Posted , 12 users are following.
Hi all. After lots of visits to GP followed by a series of falls I eventually was referred to Rheumatologist.last Friday. On 2 nd of August 5 days later he has started me on 20 mg PRED a day. He says I'm young as I'm only 55.... got a great Dr.I could have cried because I felt he'd listened to but this is my first post and I dont know much about it?
0 likes, 41 replies
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celia14153 Daisy64
Posted
Oh yes! Dizziness, bleary eyed and kept dropping things and sighing! Also increased tinitus. Dizziness improved when I lowered dosage to 20mg and I think the body does adjust. I'm keeping an eye (!) on my eyes as Pred can increase pressure in the eyes, and mine is high to begin with. Regular visits to the optician recommended!
Michdonn celia14153
Posted
I am the same working my way down to 17.5, I felt much better under 10 mg, looking forward to that level again. But I still smiling. 🙂
celia14153 Michdonn
Posted
You've had quite a ride Mitch, and kept yourself going. Respect. I'm going for 17.5 tomorrow- a little bit scary!
Michdonn celia14153
Posted
celia14153, are you going straight to 17.5 or doing a modified DSNS? I am doing a modified DSNS. Started it on Monday and walking twice a day, PMR pain free so far. Good luck on your journey, put that smile on your face. 🙂
celia14153 Michdonn
Posted
I wasn't sure whether the slow tapering started a bit lower. How do you run modified DSNS?
Michdonn celia14153
Posted
celia14153, one the other members gave me the idea and I think it is great. Instead of 6 days reduce to say 3 or 4 and do that. I am using 3-1, I also split my doses. Like now 20 is 15 in morning, 5 at bedtime. 17.5 is 13.5 in morning, 4 at bedtime. Schedule as follows:
1 day new dose, 3 days old dose
1 day new dose, 2 days old dose
1 day new dose, 1 day old dose
1 day old dose, 2 days new dose
1 day old dose, 3 days new dose
And there you have it a 16 day schedule, if it too quick you can increase the days, but I will stop if I get any PMR pain and back to the dose where my PMR was undercontrol.
Hope that helps, smiling. 🙂
celia14153 Michdonn
Posted
That's really helpful Mich - thanks so much. I feel you've done all my work for me! Definitely don't want PMR pain back - or steroid withdrawal pain. Good luck to you - and you do make me smile - although I'm worried your cheeks will ache 😄
Michdonn celia14153
Posted
celia14153, I think it is easier to smile than to frown. 🙂🙂
And you are welcome hope it helps.
Don't frown!
celia14153 Michdonn
Posted
😄😄😄😄😄😄😄😄😉
Anhaga celia14153
Posted
Celia, I modified DSNS by dropping.5 mg for first half of a taper, and then dropping a further .5 for second half, at the same time making the first "new" dose my new "old" dose, so I was never dropping by more than .5 mg at a time. Started that at about 7 mg. Now I only drop .5 for the entirety of each taper, currently at 1.5.
celia14153 Anhaga
Posted
Thanks Anhaga - it's good to have these options and work out what's best for the stage I'm at.
Michdonn Anhaga
Posted
That sounds like another good idea Anhaga, I will put that in my bag of trick for when I get that low.
Thanks 🙂🙂
Michdonn Anhaga
Posted
One question Anhaga are splitting one mg tablets to get .5 mg? Maybe when I get that low, but now I don't know!
Michdonn celia14153
Posted
😂
Anhaga Michdonn
Posted
Michdonn Anhaga
Posted
Thanks Anhaga, the 1s look so small, but I do have a pill cutter and works good on the 5s, so I should be okay. If and when I get that low. But I am smiling.🙂
EileenH Michdonn
Posted
constance.de EileenH
Posted
Off topic!!
How's the weather in your part of Italy? Are you bracing yourself for the heatwave?
EileenH constance.de
Posted
We have been lucky with regard to heat - we have had about a week at a time of low to mid-30s temperatures and it has always cooled overnight to about 15/16C. Down in Bozen the nighttime temps haven't been below 20C for a couple of weeks at least and daytimes have been up to 37C. However, we have had "Unwetter", mostly in the mountains a bit further south and it has just missed uu but last night was particulalry bad and several roads are closed after mudslides. A village about 10 miles away had over 4 inches of rain in a very short time overnight and the village has been hit by massive mudslides - no-one hurt though.
It is 1pm and I'm sitting at the computer watching an approaching thunderstorm with the lights on it is so dark inside. Don't think I'll be sitting on the balcony today - it's coming from the west so could soak the entire seating area, it's already 3/4 of the way to the back!
constance.de EileenH
Posted
I assume you're now in Bozen then? Did you find a good camping place?
EileenH constance.de
Posted
Michdonn EileenH
Posted
EileenH, I doing that for the 3.5 now. She was mentioning a .5 and with the way my fingers are I don't know if I can do that. But I had a nice walk met some nice people on the way, didn't get rained on stopped in a carport. Big smile. 🙂