all. NZ soldiers were given bottles of this in their first aid kits during the world wars.
It stings/burns if you put it on neat, but makes a big difference if you can handle the initial pain. Better still, I put a few drops with zinc and castor oil cream (suda crem would be good) and smear it on the affected areas. After reading some of the posts, I think I will try this with coconut oil as well.
My doctor said not to use anything but barrier cream till the lesions were better before my next appointment; oh boy, did she not know what she was talking about, but at least I had a diagnosis after years of going to other doctors who said there was nothing wrong!
Thank you everyone for all your posts. It is so good not to be alone with this.
hanny32508 ChicaNZ
Posted