NO LYMES DISEASE FROM TICS IN UK
Posted , 6 users are following.
this is what I was told by my g.p. this morning. I now feel totally at a loss what to do now. He saw me at my worst when he was called in to see me at home early 2013 and I did tell him that there are parts of UK where you can catch Lymes from tics, most of the areas we regularly used.
He said that there are people in USA who have Lymes and Rheumatoid arthritis together - what a load of bloody s***.
He is a lovely g.p, and I was with him for over 1/2 hr but came out feeling very low.
The only time they will find out if I have Lymes or not is if I actually die and they do an autopsy - but Im not ready for that yet.
so if anybody can point me to a LLMD in Hull/East Riding area I would be more than greatful.
0 likes, 20 replies
PaineFury Julie1950
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Julie1950 PaineFury
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I remembered that also in the beginning I had a deep red line about 12" as if someone had drawn on me going down my arm, he said 'ah yes you must have had sepsis', and he mentioned phlebitis and my veins were being attacked by something, but in the end I thought I was going round in circles with him.
I am going to look into a private test being done. Did you yourself have problems like this? I appreciate any help.
david59662 Julie1950
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Julie1950 david59662
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thanks David, the other thing he did say was that because the test was negative he is happy that I cant have Lymes, I thought that is stupid because even the manufacturer of the test says its not that reliable. Today I feel totally wiped out but I have talked to my family and they all agree like you say go it alone. I will look into it. Whatever the result whether I have or I havnt will be good to know. My worst fear is that the medication I am on for rheumatoid arthritis (if I actually have that) is doing me more harm by keeping my immune system down. I have noticed the last couple of nights that when it is dark, like when Im in bed my hands feel fine, not swollen or painful, but my right middle finger is really bending during the day, cant be medication as I dont take any after tea time.
You must find it awful being so young and athletic I suppose one thing is I am now retired and can sit all day if I want to, but I dont want to I want to do the things I used to do!!!!!
thanks for info and when Im feeling a bit better I will look into the test.
anna07089 Julie1950
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Julie1950 anna07089
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anna07089 Julie1950
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Julie1950 anna07089
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anna07089 Julie1950
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david59662 anna07089
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melanie1402 Julie1950
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david59662 melanie1402
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I used County Pathology for my Western Blot. Very reliable service. Any results will be accepted by the NHS.
Julie1950 melanie1402
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I am at clinic next week and I was told last time that they are going to start me on antibiotic therapy which will be minocycline daily. So I have to just wait and see how it goes
I was told that rheumatoid factor could show up if you have an infection. Inflammation (CRP) can be high due to an infection but they wont listen to me about Lyme its like talking to a block of wood so good luck with your doctors. Like David says it is easier to do the private test and more reliable. Keep us informed of what happens
melanie1402 Julie1950
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I will keep u up dated to how I get on
david59662 melanie1402
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