No tricolor. Just cold to red
Posted , 6 users are following.
My Dr claims it's raynauds. My hands, feet, ears, and one time, knees will turn red and warm. Happens once a day or so... Just started out of the blue two months ago. Never turns white or blue
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1 like, 18 replies
liayn58 Lxsmi
Posted
For me, my upper extremities turn red initially when in the cold and are white to the touch. My lower body goes red and blue immediately. My right leg is much more affected and is a constant red, blue, and bruised color.
I’m guessing you live somewhere cold. In the winter everything is much, much worse.
For reference I have secondary and have had it all my life.
Lxsmi liayn58
Posted
Thanks for the reply. Do your hands and feet flush? Get warmer than other non-red areas of skin? My knuckles and feet are literally warmer than other areas of skin. Totally freaks my wife out. She can't believe my toes are a million degrees and my heel is ice... Sound familiar at all?
scramble Lxsmi
Posted
Hi, it sounds a lot like erythromelagia; like Raynauds, it affects the small vasculature but causes redness and intense heat in the affected area (I have it in my hands, but it has lessened as the effects of Raynaud's have progressed).
https://www.nhs.uk/conditions/erythromelalgia/
Hope this helps.
Lxsmi scramble
Posted
So does it go away eventually? I've seen erethmelgalia online but it always mentions pain. Mine doesn't really hurt. Just warm.
scramble Lxsmi
Posted
Mine didn't hurt to begin with, like you, just hot and red but as time went on, a sort of toothache pain developed when it was happening.It hasn't gone away but I then went on to develop Raynaud's phenomenon and as this worsened, cold fingers, the erythromelagia now only happens in the evening when typing and CH is on. It doesn't seem to go, if you look at the literature but GPs often haven't heard of it and need a bit of a prod for a diagnosis.
Lxsmi scramble
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Lxsmi scramble
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scramble Lxsmi
Posted
I don't take any painkillers for it, the advice as far as I can see is to elevate the affected parts. It began in 2012 in the summer and was confined to warm weather to begin with but now it can happen with hoovering etc, CH in the winter. The same blood vessels are now being affected by both erythromelagia (an increase in their girth with a rush of blood) and Raynaud's which causes constriction to the vessels and poor blood supply. Do your fingers turn colour if you have been out in the cold, the two often go together?
Lxsmi scramble
Posted
Two years ago I had one or two raynauds attacks of fingers where they went white, then blue, then red from being out in the cold. But that was it ... Now I don't get 3 colors. Just ice cold to warm and red. Only last 15-30 mins and it never happens early in the day (7am to 1:00)
scramble Lxsmi
Posted
CH is central heating, the erythromelagia is brought on by warm temperatures and Raynaud's brought on by cold temperatures.
Just make your doctor aware that you seem to have the two conditions running together.
Froozen Lxsmi
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Froozen Lxsmi
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Lxsmi Froozen
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Geez. And you would think there would be a treatment for this... That's what blows my mind...Prayers...
Froozen Lxsmi
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Lxsmi Froozen
Posted
Have you talked to a doctor about the black stage? Maybe a "big city" hospital would have more resources...
Lxsmi
Posted
I'm on calcium channel blockers for high blood pressure. Which is what I hear is one of the things Drs prescribe to help expand the blood vessels. Have u considered this??