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Newly Diagnosed with AV - Issues with Replens

Posted , 15 users are following.

julie60238
julie60238

I have been dealing with what feels UTI symptoms since early April.  7 courses of antibiotics later, a very painful cystoscopy, a yeast infection, BV, and now AV (and a 15 lb weight loss that I did not want).   During this entire time I have been using replens with the hope that some of the pain and burning would ease up a bit. But it didn’t. It turns out that the replens has been making things worse.  I have been having this very unusual white tissue like discharge  in addition to swelling, redness and severe burning. Turns out it is the replens!  Anyone else experience this? And any suggestions on a more natural product that has been successful at treating or at least reducing this horrible pain.  Anyone using Bioidentical hormones for AV? 

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  • julie60238
    julie60238

    Posted

    Anyone having issues with this site today?
  • julie60238
    julie60238

    Posted

    Ladies,

    I know we are chatting from different countries on this forum and the legislation is different in each country but has anyone tried using CBD oil for pain, specifically the UTI/bladder pain?  It is legal in Canada. I have not seen anyone broach this subject yet so just thought I would ask. 

  • beverly52803
    beverly52803 julie60238

    Posted

    I tried a friend's cream for lower back pain. She swears by it for restless leg syndrome. I found it mildly effective. 

    You should probably start a new thread/topic specifically on CBD.

    • julie60238
      julie60238 beverly52803

      Posted

      Surprise, surprise. I tried to start a new conversation on the use of CBD but it is being held by the moderator. It might pop up in a day or two. Who knows?! 
  • julie60238
    julie60238

    Posted

    I succumbed to the pain today. Was up all night trying to deal with it and when I finally got out of bed, I said enough is enough and went to emerg...hurt to even walk or sit.  Couldn’t even drive my own car.  Every single thing that causes me pain was in full force and I guess I reached my coping limits (especially with just my regular meds of Advil and Tylenol). They gave me a shot of something which calmed me down and took away some of the bladder pain but did not even touch the urethra and vaginal burning. However, at this point, i will take whatever I can get. Still in pain but I do feel better that’s for sure. now waiting on the results of yet another urine culture and a painful pelvic exam.  Wouldn’t it be wonderful if someone came back to me and said, “we now know what’s wrong and this is what you need to fix it”.  A girl can dream. 🙂 I am starting  to think I should apply to be on the new tv show called “something is killing me”. Maybe they can fix me up the right way without all of this guessing. Lol

    • Suki_girl
      Suki_girl julie60238

      Posted

      What did you say you thought was the cause? Was it vaginal atrophy? You’re pain sounds too extreme for that. Could it be vulvodynia? That cause my me such extreme burning pain that I couldn’t sleep or function on a daily basis. I just stayed I no because bed all day crying. I didn’t eat either and lost so much weight.
    • Suki_girl
      Suki_girl

      Posted

      I meant ‘in bed all day’
    • Guest
      Guest julie60238

      Posted

      Julie, 

      I am so sorry for the pain you feel. Has anyone talked to you about pain management.  I too have experienced extreme pain when sitting and walking.  In US an anesthesiologist with additional training is Dr specializing in pain management.  Ask your Dr if this would be an option for you.  It has helped me with a portion of the pain.  It doesn't help with the bladder symptoms. 

    • Guest
      Guest Suki_girl

      Posted

      Suki, 

      I have experienced those days as well.  These are the days when the Vulvodynia flares.  It becomes impossible to walk.

      Ice, rest, and sitsz baths seem to work best. 

    • Suki_girl
      Suki_girl Guest

      Posted

      I no longer have Vulvodynia. After 2 years I was pain free - have you seen my post “how I cured my vulvodynia”? Other women have posted their success stories there too.
    • lorrie70
      lorrie70 julie60238

      Posted

      Oh, Julie, you poor dear.  You must have been in terrible pain to go to the ER.  I only had bladder issues when I used estrace and coconut oil together and I called my pelvic pain doctor in the evening after office hours. I felt as if my bladder was going to drop out.   I hope they can get to the bottom of your pain.
    • julie60238
      julie60238 Suki_girl

      Posted

      I am currently where you were at. The laying in bed, crying , not eating stage. I have been told that I have IC and AV. You combine the pain from those 2 conditions and a shoulder injury from a fall I took the other night and that was enough to tip the scales for me. I was not coping at all...especially with getting no sleep.  Nothing takes that burning away though...not even the good stuff from emerg.  See what tomorrow brings. 
    • julie60238
      julie60238 lorrie70

      Posted

      Thanks Lorrie. Yes, it was an awful day. I used to think I was a pretty tough woman but these conditions have proven me wrong. 😬 

    • julie60238
      julie60238 Guest

      Posted

      Hi Patricia

      Yes, I know a fair bit about pain management. I was primary care giver to a relative last year who broke her back in 2 places and some ribs. I had to take a 3 month leave of absence to care for her and take her to all of the countless appointments including the pain management clinic. But it did help her to get through the worst of it. 

    • Suki_girl
      Suki_girl julie60238

      Posted

      Amitriptyline helped me sleep. Sleep aids healing. It is important to get sleep. Have you tested yourself for vulvodynia using the cotton bud test? The overactive and hypersensitive nerves with vulvodynia will register light touch as pain. Such neuropathic pain in the vulva region is vulvodynia.
    • julie60238
      julie60238 Suki_girl

      Posted

      I was just lectured at the hospital about the effects of lack of sleep with these conditions. But the only way for me to sleep through all this pain is with medication which I often resist. But tonight I am going to take it and pray for some 😴. And no, I haven’t done that test yet but I will. Thank you for all of your advice and suggestions. 

    • Suki_girl
      Suki_girl julie60238

      Posted

      I used to resist medication but the vulvodynia was not only affecting my quality of life but also my abaility to look after my children. Taking amitriptyline and being able to sleep made a huge difference.
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