Nothing more doctor can do????

Posted , 9 users are following.

Well think I have been on here once before to say something.  This time I REALLY need help. Had doctors yesterday, she said "nothing more medically that I can do for you". What the F***.   Anyway going to list my meds and see if anyone can recommend anything else for me or is this really it for me. Ok here goes, meds are, Duloxetine, venlafaxine, Pregabalin, naproxen, Gilclazide, omeprazole, propranolol, quetiapine, atrovastatin, diazepam and metformin. So that's what I take about 30 tablets a day. Should mention I have diabetes also type 2. I hope someone out there can give me some advise and HELP ME PLEASE. Last resort! 

Gental hugs to all! 

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  • Posted

    Oh my goodness, I am so sorry.

    Considering that you take way more meds than I ever did and you have diabetes I don't think I can suggest any medications. I also think our bodies tend to start fighting back when there are too many medications.

    The only thing I can suggest is that you get another doctor that won't give up on you. Surely there are additional physical therapies that could have been suggested to ease your pain, your doctors attitude was appalling.

    Perhaps if you say what area you are in, someone on here from the same area can recommend a doctor that isn't running a factory and actually cares about their patients.

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    • Posted

      Thanks for your reply. I will admit I am struggling to understand fibro and why me! My friend also recommend to go see an other doctor who understands fibro and can maybe help. It's only me and my wonderful hubby in the house now.  He does everything for me. I hate having to depend on anyone. He is my rock though.  Have wet room in, have wheel chair, getting chair lift in for stairs. So I can maybe get about the house, without my husband having to help. It would be nice to be able to go up stairs without help.

      gentle hugs xxx

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  • Posted

    I am shocked at how many medications you are taking. You must be getting a load of side effects.I was also told 'there is nothing we can do ' ,by three neurologists. I persevered and finally saw a rheumatologist. I was diagnosed with Fibromyalgia at last.  That was 8 yrs ago.It was a relief to finally get a diagnosis but scary too as this will never get better. I have decided to take no medication  as  a single mother with two young sons, I was offered Lyrica,Gabapentin,Amitripyline etc but have chosen  to juice vegetables and fruit, take gluten out of my diet and eat a healthy diet ,have hot baths,wear soft clothes etc. I am recovering right now from a shoulder operation  having had a frozen shoulder for 4 years. All we can do as patients is persevere. I would definitely change doctors ASAP!!
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    • Posted

      I also seen a rheumatologist, about 2 - 2 and half years ago and go the diagnoses of fibro.  I feel that I am in the early stages of this disorder. I also understand that, that's it I have it for life, but what life? The way I am I don't feel I have a life. If this is only going to get worse, then why can't a doctor give me adequate pain meds to help me. Just WHY?

      Gental hugs xxx

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    • Posted

      It doesn't have to get worse, Nicola.  I've had fibromyalgia for about ten years and I have to say that I have felt worsein the past than I do right now.  You may be going through a really bad flare up, and yes, you do need a better doctor.

      The first thing I would suggest you do is check the side effects of the medications that you take and see if any of them cause muscle aches and pains.  I stopped taking statins for cholesterol because of leg pains before my doctor realized I had fibromyalgia.  She thought my pains were caused by the Lipitor I was taking.  I went for years with uncontrollably high cholesterol because I was misdiagnosed, but you see what I mean.  I also know that metformin can cause muscle pain.  Not that you should stop taking it, but maybe you feel worse than you should be because of your meds.

      I currently don't take any of the approved fibromyalgia meds because they make me too sleepy, and I can't function.  I got a lot of relief with acupuncture when I lived in the States, and my doctors there advised daily vitamin B6 and 12, and vitamin D 2000mg, and magnesium when I'm having a flare.

      Here in Poland, I've been given a German anti inflammatory called Olfen Uno 500mg and it works wonders for my pain.

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  • Posted

    Hi Nicola , do you live near Bath as there is The Mineral Hopital there. I went on  a coping skills course for a month. Which rheumatologist did you see. It might be a hard call but for starters you need to reduce the medication you are taking if at all possible. Is your doctor suggesting you take all of these together? Surely  not. What are your main symptoms?
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    • Posted

      Hi, I live in Scotland and don't know of any specialist, like you mentioned. I am in pain from head to toe, no exaggeration. Burning legs, head aches. Legs, back, arms and also feet all cause me horrendous pain. I don't know what else to say as the pain never leaves me, even if it is only legs and knees.  Doctors has not recommend coming off any meds? 

