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Oesphagus inflammation

Posted , 9 users are following.

joyce6460
joyce6460

I had an endoscopy recently which showed inflammation in the oesphagus I already have lichen planus orally and vaginally when I saw the consultant I asked if there could be a connection he dismissed it straight away and just said no I,m now being treated with proton pump inhibitors and he's just doubled the dose saying its acid reflux.  I,m frustrated that he wouldn't even discuss it and when I,ve read up about it I,m a classic example I,m now concerned I,m being treated and taking medication for something I may not have. Has anyone else been diagnosed with oesphagal lichen planus and how did you get a diagnosis.

0 likes, 40 replies

40 Replies

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  • Gillian1956
    Gillian1956 joyce6460

    Posted

    I think even if you have it you would still be prescribed PPI medication to protect you from acid making it worse I to have LP of the vagina and I'm thinking I have it oesophageal as well I've had camera put down three times berum swollow s done I'm wating for results of last tests now depending on what I'm told I mite mention the fact I have LP elsewhere I really think I've got it 

    • joyce6460
      joyce6460 Gillian1956

      Posted

      let me know when you get your results it will be interesting to see what your doctor says. I,m in the lancashire area where are you ?
    • maria17676
      maria17676 Gillian1956

      Posted

      Hi Gillian, did you try imunosupresant?,I thinking of this,agresive treatment my work for me ,before lichen spread evrywe.
  • Guest
    Guest joyce6460

    Posted

    Hi ladies can I ask if your teeth and ears hurt with LS. I haven’t been diagnosed yet going to make a dentist app tomorrow as I have white patches in my mouth and around my throat is red and sore also my teeth and ears are hurting. I also have vulval lichen sclerosus. I’m in north east. 
    • joyce6460
      joyce6460 Guest

      Posted

      Yes my ears do hurt but I didn't realise there was a connection till I came on this forum 

    • jane63952
      jane63952 Guest

      Posted

      Your vulval lichen schlerosis could actually be lichen planus.  I was mis diagnosed as having lichen sclerosis for a while.  It’s very similar.  But lichen planus can go inside the vagina whereas lichen schlerosis doesn’t.
  • maria17676
    maria17676 joyce6460

    Posted

    I have very good toothpaste unflavourand oralNurse I bought that  on amazon 3 for £10,is good ,because not irritate my mouth,Looks lake we have problems with our stomachs,I need to check mine with camera  , maybe because that I have Lichen Planus x

    • mary_pooh
      mary_pooh maria17676

      Posted

      Brilliant I've just ordered myself 3 oranurse toothpaste didn't know it existed !! But still try the coconut oil please . Yes ask for a camera you may have an ulcer because the bacteria infection does cause them . They say most illness begins in the stomach !! Take care and be strong lady xx

    • maria17676
      maria17676 mary_pooh

      Posted

      Hi Mary ,I have an appointment for endoscopy for next Saturday,after antibiotics I feel worse ,and getting lot of  soreness in my mouth,I think this is changing for erosive form ,problem is I cannot control my stress,special after looking to my mouth,my OLP looks very bad , How too think positive is very difficult for me to do that. , Did  you have lot of pain on endoscopy and after.? I hope your new  toothpaste is ok for you .thanks Maria 
    • mary_pooh
      mary_pooh maria17676

      Posted

      My mouth is bad at moment I'm using coconut oil to sooth it and yes tooth paste is brilliant thanks. Ask to be sedated when you have camera done then you don't feel anything ! Look online for emuaid ointment it tastes horrible but I put it in mouth overnight and in the morning mouth is much better . I also pray everyday to angels to help me heal !! We will get better xxxxx

    • maria17676
      maria17676 mary_pooh

      Posted

      Mary that  oitmant is for oral use? On amazon is blue and red tubs,look like for skin only ,I have new job about 10 months ,I just thinking if I will manage ,pain at work on full time job .I have to start pray for better days,xxx
    • mary_pooh
      mary_pooh maria17676

      Posted

      I got the blue tub it's ok in mouth I showed it to oral doctor at hospital and he said yes use it !! Also on emuaid website they say it's ok for mouth . Yes try praying it's worth a try when we are this desperate !! Now listen you must not get stressed as this makes olp worse when you feel stressed just say (Mary said don't get stressed) xxxxxxxx

    • maria17676
      maria17676 mary_pooh

      Posted

      Thanks Mary ,yes you are absolutely right,I know my stomach problem and mouth is related to stress ,that’s why spreading so fast ,stupid me ,I have to learn haw to relax again xxx
    • mary_pooh
      mary_pooh maria17676

      Posted

      I sometimes curl up in bed if mouth is bad and listen to relaxing music for a while it's all about looking after your body and soul xxxxx

    • maria17676
      maria17676 mary_pooh

      Posted

      Hello Mary.Today I had endoscopy,  with spray to the throat, and I was told that everything is ok inside my stomach,no biopsy was taken .but I still have burning pain inside my throat x
    • mary_pooh
      mary_pooh maria17676

      Posted

      It's good news about stomach but the throat spray they use has alcohol n menthol in it which are both irritating for olp I didn't have the spray ! I saw a brill dermatologist Thurs she gave me lidocaine spray instead plus flixonase steroids to try. She's taking biopsy of scalp to see if it's LP or dermatitis. Also sent me for lots of blood tests for zinc iron b12 liver n kidney n thyroid functions !! I feel at last someone is listening to me . She said my whole mouth was ulcerated and lost skin everywhere she said how do you manage to eat !! With great pain I said . Anyway try sea salt water gargles not table salt . Or coconut oil .I also got unflavoured mouthwash called ultradex xxxx

    • maria17676
      maria17676 mary_pooh

      Posted

      Great ,that someone start doing lot of tests on you ,doctors ignoring that very often ,let me know if your new mouthwash is ok .Yes I using coconut oil ,and sea solt ,and bicarbonate soda ,and steroids as mouthwash ,if my OLP is bad .I need to buy unflavored mouthwash definitely!  I hope your new medication will work great on your LP.xxxx
    • mary_pooh
      mary_pooh maria17676

      Posted

      Ultradex comes unflavoured with a sachet of mint to add but don't ! It works really well get some. But don't use the bicarb too much that can be too harsh. I wish you well xxxkeep to a bland soft food diet xx

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