Not yet diagnosed properly

Hi Shabby,

It's nice to hear from you just sorry to hear it's been such a struggle for you still at the moment. Let me reassure you that it's normal to go through all these stages, to have the long period of reaction gland pain, feeling tired, lethargic, just generally not yourself.

It's natural to feel a bit down having been through what you've been through, there's no doubt about that.

Things will continue to get better Shabby, they will, it was the same for me it felt frustratingly slow, almost as it it was only tiny tiny bits of progress and not enough to make a real difference in my life. But there does come a stage where you make a bigger step forward, and sometimes that can be a good few months down the line so don't panic if that doesn't happen right away, because it will happen and you're much closer to it than you think I truly believe.

And most importantly, hold onto hope because there is plenty - this virus tries to rob you of hope and belief that you will get better, but the truth is that you WILL get better and this is the hardest part right now the unknown and fear that you won't - but it does come and it is normal to go through all these stages.

Hoping things settle down soon and do keep in touch and continue to let us know how you are doing - thinking of you.

Craig

 

Hi Shabbychic,

I have been sick abut two weeks longer than you, I am also tired and achy, have been having some better days in the last two weeks.

I think the depressed feeling is very normal ,I was never depressed before this horrible illness, I am taking Craigs advise and resting as much as possible and trying to just distract myself from the down feelings, I had low vitamin D levels and the have increased my D, I think it is helping.

 

Hey Mono / Shabby,

The feelings of depression are most definitely normal, I don't think there is anyone who could go through such a traumatic experience in their body and of not feeling like they can live the life they used to for a period without feeling depressed to some extent.

If you can accept that it's just a low period for your body but that in time it does recover, it definitely helps, although I know it's hard to do. Today might not be the best day but good days of full health will return, even if you can't see or feel them now, know in your heart that they will because it's going to happen!!

To help with depression, I think it's key if you are able to still do the things that you enjoy that don't take so much energy out of you - be that seeing friends, going to cinema, going for short walks, reading, listening to music, etc - it's just the case to think about things a bit more, be sensible and don't overdo it and give yourself time to rest before and after doing things a bit more - but definitely don't stop doing things, because that all helps in recovery too I believe!!

Keep up with the Vitamin D Mono, check max daily limits and take a bit more if you are still below those as it's safe to take it up to maximum daily limits, espeically if it's been low for you.

Hang in there everyone, recovery is happening every day.

Craig

Hi Shabby,

What an awful time you've had, just want you to know I'm thinking about you and understand. Those folk at your work don't know the half of it, they don't understand and they should be standing by you if they are your friends rather than being like that. That also sounds totally out of order about the nurse thing, the last thing you need is that kind of stress when not feeling great.

It's really important just to focus on getting better, put yourself first for a while Shabby, even if it means work things don't get done or assignments or whatever - I know that is much easier said than to do, but it won't be the end of the world if these things don't get done. The key thing to remember deep down is that you will get better, it's extremely hard to cope with when going through it but that time will come when you feel better and it will be a happy and joyful time Shabby, I really truly believe that will happen for you.

I'm the same as you Shabby I very lucky to have a wonderful mum who is understanding and helped me through that and so many other things in life, it's important to have someone close to talk to and who understands. And remember you can message any time here because there are people who understand too!

Thinking of you and reassuring that a full recovery WILL happen for you (patience is hard though I know, so don't panic if it still takes a bit of time because it will happen).

Craig

 

ONCE AGAIN I feel crappy, so much crappy... Right out of no reason I feel fatigued DIZZY and feel like I'd faint the next moment :'( I had to call my patients and cancel the appointments

I'm disappointed.... :😢😢😢😢😢I feel totally hopeless and down

Hi Nikki,

I have been having good days and woke up feeling very low energy, this virus is so unpredictable. I hope that our immune system is getting used to it and will fight it off quickly when it does flare up, hope you are feeling better soon.

Hi Nicky, you have been in my thoughts. I was wondering how you were feeling.

