Newly diagnosed with Fibromyalgia
Posted , 52 users are following.
Hey, very new to this site so not sure how it all works yet. I'm 23 and I was diagnosed with Fibromyalgia last week after Rheumatologist ruled out all other diseases. Not going to lie, I'm finding it quite tough - especially as I have a small child to look after too. My symptoms are mainly just joint related ie, very stiff in the morning all over my body (walking like I have wooden legs), very clicky joints (almost as if they part-dislocate sometimes, especially my elbows) and I also get tired really easily. My main problem at the minute though are my very sore feet. My job involves me being on my feet up to 9hrs somedays and it's agony! (My Rheumatologist suggested I may need a career change) BUT I really don't want to leave if I don't have to. The pain in my feet (heel and ankle pain especially) often makes me feel sick it hurts so bad. Even co-codamols don't touch it. Anyone else with the same/similar problem with their feet? Will it go, like all the other symptoms that seem to 'move' around my body. I'm on 10mg of some anti-depressant (can't remember the name, begins with an 'A') at night.
Thanks
8 likes, 50 replies
debbie68552 alb90
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valerie72601 alb90
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madichan alb90
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I know how you feel I'm going thru it right now can't even.stand..I find using.water bottles frozen and rubbing your feet on them.really does help and staying.off them.is.impossible with young ones so a Paraffin wax tub u can can buy at wall Mart pulse wax works wonders try to
AMG65 alb90
Posted
Evening ladies!
I've not been diagnosed with fibromyalgia, but I have a lot of the symptoms?
Recently, I've been struggling to get IBS symptoms in check, taking copamol daily. My shoulders and elbows have ached on and off for around 3/4 years now, and these last few weeks, my wrists hurt on occasion too... My pelvis and low back hurt like merry hell some mornings, and I feel sick with the pain. My feet are the worst ever, it's like they're broken, and at night time, I can't stand the feel of them touching the mattress, so I have to lay on my tummy, so they're not buzzing? This is ok, but where my foot is stretched like I'm on tip toe, my ankle joint is painful for hours on waking?
I suffer with restless legs, and it has been known to keep me awake most of the night?
Individually, I have been to my GP for some of the pains, even having had two blood tests because of painful, swollen hands, but no arthritis showed?
Some days, I feel like I've been hit by a truck, do yo soeak, but have no idea why?!
I'm 51 in a few weeks and begrudge the way my body behaves...
What do you think ladies, is it likely I'm suffering too?
Any suggestions would be fabulous?
Happy evening
Amanda xx
alb90 AMG65
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Hey!! You've described the awful sore feet so well! You're symptoms sound very similar to mine when I first wrote this. I also had restless leg syndrome and it never woke me up, but did my partner, he thought I was fitting the first time it happened! My restless legs didn't last long at all and my feet got better (not 100%) but a lot more manageable! I'm lucky, I got pregnant and all symptoms vanished and 2 years on I'm still very lucky. I only have flare ups if I'm poorly. Hamg on in there, it'll get better xxx
Guest alb90
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Hi I really feel for you my daughter has had fibro since 14 she 24 nw after many different meds tests trial an error she also suffered fm migraines.... found wht works for her she uses Trepiline 25mg at night An Lyrica 75mg in morning that lyrica really help her cope wth the body pain burning sensations she also used Cilift 20mg for year an all migraines stopped.....still has bad days but coping..... its a terrible thing to have cause it causes so many aches pains exhaustion an people just don't understand.....
kevin_73024 alb90
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Hi, I just read your post. So sorry to hear your struggling with Fibromyalgia. I was diagnosed last year with it. The year before I was diagnosed with RA and OA also Osteoporosis of my spine. I have more problems with the Fibromyalgia than any of the others.
It's very difficult to find a balanced way of dealing with Fibromyalgia. At first I wasn't sure which was giving me the pain the Fibromyalgia or the RA/OA ?
Some days are OK some are pretty awful.
I suffer badly with my legs and feet. Some days I can't even walk because the muscles in my legs are so painful and tight. I can just about make it up my stairs. By the time I reach the 9th stair my muscles are burning with pain and I have to pull my self up the last few steps.
Lately my feet have become so sore. I bought some school inner soles the gel ones. They do help but the longer your on your feet will make the pain worse anyway.
I find soaking my feet in radox bath salts in a foot spa really helps and I've also tried reflexology.
Unfortunately there aren't many options open to Fibromyalgia sufferes. However you may want to enquire at your GP's practice about Hydrotherapy. This really helps all your muscles and joints. I have this organised by my GP through the physiotherapy department at my local Hospital.
Maybe you should look into it as it certainly helps even it is only briefly.
I think the drug you are referring to maybe Amitriptyline.
Good luck hope you find something that helps you soon.
KS
Mariboo1966 alb90
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I have it also and if you're taking meds and it starts with an a I think it's Amitriptilline I take those! Hope you feel better
sally62433 alb90
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lorraine15646 alb90
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Dot1216 lorraine15646
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Try Vitamin Worlds turmeric capsules and take it with a fat and black pepper. Try something like fried eggs. Also, change your diet to non gmo's. I buy my food at trader joes because all their food is non GMO.
yvette49537 alb90
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You are probably taking Amitriptyline. I can't offer you a solution but i am experiencing awful foot and ankle pain and finding walking and standing very difficult.
jennifer_32995 alb90
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I was diagnosed two years ago with fibromyalgia after being diagnosed with degenerative joint disease a few years before that and honestly I haven't found anything to help me and summer months are the worst .right now I am struggling with stiff joints and burning in my upper back. I do howerec find some relief when possible by just swimming when it is cool outside . Good luck.
Dot1216 alb90
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It might be a little too late but buy Shoes For Crews shoes and you'll see a huge difference in your feet.
gleds84 alb90
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hi hun dont think u ever get used to it im 33 had it ten years u name it im on it yeah its bad but we can still live in a way theres worse people i suppose and we have to think ov that but yeah it gets u down it does but having someone to listen is a good medicine in its own way 😃