Newly diagnosed

Thank you,yes it does affect my daily living I have had to give up work because of the fatigue etc. and was putting myself and others in danger by nearly falling asleep whilst driving so I knew this was the final straw and that I had to do something about this.

Hi jennet I have recently been diagnosed with fibromyalgia but also have back problems. I have also had to give up my full time job as it was just too much. I have recently applied for pip and have a f2f with Capita on 4th of January which I am petrified about. I have heard lots of horror stories about how hard it is to get the benefit but don't know if you don't try so go for it x

It took me 3attempts to get it x

Hi,I so hope your f2f goes well,last year I was on DLA,hifpgher rate of both,had assessment by Atos and had all but lower rate care removed,I had to return my4th mobility car!the embaressment of it all was to much to bear.i became withdrawn,depressed,and suffered panic atracks..the fact the assessor lied so much,my tip is ask for home visit,and take someone with you,ask them to take notes,ask the health care person what their profession is/was.i was told don't make chit chat,answer the question a

nd say nothing else.good luck xx

thanks for that it really helps to know someone else is in the same position as myself.  Would you let me know how you get on with your f2f?

any tips on this?

I really feel for you, people dont realise the impact of these things.  Thanks for the tips they are really helpful. Hope you get this reassessed!

Hi Jennet yes I will definitely post again when I have had f2f but don't hold out much hope really

Hi milky is it not really hard to get an home assessment? I would much prefer it if I could

Hi Mandy, did you have other problems apart from your fibromyalgia? It makes you laugh how they can turn you down twice then give it you for the same thing a third time

Yeah I have major back trouble,failed back syndrome,arthritis ,It was on the back of the form you could request home visit,not sure were you live but I contacted disability help centre near me,and a member of the team helped me fill in form,just now waiting to hear outcome.x

Hi, I have degenerative disc disease with nerve compression waiting on neuro appointment. Been told unfit for work by occy health so petrified about that too, will look on back of form but sure there was nothing. I live in Worcestershire

I have server depression a disc crumbling and another disc squashing on the nerves. My hands and fingers go numb. The doctor said I had gout. Then another doctor sent me for Mri once again so the result were sent to a rheumatology doctor. That is when I was diagnosed with fibromalgia so I put I for it again and they passed me has I have everyday pain

a crumblingdisc is not fibro.

compressed nerves is not fibro.

Something else is going on.

You need a neurologist

and you need a spinal orthopedic