Newly Diagnosed PMR...Dr appt today
Posted , 11 users are following.
I started 20mg of Pred.3 days ago, and am mostly pain free so far.Had my follow up Dr appt today. He will keep me at 20mg for 4 weeks, and then have me to down to 15mg and see how I do. He said the first "jump" down can be that big, but subsequent drops will be by 1 or 2 mg. Is this what most Dr's do? He also said I can start my water aeorbics back classes back up again and it was really up to me whether to go half time for a couple of times, or get right back into it. I am SO happy.......ILOVE that class. There are only about 10 older ladies like me in it, and the instructor is so nice. Feeling hopeful today !!! Went and got my hair cut after my Dr's appt !!!!!!!!!!!!
1 like, 22 replies
ellen40911 manikki
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dan38655 ellen40911
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I waited maybe five weeks before a third physician finally gave me a test-dosage of 20mg, which seemed like an etrnity, but the 20mg kicked in good within 3-4 days.
I had also been unable to sleep much or to get out of bed without a lot of real agony.
18 months later I am just now dropping from 6 to 5mg, after my tapering needed a 6-month break. I am now feeling good with quite-limited symptoms, and I think my course has been fairly typical of PMR. Symptoms have wandered about from neck to feet.
Good to hear Manikki is responding to treatment :-)
ellen40911 dan38655
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EileenH ellen40911
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I suppose they all made a decent living from it though.
I do despair sometimes.
LayneTX ellen40911
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would you you tell me about your upper trapezius pain , injections, how they found it, ... Was it cortisone injections? Or anesthesia injections? Did it help or just the prednisone helped pain go away?
my physical therapist made me do push-ups to failure and since then I've had pain daily between shoulder blades and even tender spot on right side of spine. Not sure if it's PMR related, I still have some PMR pains in typical areas. So, sorry your diagnosis took so long. Mine was over Christmas so I didn't get in for 6 weeks. And after researching on Internet I said I had PMR symptoms; after high SED rate they agreed.
Thanks, Layne
ellen40911 LayneTX
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EileenH LayneTX
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What you are describing sounds like myofascial pain syndrome - the same symptoms I had on top of PMR, I had cortisone shots into the trigger spots but also manual mobilisation - physiotherapist used her fingers to find tha hard knots and work them out. Bowen helps to of course.
LayneTX EileenH
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I had previously questioned him if he knew I had PMR. I'm tempted to send them a book on PMR!
I'll ask my Bowen gal to work on that area. She's done good with my lower back and shoulders. Tried working my hip flexors... But I think they've turned to Tendonitis.
Live been able to walk more lately due to less lower back pain! Yea!
ellen40911 EileenH
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EileenH LayneTX
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LayneTX EileenH
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The tendon is we believe of my Rector Femoris, it hurts to lift when getting dressed or in my car. I can only lift it 8-10" in mornings...still. And they are both tender to touch. Also was my pectineus but it feels better now days.
My sit bone areas (Ischial) still hurt when I ride in a car. I do place a tennis ball or pillow under me to remove pressure from those spots.
Ha! Literally a pain in my rear!
ellen40911 manikki
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karen48559 manikki
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karen48559 manikki
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molly1957 manikki
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good luck to you Molly
karen48559 molly1957
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molly1957 karen48559
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karen48559 molly1957
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molly1957 karen48559
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EileenH molly1957
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https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
you will find a link to the northeast website as the second entry. The rest are other useful educative links - all reliable and approved.
The slow reduction mentioned elsewhere on this thread is to be found in the replies section of that thread.
You'll all have come across the authors of the book on this forum - and yes, they've all been there themselves ;-) and spend a lot of time trying to educate doctors too!