NLP - Neuro-linguistic programming

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Hi everyone,

I have just had a one hour session at home with my CFS/ME specialist therapist, whereby she skyped a lady who had M.E. for 46 years and apparently made a full recovery, and has just come back from China climbing mountains.  How did she do it I hear you ask?  Well apparently she went on NLP and over a course of time, and using the tools given to her, the body healed itself. 

I must admit it was interesting to listen to her.  She told me she had M.E. since the age of 13 and had it for 46 years at all sorts of levels ranging from mild to very severe (bedridden).  She now feels totally engergised and living life to the full.  She believes when people say there is no cure, this means no medication or magic pill to cure you.  She is confident that the M.E. has gone for good and she is not in a stage of remission.  My therapist tells me she is trying to get a course local to my area and thinks it would be good for me to go.

Has anyone heard of this programming, and know of other people who have allegedly been cured.  What do you all think about M.E. can be cured?  Would love to hear from you all with your thoughts and opinions.

Thanks

Tx

1 like, 92 replies

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  • Posted

    Well I am well on the road to recovery, I had a confirmed diagnosis from one of the UK specialists in CFS.  I rode a mega 30 miles on my bicycle at the weekend. The key to my success has been pacing, giving up work and being in total control of my energy levels, which means a lot of saying NO. I suppose you could say it is a form of NLP.
    • Posted

      thank you, i feel there is hope for me after all, third remission attempt coming up... sometime...
    • Posted

      Yes, I know the feeling.  I was due to go to G.P. this morning at local surgery.  I got up felt relatively well.  Got ready, 40 mins before appointment l felt fatigued, had major dizzy spell and basically felt very ill.  The G.P. telephoned me and offered to come out, (which was very good of her), yet again all down to this very debilitating condition.

      Tx

    • Posted

      Yes that sounds very similar to what I was told yesterday.  I think the hardest thing for me will be saying No especially to family.

      Tx

  • Posted

    hi tina. good for she. that sounds a case of healing the body tru the power of the mind. that's possible, but takes an enormous amount of persistent effort/energy. some ppl respond well to such approaches. others don't. i always get a sinking feeling when i hear such reports, as i feel i have FAILED spectacularly, although i have done loads of stuff to get better. ???? i also, feel there are many routes to ME/CFS and many routes out of it.

    yes, i have heard of/done NLP. aspects of it r used in many self-help/personal/professional development programs. even CBT & the LP course etc. use aspects/approaches of NLP. my ex GP uses the 'quick rapport establishing' NLP technique. i'm not uncomfortable with this use of it as it doesn't feel 'authentic' to me. some of the techniques are good at 'shifting' state (i.e. mind state) short term. most of us require a sustained shift. personally i'd say NLP could go in the 'marmalade' category - u either like it or u don't? some ppl swear by it. others hate it.

    tina, do u have a therpaist come to u paid for by the NHS? wouldn't mind one of them myself. how does one go about getting one??

    Caitlin

    • Posted

      Oh heck yes Caitlin, I've heard about programmes making people feel like failures if it doesn't work; the Gupta programme for instance.

      This is an all over illness, and most definitely physical in the strongest possible ways. I believe that placebos can work but not if your immune system is totally screwed, your mitrochondria can't take in energy from food, your thyroid and whole endocrine system is on a different planet and you know it! cheesygrin

    • Posted

      I just sent you a reply and it's being moderated! eek In case they don't approve it I basically said that programmes can work as a placebo but our immune systems, endocrine systems, hormonal systems are all out of balance.

      If our bodies are pretty good and the mind needs persuading of that then programmes sometimes work, but ultimately the physical body needs the work put in first. It depends how extreme our ME is.

    • Posted

      Hi Caitlin, thanks for this.  Well yes I think is the answer to your question about the therapist.  Sorry to sound vague.  Briefly if I can explain.  I was diagnosed in 2008 by a specialist and returned 6 months later for check up and told not to come back unless my mobility was affected.  Major relapse in 2013, found out that things had changed and that there is a clinic in town.  A specialist from this clinic came out and told me I had gone into next stage of illness.  This clinic has specialist therapist and I had 6 week of cbt.  Never heard anything after that until I became quite ill again.  I got in touch with them again, (they had moved about 28 miles away into city), which was no good for me, so the therapist came out yesterday, told me all about NLP and is keeping in touch and hope to do a programme later on in year in my own town.  Meanwhile, she will home visit next month or skype.   I think you probably need to make enquiries in the area you live whether there are such clinics.  I have found alot of people don't know about them.

