No one can find whats wrong with me. Does someone have any ideas?
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Hello!
Since this June I have been to so many places from my physician’s office to the ER and everywhere in-between. Nobody can find whats wrong with me. I’ve had two neurologists give up on me and one who (after running a bunch of tests) say I have anxious tendencies witch is bull s***. I had every test possible ran on me and they all came back normal. Actually on paper I’m as healthy as can be. Thats the problem, all my test results are perfect so people think there’s nothing wrong. It’s hard to explain what I feel like. My thoughts feel foggy and blocked, I’ve become very forgetful and academically I’m struggling. That is only the mental portion unfortunately. Physically I have muscle cramps, fatigue/drowsy-ness, disorientation, trembling, tingling, and clumsy-ness. I’ve had a spinal tap, loads of blood tests, two EEGs, MRIs, and been evaluated by six different doctors. Every blood test you could think of has been ran on me. Including heavy metals, vitamin b-12, Lymes, lupus, hormones, blood sugar… there are loads more but I can’t remember them all. I’m worried most about the cognitive aspect of my problem. Its very debilitating. Some days are better than others, and some are worse. Today was one of the bad days. I can’t stay focused or have clear thoughts. When I talk I don’t make much sense. I say words that don’t fit into context, have a very hard time finding words, and as a result, can’t keep up a conversation very well. I try my hardest to overcome these problems but I don’t think its a matter of how much effort I put forth. Some days I just can not think straight. I even have problems understanding what people say to me. I understand the words, but the meaning of what’s said just doesn’t get through. Like I said, some days are better than others. The memory isn’t isolated to only short-term or the forming of new memories. I have a hard time remembering things that happened long ago as well as what happened five minutes ago. The things I remember are fragments and very inconsistent. I was stating to think that my problem could be low magnesium or something like that witch was overlooked. From my understanding of a mangesium deficiency. It takes a long time for you to become deficient. This makes sense because this problem didn’t just stat overnight, I’ve actually been having this problem since February. I’ve been blowing off the symptoms as lack of sleep or just being tired but it built up to the point that I realized something was truly wrong. So magnesium might make sense, maybe. I’m just guessing at this point though.
So, what do you think? If you have any ideas what the problem could be please let me know. As I said before, I’ve had my heavy metals, Lymes, hormones, vitamin b-12, lupus, csf (spinal tap), and blood sugar checked. I’ve also had a complete metabolic panel ran, a complete hormonal panel, and complete nutritional panel checked. I think an allergist might be a good idea but I’m not sure. I guess its worth a shot.
Here’s some info about me. I’m 17 years old, male, 5’9’’ and weigh 128LBs. The problem is constant 24/7, never goes away.
Thanks you’re reply in advance.
3 likes, 65 replies
blessedmum spacebar
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I know I keep jumping about from disease to infection and everywhere inbetween but I'm just looking for the cause. Plus It might help to have multiple ideas when I go in for the appointment.
Thanks again, I really do appreciate you're help!
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Keep me posted! M-
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I'm not trying to be snappy at all. I just feel frustrated because both my parents think I'm lazy and thats why I'm failing school and I don't want to get a job. By the end of the day I usualy have a headache and have that derealization crap. I've also had this eye problem that has been ongoing for some time now. Its like my eyes jump back and forth automatically and don't sit still. At night it keeps me up because my eye muscles hurt from moving so much. Also I've see someone else use this analogy before; It feels like my head is full of stuffing. Like there is a preasure or something. Like that fullness feeling when you can't hear out of you're ear properly.
This really could be caused by anxiety? if not and it's lymes disease, will I ever recover from this?
Sorry for the rambleing. :\ just blowing off some steam.
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This morning when I woke up I still had a dull headache. I left my bedroom door shut and a window open when I slept to get fresh air. My symotoms today have been worse then they ever were before! I think it was the fumes from the glue and caulk. All day I had a headache and felt lightheaded. All the symptoms I had before have gotten worse and haven't gotten any better since this morning. When My sister came home she told me that my room had a faint smell like the glue! I couldn't and still cant smell it. My room, being above the basement, must have collected the fumes from the glue. I also slept with my beedroom door shut. Basically my problems are even worse and I think it was worsened by all the chemicals.
It makes me so frustrated! I want to get a job, and licence so I can drive. All my friends have cars and can drive. I feel left behind. It also scared the crap out of me when I was talking to my cousin the other day. I had asked him who this one girl was on facebook and he said she was my cousin. Some of our family isn't close so we don't see each other very much. He told me that we both used to hang out with this girl and play videogames and stuff with her when we were like 12. I don't remember at all. I told him that I didn't remember her and he was shocked. He explained that me and him used to see her all the time. Its just blank, I have no recolection of this time he talks of. I also can't remember the christmass before last year. It's just gone. It happens more oftin now then before. Someone will be talking about someting we did in the passed and I can't remember it. It just seems like I have holes in my memories that are getting worse over time.
I went off topic a bit... but anyways. Can lymes disease make you sensitive to chemicals and if its treated, will my memories come back?
Sorry this one is so long and kinda like all my other posts.
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As for your memory, don't beat yourself up about it. My husband, a very healthy man has an appalling memory. I mean, it's shockingly bad. No joke. Our brains tend to rememeber things better that have a strong emotional connection. Hormones can also wreak havoc with your memory and put you in a fog.That said, my husband or parents often mention things the kids did or said (sometimes big things) and I have NO memory of them whatsoever. Go easy on yourself in this regard. No one can remember everything. And again, anxiety can do all of these things, esp with your memory (it also causes headaches, but I think you are just sensitive to certain smells.) Have you written a list of questions for the doc appt. in January? Make sure that you do! It will help a lot. And you're not driving yet? Are you able to get a license or too afriad to drive? You'll get there! Hang in there...it will get better!
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So, that's what's going down :p
Ps, nothing was said about Lyme. I'll ask at my follow up if that should be a concern. He seemed to have looked thought all my testing and didn't bring it up. I figured if I said something about it, it might come off as anxiety.
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Sounds as if you are off to a worse start than you had hoped? I'm almost surprised though that the doc put you on antibiotics for your asymptomatic strep. It sounds as if you are a "strep carrier." If I remember rightly, about 1 in 10 people are. It's very common and as of no concern unless this person infects other people with it. The bacterium that causes strep lives in many people, but just because it's there, doesn't mean it's going to lead to an infection. Most strep carriers, rarely if ever, actually develop strep. You can look it up, but I don't think it needs to be treated, but obviously talk to your dc about that. I'm not too sure about the rash of course, but hopefully your dermatologist will have an idea?
Sorry, but I wish I could be more helpful. Don't be afraid to ask about the Lyme results! The doc is there to ehlp you and answer your questions. I guarantee they get a million questions every day from different people. Better to ask and get an answer than wonder what the answer would be!
Good luck and as always, hang in there!
M-
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Dan77 spacebar
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Thanks for the reply
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