Newly diagnosed
Posted , 13 users are following.
hi I was diagnosed only two weeks ago in the uk. i was told by my gp to put strong steroid cream on my bits and my bum and to go back in two weeks. i went back on friday and was given stuff to book an appappointment with a vulva dermatologist. I was told to keep up with once a day application of the steroid cream in the meantime. I have managed to book an appointment but not until the beginning of March! Should I still be using the strong cream daily until then? If my condition improves surely I don't need to apply daily? My bum is sore already. Any uk sufferers out there? Berkshire area would love to meet up and discuss and compare?
0 likes, 20 replies
liz53953 janet62990
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bearmama janet62990
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janet62990 bearmama
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Chrisy janet62990
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Vibrant_Health janet62990
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view postings of others and educate yourself as much as possible and see which of the 'routines' other have been successful in managing their conditions i.e.
reducing/eliminating sugar from your diet and increasing more organic, alkaline foods among many. After you gain a little more perspective, essentially, what it boils down to is orchestrating one's life and make the necessary changes as is possible. By the time you get to meet with the next professional, you will be equipped to have a more meaningful conversation, coming from a place of being informed. Finding a solution becomes a joint effort. PLUS, if you gain some useful insight and share with us, all of us also benefit.
Hope this helps and wishing you a joyful holiday season.
Hazel1962 janet62990
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deb09833 janet62990
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janet62990 deb09833
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Guppy007 janet62990
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Hi, sorry you had to join us.
I'm English but I'm not living in the UK.
What are your symptoms like, have you any fusion? Is your undercarriage patchy and white? I ask this because I don't think you need to be putting it on everyday until MARCH! I personally think that is too much. Everyone is different though, in your shoes I would apply it every day to start with, maybe for a couple of weeks, then every other day, and finally twice a week...this is only my opinion, and I am sure others may have a different view, and of course it all depends on the severity of your Lichen Schlerosus.
janet62990 Guppy007
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Chrisy janet62990
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janet62990 Chrisy
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val82862 Guppy007
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Chrisy janet62990
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val82862 janet62990
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janet62990 val82862
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janet62990
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suedm janet62990
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This is how i went to a support group in Birmingham some years ago - I had to move away but we did have some really helpful discussions and even went to ann summers to discuss the use of diloes and vibrators. they were very gentle and supportive- a private appointment had been made by the sexual therapist on our behalf. good luck in your quest - it WILL be worth it if you can get it going Best Wishes Sue DM