      All the best

      Tx

    • Posted

      I had some NLP by a friend who specialises in it and wrote a book about it. He's brilliant and if your body is well enough it will help. Is your body well enough or do you need to work on that with diet and herbs first?
    • Posted

      I think I need to work on it with more than that, more like a stint under the knife, quite a few lifts and tucks and nothing short of a miraclelol  Seriously, I do try to eat healthy, exercise never been a big thing with me, but always been active working, family life etc. x
    • Posted

      thanks tina. that sounds wonderful. is it part of the NHS ME/CFS run clinics - one of the ones who run 8 week courses on how to manage the condition. was the 'specialist' an Immunologist Consultant in the ME/CFS? and will the 'therapist' provide NLP on the NHS? apologies for all the questions but i'm having problems getting any help apart from the management course that i did some yrs ago.

      with thanks

      Caitlin

    • Posted

      It is being run by one of the NHS ME/CFS clinics.  I vaguely remember the thereapist saying something about getting funding to run it here in my town, and it had been running in the City.  I have been told it is a course, not sure if have to pay for it, if so then I won't be going.  Not seeing the therapist until 1st week in July and will know more then.  The programme is due to start later in the year.  I will email her and ask her if it is free and how long the programme lasts.  The therapist that comes to me is a specialist therapist in CFS/ME but I am told that the team of therapists in the ME clinics are made up of speech therapists and occupational therapists.

      I will keep you posted

      Tx

    • Posted

      thanks tina. i look forward to the details. i guess, facilities vary from area to area depending on funding availibility.

      Caitlin

    • Posted

      Lol tina! lol I think I need to either become a shape shifter or kidnap someone else's body and claim squatters rights!
  • Posted

    Interesting!  It begs the question, if NLP is all it takes and full recovery is possible, why isn't that what the NHS is funding and telling us?  Why have we all been faffing about for so long?? I think British Gas employees have been trained in NLP as I had a strange and very over friendly conversation recently.  He used all my own words and reflected everything back, it was weird like talking to a roblt.  I felt I was covered in slime and in need of a shower afterwards, YUK!! As Caitlin says,, not for everyone.
    • Posted

      Yes, I do have reservations.  This woman who the therapist had arranged for me to speak to over skype, was telling me how she had recently climbed mountains and been to China and was living life to the full after 46 years basically housebound and bedridden.  It is very questionable I think.  Yet, again I follow the format, that if you refuse then they will always come back with the answer  "well we offered you this and that, do you want to get well?"  I will keep an open mind but I have heard varying comments.

      Tx

    • Posted

      Did this therapist tell you what her qualifications were or if she was a member of HCPC (the health professions council for allied health professions) or BACP (for counsellors & Psychotherapists).  That type to therapy seems to blame the person with CFS for having the condition ie if you think better thoughts you will get better.  It's no different to some religions that tell you God will cure you if you have enough faith, therefore if you don't get cured it's your own fault. It seems unethical to me. Also, in therapy the emphasis is on INDIVIDUAL goals and treatment, not here's how high, get jumping.  It seems a bit counter productive and it's not a working partnership if  you feel 'obliged' or manipulated in anyway.  Did the lady in the video give her name? Could she be googled? 
    • Posted

      indeed tired -physio. i have to agree with ur comments re 'blaming the patient' when the 'medicine' (therpay/therapist/modality approach) doesn't work. i think this is the worst possible attitude to adopt with ppl with ME/CFS coz, if anything, we try too hard to get better and possibly make ourselves worse in the process. i can't count the no. of times, i've been asked why i choose to have this illness. or it's been intimated, that it was my unconscious choice to have it. or other times the reason proffered when i didn't respond to this or that modality (LP being one) is coz i was too highly invested in the secondary gain from the illness. ppl rarely look at our circumstances before & after the overnight illness ( the full life before, the empty life afterwards) & think, that anyone in their right mind would either, choose to have this condition, or reap any gains from it. think we can beat ourselves up enough without having to deal with the shaming from others or their projections on to us.
    • Posted

      i agree with everything you have said.  I never understood how a brief illness (including hospitalisation) was supposed to have changed my thinking!!!  I'm pretty sure that my thoughts on physiology and rehabilitation were the same pre and post illness.  The contents of all the text books on my bookshelf didn't change spontaneously.  I have learnt from more recent research that CFS/ME requires a very different approach.  Also, when I studies virology at university, I must have missed the lecture that explained how viruses where killed off by positive thoughts...
    • Posted

      loved that last sentence, had me in stitches................perhaps ur positive thoughts are not TOXIC enough..........................see it IS ur fault after all???
    • Posted

