Nodules

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I was diagnosed with small patch of Barrett’s 7 years ago. Been taking Prilosec ever since. Just had another endoscopy yesterday. Doc told my spouse (while I was still under sedation) that he found two nodules but not concerned about these and to get another endo in 3 years. Other than that appeared good. As almost always here in US biopsies were taken and waiting results. I know doc not concerned about nodules but I can’t stop worrying about results!

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  • Posted

    I can understand worrying about it. I've been doing nothing but worrying since my diagnosis. It seems like I spend most of my time worrying. Why do they wait so long for the third endoscopy? They have the first one and then the second after a year and then another in 3-5 years? That seems like too long.

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    • Posted

      As you can tell, I’m a worrier too! All I think is nodules, nodules, nodules even though doc said he wasn’t concerned. And as it’s been explained to me they wait three years if all looks good at last test since this is slow to progress if it progresses at all. Nonetheless I am sick with worry about results!
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  • Posted

    After I was diagnosed with High dysplasia Barretts, I had Scopes every three months until I received 3 clean reports.  Now it's every 6 months, (Been 18 months with this format.)  I will have to have every year after that.  If your nodules are not pre-cancerous, the protocol is different. Atleast where I am in Florida.

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    • Posted

      My oh my! That’s a lot of scopes! So now how long to your next one?  6 months or 18?  All I know from my doc here in Texas is from my past situation - a scope one year from first diagnosis without dysphasia and then 5 years after all looked good. Due to insurance I went after 6 years for my latest.
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  • Posted

    I ve just had a repeat endoscopy as they found low grade dysplasia. This time they found a nodule and took lots of biopsies. I m worried sick as that word sounds like it’s nasty. To read that your doctors have seen nodules but are not concerned puts my mind at ease a bit. Guess we just have to wait for results. It’s 6 weeks for me. Fingers crossed.
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    • Posted

      It’s a challenge not to worry. Though my doc wasn’t concerned but I still fear! Apparently nodes can be benign, pre-c or c! I’m hoping the doc knows by sight what’s good vs not so good! 6 weeks is a long wait. It’s 1 week or less with my doc. Oh, don’t read Internet articles. It can increase anxiety! Let us know results.
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    • Posted

      Try not to worry too much. If the results show cancer, you probably will be told before the 6 week post visit. I had cysts in my esophagus for 30 years before one showed cancer. I received a call within 2 days on that one.
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    • Posted

      Have you been on a PPI for 30 years? They say the only way to stop progression is to be on one but they are proven to be so bad for you. I am on one now and it worries me. What did they do for the cancer? Remove it?
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    • Posted

      I had been on a PPI for about 20 years when the 20 year studies started showing evidence of osteoporosis in users. I also knew that I was never able to give blood when I was taking them because my blood count was always just a little too low. At that point I had surgery - a Nissan's fundoplication - and I no longer needed medication.

      As for the cancer, I will be having my esophagus removed on Feb. 6. I've now had several scopes and scans and the doctors don't believe that the cancer has spread. Assuming that proves to be true after the surgery and biopsies done then, I won't have to have chemo or radiation.

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    • Posted

      Good luck for your operation, I hope it all goes really well and you won’t need further treatment. I was thinking that a fundo would make sure that further problems wouldn’t develop but this doesn’t seem to be the casesad
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    • Posted

      Do they replace it or what happens? My stomach was burning all night from eating one piece of pizza with tomato sauce that can't be normal right,? I also ate garlic bread and a can of carrots for one meal that probably is a mistake I should never repeat. Can you take antacids along with PPIs?

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