Hopefully you will not experience those awful feelings very much longer!

Please try not to be greatly discouraged. Keeping in mind lots of us are still dealing with such symptoms. Hopefully they will fade away quickly! Maybe your body needs rest? Try to not let your feelings of disappointment cause you feel hopeless.

Even though your body is causing you much distress keep trusting that you will recover!

Rhonda

HI mono, that's so true, thanks for the encouragement 😪 have you had tingling in your body at all???

How long have you been fighting?

RHONDA!!!

It's so good to hear from you!!! how have you been? I remember you had GI issues.

Any better? I HOPE SO FROM DEPTH OF MY HEART!

I think you're right, I probably get exhausted easily I need to chill...unfortunately financial needs aren't of any help at all.

I can't seem to be able to put some weight on! Have lost around 25 pounds!

I've had a few ok weeks, but as you know when those bad days kick in.... 😢😢😢my heart is just so heavy!

Thank you so much! Knowing that I'm not alone helps alot.

Hi Nickyyy,

Yes, I have had tingling sensation, such a strange feeling. I have had this since the end of October.

HI mono!

Really strange and scary... I've been struggling since November 16th... I've a made a great progress tbh but waaaaay far from how I used to be before I got this this nasty virus from my ex.

I've itchy throat, tapped nose since almost 3 months... The back of my tongue is white/yellow, and I occasionally get canker sores since 3 weeks ago, I've got one under my tongue which is not going away...makes me worry.

Nikkkkkiiiii

Nicky, as you know this is month #9 for me. My GI Issues are much better but not totally gone. I could not gain weight or strength eating healthy. Sad but true. I had to add in some pretty much empty calories. Chocolate chip cookies and milk as a snack. I believe 6 cookies has 600 calories. I dipped them in whole milk and drank the milk.

Before I avoided all dairy and sugar.

Not to be vain but when we get to looking

so thin it really makes our self-esteem drop. When we are struggling with symptoms and the weight loss it really hits our emotions adversely!

My weight is back to normal.

I too have dizziness. Muscle aches and burning. Very low energy. unusual pains in different parts of my body. I still give thanks to God for all improvement! I was not even able to sit up for so long!

Prayers for strength and help as you recover!

Rhonda

Wow that's good, really glad that you finally gained your weight!!! Did you resolve your sleep problems?

I guess I'm going to add chocolate and etc too, I'm too damn skinny, everyone that knows for a long time me looks at me in a weird way, you know it feels kind of humiliating 😕

Thank you RHONDA! Sending prayers for you!!!

Hi Nickyyy,

I was recommended raw organic coconut oil to swish around my mouth, it seems to help my throat and it is not as bad as it sounds it melts quickly. I have been having good day the last two weeks, but today is not so good, it just seems to be the way with this illness.

HI mono,

For some odd reason my comments are waiting to be moderated!!!

I've been doing it for 2 months but of no avail unfortunately!

Mine wasn't good neither, I went to my doctor for my symptoms and she indirectly told me that I am I n s a n e! that they've nothing to do with the EBV ( not so disappointed because I know that doctors have no clue on this virus).

I hope you're doing well

Hi Nickyyy,

My doctor was very honest and said that they really don't know much about the virus, that's why the forums are nice, we understand exactly how miserable it is and that it is not in our heads.

 

Hi Nicky,

Sorry I've missed a lot of the messages last couple of days in this thread, it's good to hear from you though and you're definitely right the doctors (especially GPs) don't always get it and in my opinion take it as seriously as they should - but I guess everyone's experiences of doctors is different, some good and some bad.

Still believing you will recover Nicky, you won't have to go through another six months like this one I truly believe that, and just hang in there because you will at some stage or other enter a 'moving' stage where things suddenly move forwards I believe.

Craig

HI mono,

Yes, that's true, this place is the only place where I can talk about my " journey "...

where no one tells me "STILL SICK?!"

HI craig!! Long time!

Thank you, you always send such positive messages!