      Urgh shudder! It sounds like the gas employee was so trained with a script and guarded that he forgot his own personality!
    • Posted

      Hi only given her first name, and it was skype so live, apparently it is a new approach they are looking at in my area Tx
    • Posted

      Hmmm. . . positive thoughts don't work on viruses?  LOL.  I had a therapist tell me the same thing.  That I didn't want to get better because I didn't think good thoughts about being sick.  If I were a more optimistic person, I would be healed.  I told him that he kept having allergies because he didn't have positive thoughts.  Well, that pretty much killed our relationship, and I no longer see him.  Oh, well.
    • Posted

      Ravenwood, u have me stitches with ur response to the therapist. wish i had the courage to respond similarly to all those Mind Police that insist on positive thoughts being the 'cure all' for everything fron cancer to ME/CFS/FM etc.

      as i told tired -physio, tell the next one that ur positve thoughts aren't TOXIC enough to kill viruses..................................................obviously?????

      take care

      Caitlin

    • Posted

      It makes me laugh when people say they have a virus but they are fighting it.  How does the virus know?  Shame you couldn't have asked him which conditions are cured by positive thinking (cancer, heart disease, COPD, diabetes, asthma...)  Also, could we save the NHS by getting all the old dears to heal their own arthritis and broken hips?  Perhaps just put a pillow under their head, a blanket over them, leave them where they fell and tell them to think positive thoughts for 6 weeks.

      Note to self: must think of new job, think I'm redundant!

      By the way, I looked at the hip replacement forum and now get emails about every discussion. does anyone know how to stop it?

    • Posted

      Perhaps we could make friends with viruses, make them laugh and trust us, and then suggest other good holiday venues for them, such as overly rich politicians and bankers? cheesygrin
    • Posted

      How to stop too many emails. At the top of threads there's a button to unfollow discussions physio. 
    • Posted

      Creased up Caitlin, Someone's bound to jump on the bandwagon with the idea of toxic positive thoughts! I'm thinking 'Bugger off you little creeps and I'll help you to pack your bags; it's been delightful hosting you but I feel a cheerful song coming on and I have to spring clean!' 
    • Posted

      so what have politicians and viruses in common............................................they both pick on & live off vulnerable individuals ????
    • Posted

      And won't take no for an answer when when we try to kick them out!
    • Posted

      Like stalkers and rapists. There's only one way to deal with them, Train your mind! lol
    • Posted

      i love that idea!  perhaps we can use our positive thoughts to direct them. 
    • Posted

      They both use the host cell to manufacture their product and then  destroy the cell when the product is finished!!
    • Posted

      We are not the product, I would never be so rude!!!  the cell/workers do the hard work, instructed/driven by the virus/politicians  to produce the end product ie more virus or something manufactured.  When the new viruses   burst open the cell to spread (lytic cycle) they kill the cell and it's marchinery in the process, the same way a life of hard work (how many times have you heard 'hard working families' during the election campaign?) finishes off many people.  There is a reason why hard labour is a punishment, is usually means less than 5 years to live (Russia & China, Incidentally, if we lived there, CBT would probably be called 're-education')
    • Posted

      We're the products to viruses. We were being metaphorical and scientific weren't we. Unless you've gone into a really strange place where you find that rude rather than flippin terrifying?

      Yes nice try! cheesygrin

    • Posted

      A comment like that could get you arrested. Saying it's sorted means you're the Mafia or a wayward scientist, or a scouser! razz
    • Posted

      Why don't we just admit that a virus for prime minister would be better than what we've got! cheesygrin
    • Posted

      No we are not the products.  We are just being used and abused by them in order for them to reproduce!  But I think you have a valid point, do we humans just think we are superior or are we part of a scary world where we are going to be wiped out or used a slaves for a new terrifying super being.  and clearly bigger is not necessary better or more powerful...

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