Newly diagnosed and feeling lost
Posted , 7 users are following.
Hi im 25 and after a long up hill struggle i finally got a diagnosis. Though after putting on smiles for my family and telling them "im fine" i find it couldnt be further from the truth. My doctors have little idea of how to treat this on a management scale. Theres so much information on what works that shifting through it is stressful and honestly with all my added fibro symptoms stress is one i could do without. So im asking here in one collective place, does anyone have any information on what works? Pain management? Symptom relief. Depression and anxiety relief. Ibs management. Homeopathic or otherwise, any gudience would be appreciated.
1 like, 16 replies
janet26165 jamierose
Posted
Sorry to hear you had a long wait for your diagnosis.
Unfortunately with fibro nothing is straight forward, drugs that work for one person may not work for someone else. I personally take, gabapentin for pain, etodolac for inflammation, citalopram for depression, omeprazole to protect my stomach and a few others. I have also had CBT (cognitive behavioural therapy).
Other people on here will also let you know what works for them. A lot with fibro is trial and error.
Anyway welcome to the fibro club and always remember that you are not alone in this fight and there are many people on this forum you can help or even reply to you if your having a bad day.
Take care and gentle hugs 😊 x
kaz_40 jamierose
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christine26761 jamierose
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Amithriptilyne is the only med I take for Fibro...gives me a great pain free sleep..- no pain..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once it was just constant pain almost everywhere and sleepless nights..I take it 7pm before bed..it really does work wonders ( for me..that is,) we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...all the next day..dropped to 10mg for a while-still not too good but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time..yes it does knock me out to give me that great sleep which is just sooo needed, to be able to deal with the pain etc the next day..but once I'm up and dressed..I'm fine.....Its great...16yrs down the track..have to be woken up in the morning..but once up and about I'm just fine.....when I was first on them I was like a zombie..but it's like a miracle med for me... it takes a while to settle in. ..also, please remember that less stress is the key to Fibro....be blessed..have a lovely day..:-) xxx
This was tajen of a site..
Amithriptilyne . is a Nerve-pain blocker..with sleep assistance and minor anti-depressant)..
deb97936 christine26761
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christine26761 deb97936
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bronwyn97278 christine26761
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christine26761 bronwyn97278
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christine26761 jamierose
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diagnosisisalie christine26761
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jamierose christine26761
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christine26761 diagnosisisalie
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bronwyn97278 jamierose
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Bee70 jamierose
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I know how you feel. I have been suffering for over 20yrs and only diagnosed with fibro Aug 2014. Since finding out I have Fibro, I have had CBT (Cognitive Behaviour Therapy) I particularly found this very helpful with the mindfulness approach and the understanding that we have the right to say NO when we can't do something or helping others when one is feeling so low themselves. It made me more of a confident person. I am not good with meds, as had years of taking them and not helping me in any way. So I don't take meds from GP. I have tried various other treatments over the years, such as reflexology, acupuncture, seen a chiropractor, tried homeopatic rememdies, chinese remedies, and although some work but only for a short period of time. I am at the moment trying ayruvedic herbal meds, and it's early days to report back on this, but I will let you all know of my experiences in the coming months.
You will get plenty of support and advice on this forum, with such lovely people sharing all their experiences with each other.
Gentle hugs and hope you get your answers soon x
chrissyboo jamierose
Posted
I am in exactly the same position as you.
I had brilliant results with gabapentin for about two years but allergic now. I have a tens machine which is great but can't really help anymore than that other than to say your not alone
Krissy
jamierose
Posted