Newly diagnosed

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hi I was diagnosed only two weeks ago in the uk. i was told by my gp to put strong steroid cream on my bits and my bum and to go back in two weeks.  i went back on friday and was given stuff to book an appappointment with a vulva dermatologist.  I was told to keep up with once a day application of the steroid cream in the meantime.  I have managed to book an appointment but not until the beginning of March!   Should I still be using the strong cream daily until then? If my condition improves surely I don't need to apply daily?  My bum is sore already. Any uk sufferers out there?  Berkshire area would love to meet up and discuss and compare? 

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    Hi Janet

    I am under the care of a GP in the UK. It is difficult to answer questions about your own treatment with the Clobetasol or Dermovate cream because we are each of us different. Particularly, treatment differes depending on how old you are - pre-puberty, adult or menopausal. 

    In my own case, something that had to be absolutely cleared before I used the ultrapotent steroid cream intensively was that any fungal infection was treated first. I had introduced a fungal infection because of damaging my vulva and anal skin by itching too much.

    The fungal infection was cleared with Daktacort cream (this has to be kept in the fridge). This cream has miconazole with a mild steroid and between them they control any fungal infection and reduce the LS itch. Once that had worked its magic (about 2 weeks), then the potent (Betnovate) or ultrapotent (Clobetasol) cream can be used to really work on reducing the deep seated inflammation of the LS.

    My GP wished to check on me every 2 weeks at first because the process was: 2 weeks of Daktacort, 2 weeks of daily Clobetasol, 4 weeks of alternate days Clobetasol  along with the introduction of Oestrogen treatment, then 2 monthly checks. Unfortunately, my condition couldn't be stabilised because Lichen Planus also started up and so I was referred to the vulva clinic for further checks. 

    My recommendation is that you keep in contact with your GP. If you are sore in the places where you are applying the steroid it seems likely the either you have some fungal infection, or something in the cream is irritating your skin (we all seem to get more sensitive to chemicals once we have developed LS). Your GP should know about this soreness because (s)he can change your prescription to something for the fungal infection or an ointment-based instead of a cream-based steroid. I also think your GP should be monitoring your frequency of use of the steroid. 3 months of daily treatment sounds a long time to me, but only your GP can assess your condition.

    All the best

    TBF

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