Nobody knows what's wrong !
Posted , 10 users are following.
I have been feeling unwell for a year and half now . I have hot sweats ,hair loss , dizziness , heart fluttering and palpitations , Sleeping problems,nausea, Fatigue ,burning tongue and inside ears and my skin feels sun burnt at the back of my neck and back . Symptoms are worse in the morning.
I have been tested for thyroid ,hormones ,celiac you name it I've had the test . I have lowprogesterone, low ferritin(now corrected) and endometriosis but my endocrinologist told me this wouldn't cause these problems. The only tests l haven't had are vitamin deficiencies(apart from basics like iron and b12 )and allergies .The nhs haven't offered me these tests . I am sick and tired of feeling like this and l do t know where to turn . I am only 32 and feel like I don't enjoy life anymore because l never feel well ! Does anyone have a idea what could be causing these symptoms ? Thanks
0 likes, 27 replies
popcorn
Posted
Are you on any type of contraception ???
B12 defiency don't cause the symtoms you have
When did your progesterone get better and what was prescribed???
Try and help if I can
catgreeneyes
Posted
I am on yasmin contraceptive pill . My low progesterone has never been corrected .Thanks
karen04126
Posted
Just wondered if you have been tested for Lupus. I had very similar symptoms and was finally diagnosed with SLE (Lupus). This time last year I barely got off the couch with exhaustion and aches all over. A lot of your symptoms are the same as mine. Just a thought.
Good Luck!
popcorn
Posted
Have they done ultrasounds smears and infection swabs if not these should be done to rule out other problems
Sorry I can't help you much but medical help you need even if its just making sure nothing else wrong and also get your hormones sorted as by the look of it to me this is the major factor causing the symtoms
catgreeneyes
Posted
catgreeneyes
Posted
popcorn
Posted
I be here for you but can only advice what I would do and have felt lost and dispared like your feeling right now
Please get an appointment ASAP no one should go through what you are
popcorn
Posted
Don't be put aside by the medical teams like I said keep on at your gp that's what their there for you want answers not get on with it like they have seem to have done sorry for being so blunt but I do know what your going through been there to many times in my case took three years to get a diagnosis not pleasant outcome but now I know whats wrong can deal with it
It's the unknown that I hate makes things worse
karen04126
Posted
Just go and ask your gp, there are so many varied symptoms and no one is the same.
Good luck sweetie.
pauline179
Posted
So it does appear to be linked with your hormones.It took 7 years for me to be treated correctly as I just accepted what I was told.Don't give up, challenge the answers and if the tests don't work keep going back and asking for different ones. Until you to that you won't get your life back by feeling better and you deserve that. Best of luck.
catgreeneyes
Posted
He has never treated my low progesterone so l have decided to try natural progesterone cream to see if it helps . I wake up in the morning with heart palpitations, sweats and burning sensations in my tongue, and back of neck ,head and shoulders (it feels like sun burn but l haven't been in the sun )very strange .
I have seen a tricologist about my hair loss and she told me my hair is falling out due to my hair not getting the nutrients l put into my body (I eat loads of protein , drink alot of water and take loads of vitamins and iron ). My scalp is very tight .
I feel very lethargic alot of the time and l get nausea .I feel like when l go to the gp he doesn't really know what to do next so l research all l can and join forums to try to find answers . I have had Thyroid tests , adrenal tests , hormonal tests , basic vitamin deficiency tests and l am now waiting on autoimmune tests . Can anyone think of any other tests l should suggest to the dr?
catgreeneyes
Posted
popcorn
Posted
By the sounds of it all the test you had done are clear which is positive step you need to take a step back trying to treat yourself without knowing whats wrong sometimes not a good thing I will help you like a said but first you need to tell me what happen first and why you started to ask for medical treatment
What medication you were given etc what medication you on now ? What symtoms have you now ?
You body is stressed without you knowing it as not knowing whats wrong always a factor and everyone goes through it unfortunate your gp can't help without the test to be positive its a long journey but stepping back and looking at what you know may help figure out the problem your sytoms could be a range of problems ie medication food etc
Kaz
When your nxt appointment ?
catgreeneyes
Posted
popcorn
Posted
Ok what systems did you have with endometriosis presume it was something to do with period or ovulation
Why did you have laparoscopy as this is normally preformed on bowels ?
Tramadol how long you been taking and what dose and why do you still take?
What contraceptive do you take ??
I try and help and maybe by this afternoon we find a way forward for you
Also give me a list of test you had done and when ?
Kaz xxx