Not sure what's going on. Please help

Posted , 8 users are following.

Hi guys please help.

I'm a 22 year old woman who has been suffering from joint pain. Two months ago I woke up and couldn't straighten my right knee. It was stiff and swollen and when I tried to walk and buckled . I went to my GP who referred me to a Rheumatology team. Two week later I woke up with a stiff and swollen right index finger. I got a same day appointment where a Doctor told me it seems like arthritis, I was given naproxen and blood tests. These tests where ESR, CRP, full blood count, ANA and ferritin.

The results came back. I was told everything was okay apart from the ESR which was 42 (suppose to be up to 12).

Show a Rhem who took me I have stiffness in my joints. Said it was Early Arthritic disease and said a prescription was sent to myGP which I have to pick up. I was also told that 3 out of 13 factors were positive on the ANA test which shows it's an autoimmune disease. My issues are 3-4 years ago I have the same finger pain my my left middle finger, I went to my GP( who I no longer go to) and he said it wasn't arthritis. I have had my hips lock up but it was normally around my period so I passed it off as lady problems. All the signs are pointing to RA and I feel let down by my original GP for not spotting it sooner As I have read that early treatment is the best course of action. I feel depressed and anxiety about the lack of clarity.

What do you guys think. The only other symptom is fatigue

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  • Posted

    Hi Nashea I went to various docs for about four years with various symptoms from aches and pains to absolute fatigue and stiff joints. They knew it was an auto immune of some sort and got sent to rheumatologists, neurologists (my Daughter has MS and they thought I might have the same) and even a gastroenterologist. Not once did they come up with R A and I began to think I was a hypercondraic! I was finally diagnosed a year ago and it is now classed as chronic. I do wonder if they had sorted it earlier would it have been this bad? I suppose I will never know now.
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    • Posted

      I am not sure Nashea, I have hard lumps on ankles, elbow and wrist but my Rheumy only checks my wrist. I supposed it didn't matter as it was confirmed RA and any damage will not improve so she concentrates on reducing pain and inflammation. I have finally got the meds right now. I take MTX tablets but only 10mg due to liver damage, Cimzia injections each fortnight and predislonone if I get a flare. Hopefully I can minimise any further damage and it's so good to be able to get out of bed without hobbling around like an old lady or get out of a chair and walk without having to wait for my hips to unfold first. 

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  • Posted

    Your serology tests certainly point to RA, although some do not have a positive RA factor, it is still RA.  They will likely have you start on Methyltrexate and probably get the inflammation under control with pregnisone.  Another likely med is sulfasalazine, which is also an anti-inflammatory.  In time if you have additional joints becoming affected, you will be evaluated for biologicals which most people can't afford unless they have a good insurance.  But biologicals are the only meds to truly stop it's progression.  3-4 years is not a long time but everyone's degree of severity is individual.  I had RA for 10 years before being able to go on bilogicals.  

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    • Posted

      Thanks for you help. I know that the medication that was prescribed was sulfasalazine alongside naproxen. I am going to speak to my GP on Wednesday to speak further on the medication .
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    • Posted

      Right now I can't bend my elbows. The left one was a fatty lump around and just above the elbow. My ankles are now affect and so are my shoulders . I will speak to the GP about referring me to another Rheumatologist and about the biologics.

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  • Posted

    Sounds like RA.  What meds did the RA doc prescribe?  Keep a diary of your symptoms so it helps the doctor know what is working for you.  I had to wait 10 years before getting on good medication.  
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