I believe you're right... It's just so annoying!

Hope you're good too!

Hey Nicky,

It's great to hear from you too and definintely hold onto that hope! There is better times ahead, your body just needs some time to re-set itself and then it will be resilient and handle things again, that was one of my concerns that my resilience to handle doing things a bit more stressful or whatever wouldn't come back, but it did and it will for you too!

It is so annoying you're right, thinking of you still and just take things slowly and a day at a time - that's all you can do with this (and anything in life really).

Craig

HI craig,

Yes indeed, I don't like to moan but it really scares me when I get these tinglings in my body... And I get so anxious!

Looking forward to great days with no weird symptoms.

Thank you craig, I wish you a good weekend!

Hi Nickyyy,

This is one of the things that bothers me too, it is like an internal shakiness combined with anxiety, I try to have a little of a sports drink when this happens, it helps a little even though I dont drink them normally.

Hi Nicky / Mono,

I remember having those tingling sensations and shakiness as well as the rushing fever throughout my body, it is really horrible guys I'm just so sorry you are having to deal with those things and just want you to know that I was the same, anxious that it would never pass and worried why it was happening - but in reassurance that period does pass, I know it seems like it goes on forever but believe me eventually things gradually settle down and those feelings disappear until one day you realise they are actually all gone!

That day will come, but I get it I understand it's hard to appreciate and see it when going through it - it's hard to do but if you can accept your body maybe isn't 100% today but that it will be again and just live a simple and lowly life as your body recovers, being sensible in what you do, etc (but still not stopping from doing things you enjoy also- that's also key to recovery but remember don't overdo things and give plenty of rest before and after things, etc).

Thinking of you today and I still fully believe in a marvellous, full and complete recover for you Nicky and for you Mono - without any doubt I believe God will heal and you WILL get through this and back to full health, even sooner than you think!

Take care and keep in touch

Craig

HI mono,

Yeah exactly, that's how I feel, I just take a B12 lozenge and lay down.

Sometimes I get pale stools... Always stressed for all these weird things.

Hope you're doing well!

Hi Nickyyy,

Very strange symptoms for sure, I have been feeling a little better, but have to be really careful of overdoing it, the shakiness and tiredness seem to be the last symptoms hanging on.

The anxiety feelings are much less, so you have that to look forward to, it is strange how it starts to lift as quickly as it come on.

Are you feeling any better?

Does B12 cause pale stool?

Hi Mono / Nicky,

Vitamins can sometimes cause some things like loosening of stools I believe, especially things like magnesium. Vitamin B complex usually causes this yellow or fluerescent coloured urine, so if you see that when taking B vitamins don't panic that is perfectly normal - it's just excess vitamin B leaving your system, there is nothing to worry about with that.

Craig

HI mono,

Totally!

I wasn't feeling so good in the last 3 days!

Today it was OK, I only have tinglings which makes me anxious, overall it was a better day!

How have you been?

I don't know about B12 tbh, I learnt at the University that there may be some problems with the liver or gallbladder!

Niky

HI craig!!!

Thanks for your response!

I only take B12 lozenges which includes B6 and folate...

Yesterday I had almost white stools and today normal, lol this is so confusing 😂

Thanks, niky

Hi Niky,

I have been ok, had a long day yesterday, so  a little less energy today and a little of the tingling, it does seem to be getting lighter though.

Hoping we are all on the road to recovery.

 

Hi Nicky,

If you take a B complex tablet such as B50 complex or B100 complex it means you are getting high doses of all the key B vitamins per day, would definitely recommend.

Sorry to hear that you are having bother with the stools, certainly worth checking that out with the doctor but hopefully being back to normal today means it is settling down a bit - do see the doc if it persists though.

Craig

HI mono,

I hope so, It was better today so trying to stay positive and strong! Hang in there!

Hang in there too Nicky....thinking of you and still believing in a full and marvellous recovery for you with Jesus's help!!

Craig

Thank you craig! Keeping my fingers crossed!

How are you?