NIX

disnt mean to call my posting by my name just me (or M.E) not concentrating :roll:

Sorry

Hi there nix

Sorry you are having such a rotten time of it.

Is your pain all over? Or just in your joints?

Quite a few of us suffer from fibromyalgia as well as ME and it is mainly our neck, shoulders and arms that suffer. The pain is a burning, heavy pain - as if you are carrying a bag of hot coals on your shoulders :cry:

Mine tends to get particularly bad in the evenings - I suppose when I am tired.

My specialist prescribed Dosulepin (started on a small dose and gradually increased it) and it does take the edge off the pain as well as helping me sleep at night:zzz:- I take it in the evening.

I have recently been on a ME self management course and the drug Baclofen was recommended for pain associated with ME - it's really just a case of trial and error.

I, too, have been considering acupuncture - I also find that massage helps and is very soothing.

I do hope that you soon find something that eases it.

Take care

Katie :hug:

Hi Nix

I find reflexology very theraputic.

Since I have been taking Prozac, which is an antidepressant, my muscle pains have improved. Amytriptyline, also another antidepressant is also supposed to be helpful and aids sleep

Hope you are a bit better soon :D

Dale xxx

Thanks for advice will ask doc about baclofen. I have tried prozac and they dont suit me i am taking citalopram at minute but dont think they are making any difference, I am also very sensitive to amitryptaline apparently just couldnt seem to function when i took them so they didnt help either. Feel a bit like a guinie pig at minute trying out all these pills. The pain that doc thinks is fibro is exactly how you describe it Katie all in my neck and shoulders but i also get it between my shoulder blades and in my elbows its like toothache.

Take care everyone and thanks again

Lv Nix

Hi Nix

Well I just wanted to let you know that I am currently taking Citalopram which I have found to be of great us helping me cope with my ME. I found it took a couple of weeks to take an effect but havent looked back since. As for the pain you are experiencing I would describe it like toothache too. :shock: Its comes and goes and is often in differnt strengths of pain.

At the min I am struggling to get to sleep cos I just cant get comfy in bed on a night. THEN... to make matter worse I have put on a lot of weight and sadly for my it hits me chest area first! :oops: So when I wake in a morning its almost like I have been carrying 2 sacks of potatoes on my chest and my back aches terribly! :weird:

Donnax

Don't complain Donna, mine goes straight to my a**e and stays there but if I ever lose any it just comes off my boobs. Life ain't fair

Yes, this excess weight thing is an absolute pain - it's miserable enough having ME - but to balloon out as well in all sorts of places we would rather not, is just NOT FAIR :evil.

I'm sitting here typing this with my shorts unzipped 'cos they are uncomfortably tight ..... and by this time of day my IBS has bloated me to twice the size which doesn't exactly help. Just hope I remember to zip the darn things up if the doorbell rings:shock: AND - I can barely see to type over my ever-increasing boobs in the first place - eat your heart out, Jordan

We were discussing ways in which we could exercise safely in my ME group meeting last week. One of the guys (who used to be a weight-lifter) had actually been advised by his occupational therapist to buy a Wii Board (foreign language to me :roll: sounds like something that might be placed under an incontinent resident at the Royal ME Residential Home!).

Anyway, he has found it really good and is building up his strength (and muscles) very gently and gradually. I'm sure Teedie mentioned that she had used her daughter's not long ago.

They are not cheap though - but I would give anything to get my toned body back once again.:wah:

Come off it Kate, I have a photo of you and you are seriously mis -representing yourself here.

BTW you make me sick with your figure at your age :evil: What happened to your middle age spread.? :roll:

Anyway a wii board is what I am going to need next Thursday when I have to go for an ultrasound scan. Apparently I have to drink 1.5 pints of water an hour before I go so my bladder is full. Fancy making people do this when they are having bladder and continence problems as it is. :shock:

I must add some Tena Lady to next week's shopping order. :roll:

Hang on ..... I fear this forum is in danger of going rapidly downhill once again :roll:

I have actually put on about half a stone for some reason since that pic. was take Alicia. I suppose it's all relative, but I really do feel huge and uncomfortable:erm:

I'm trying to cut out wheat at the moment as I have a definite intolerance (won't go into details of what it does to me:lol: :run: ) but I so love bread and pasta, I'm finding it really hard!!

And if anyone pipes up (as they did last time :evil: ) that they have actually lost weight since having ME ......... don't forget who is going to be Matron of this home we are devising (plans are being drawn up right now) .... so it might be worth keeping on the right side of me! :wink:

Sorry Kate, and I, for one, know exactly what wheat does because it does it to me. Pffffttt pfffftttt. :oops:

I will try harder to restore decorum to the forum. :angel:

I haven't used the Wii board but i quite fancy it, it was the bowling i tried on the Wii and never again as i ached from head to toe for days I was worried the Wii board would have the same effect. Yes Katie it is expensive - about £70 i believe :shock:

Re the weight loss - i lost weight at the beginning but due to loss of appetite :roll: however, i'm starting to put it on again so just watching what i am eating now as not able to exercise :evil:

Teedie

xx

Don't think I'll bother with a Wii thingy (what a daft name :roll: ) - as you say Teedie, we ache enough as it is. (Pleased to hear you are starting to put on weight nicely, too )

Went for a walk this evening as the weather was so gorgeous, but my legs were leaden, so didn't get far ........ :sadface: So it's back to the telly.

Note to Alicia ....... do you think Gail in Corrie has had a face lift. She's been away for ages and suddenly looks VERY well?? :?

I bet Gail has spent a week or two at the Royal ME Hotle! :lol:

Donnax

I don't know, I'll have to pay more closer attention tonight. she might I suppose, she has been in milan for quite a long time.

She'll still look a cross between a vacuum cleaner and ET though!!!