      Gental hugs xxx

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  • Posted

    Hi Nicola , I was only commenting on what has worked best for me. I feel so sorry for you.Fibro is very unfair and it was a shock to be diagnosed at 43 with two sons with no support. The main problem for me is lack of sleep. I went through a nightmare ATOS assessment who failed me even with all the medical documentary evidence. I have just been reinstated after a battle with them since my surgery. They stopped my benefits the day I had surgery due to failing the ATOS a month before ! It has been an utter fiasco due to all the different depts being independent of each other Esa, Pips, Mandatory Reconsideration. They have now asked for 90 pieces of paper. 3x30 !!!!!!!!!!!!!! They have seriously affected my road to recovery. 
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  • Posted

    Hi Nicola

    wow thats a lot of drugs,maybe you are getting side affects from them which wont be helping your condition

    im not suggesting you stop them but maybe ask if what i said could be happening

    pregabalin is a horrible drug i took it for a couple of days & felt so unwell

    i came off of it,i must stress i wasnt on it long enough to worry about just taking my self off it

    have you tried meditation?

    ask your gp if there is an optomise programe running in your area

    they teach you how to meditate & teach you to deal with your condition in a positive way

    stay strong,i no its hard but i believe you can take control with the proper help

    please let me know how you get on x

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  • Posted

    I strongly agree you need to have your medication reviewed. This surely is having a detrimental effect on your body and health. I took Pregabalin and felt very dizzy and out of my body feeling . I could not function let alone drive a car safely. So declined the pills they suggested. Amitripyline had the same effect . I have been given citalpram which makes me have migraines and feel spaced out. I have found that I do not need to take these horrible drugs but am healing myself through diet ,lots of water etc.
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  • Posted

    Hi Nicola; I have read others' comments, and agree with 2 of the inputs "big time"......firstly, you DO need to change GP as your present one doesn't seem to understand/know much re Fibro, as there are some meds that you mentioned that don't seem to be consistent with treating your pain/fibro.....do you feel that the Pregabalin (Lyrica) is helping?....this I trialed to no affect, and then found that Amitriptylline works Much better for that "burning pain" that you describe....it is also an anti-depressant (mild), so should be able to take off one of your present anti-depressants and as you are now taking 2 (the Venlafaxine and Duloxitine)...which is unwise, as I was told by my pharmacist (overlapping of anti-depressants can cause minor - major seizures).   Yes, I too take some diazepam/valium for "tight" / spasming muscles, but try and keep it to low dose, as if taken over long period of time ,is a causitive for "short-term memory loss"...the Naprosan, won't help much, either as this is an Over-the-counter anti-inflammatory (for short-term use as well), and will cause bloating/fluid retention in some people.......as for other meds that you have listed, not sure why they would be used for Fibro (Yes the Metformin for your Type II ).....You say you saw a Rhuematologist 2+years ago for diagnosis, did he/she not give you and your GP some treatment plan?  maybe another trip back to a knowledgeable Rhuematologist is also a good idea???

    ​I also agree with the usuage of supplements...........I, too, take Magnesium, Bit B12, Melatonin, and if your bloods tell you low iron levels, then also some ferotin/iron supplements  (be careful of too much as you can become over-loaded......and constipated for some).......the one multi-vitamin that I use (here in Aussie...not sure if they sell it in Scotland), is Berrocca, which contains a bit of everything (and dissovle it in my drinking bottle and take over a few hours_..........Regular Physio/massages also prove very beneficial to me, to release the Tense muscles...hot packs for sore/stiff   muscles/ bones (but heat doesn't work on the Burning Pain....only makes it worse for me)....another thing that may help your "hurting legs/arms" is to wear Tubi-grip.....this I buy from pharmacy/chemist/physio.....it is normally used to increase circulation of blood, but it really helps my aching/spasming legs/arm.....ensure to buy Correct size for your  limbs......measure required length and wear around house/to bed, and this helps me Big time..................hoping that this gives you some forward thinking????..............and a hug as you sound as if you need one.................Bronwink

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    • Posted

      Firstly, thank you for you advise, I just felt the passed few days have been hell on earth.  I know I should not be on all the meds that I am.  Do you think I should change practice for new doctors all together or just go to different doctor in my current surgery.  I know it sounds like I want someone to tell me what to do, as I can't decide on my own. I have been at this surgery since I was 16.  Now just turn 45 and feel bad leaving my surgery. I take anxiety and panic attacks, so staying with current surgery would make me feel more comfortable.  However if I go to different surgery, I know I would be getting second opinion.  I am struggling to lift myself up. Thank you some much for your input. I will let you all know how I get on.

      Gental hugs xoxo

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  • Posted

    Personally i go to a new doctor to get a second opinion. I could have stuck it out with my original doctor who had no idea 8yrs ago he said he thought I had shingles, MS , Lymes disease or just plain exhausted looking after two young sons alone!!!  It was only when I saw someone new that helped me. Best of luck and the first thing to discuss is taking too much medication. 
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    • Posted

      Thank you so much for your input. I am taking everything on board that you are all saying. I think firstly I need to change doctors, then I need to come of so if not most of my meds. Then consider what is available for my pain.

      Gental hugs xxx

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    • Posted

      Just of phone to doctors, asked for appointment with senior doctor, if he can't help then I WILL be changing surgerys. Appointment 3rd Nov.  Will let you all know how I get on. 

      Gental hugs xoxo

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    • Posted

      Hi Nicola; that sounds like the first step, and I can understand feeling re the "complete" change being daunting.....so hopefully, the senior doctor can understand and give you the help that you are looking for.....and if you have been going to this clinic for so many years, he should know/understand where you are coming from......as others will also say, DO take/make a list of ALL of your pain/sites/types/list of questions/meds.......anything and everthing that you can think of, including that referral to Rhuematologist....................and yes, will be waiting for how you get on......................night from here in Aussie Land..........Bron
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