Off the wall side effects??
Posted , 16 users are following.
This probably is gonna sound insane, but has anyone out there experienced some very strange, nondescript type of side effects from prednisone? ie interior of mouth feeling very hot and sorta tender? Also, numbness/tingling in feet and hands? Pls. let me know. I'm feeling like a hypercondriac!
0 likes, 58 replies
kathy61958 lynda62707
Posted
Oh my goodness! I have all of those and a few more! My short term memory is kaput! My hair is falling out, and my temper is very short😭
I’m over a year into my diagnosis and prednisone has been pure hell in my life😔
lynda62707 kathy61958
Posted
kathy, thank you, thank you, thank you! Omg! I felt like such a whiny, complaining looser when I put that out there. I'm glad I did tho as I was beginning to think I was losing it! My temper has also been short, and I don't even HAVE a temper! Lol
ClaireJG lynda62707
Posted
I’m hoping that my less than perfect short-term memory will improve once I’m off Pred. I’ve read about Steroid Dementia Syndrome, which is another cruel effect of the steroids. I’m hoping it’s incredibly rare...!
lynda62707 ClaireJG
Posted
Hi ClaireJG...Emotional??!! Omg..can't even begin 2 tell you. I cried like a baby yesterday at Sarah's leaving "the View" on tv! Nutz! Here's the deal guys, I know I may sound a bit "flippant", but I'm trying to bring a bit of levity to a crazy, not terrific situation. I hope I don't offend anyone, this is how I deal w/things I can't control too well! Btw, woke up 1/2 hour ago with much stiffness and pain in my fingers and hands and a Splitting headache😠. Just took 5mg pred.
Tinapoly1 lynda62707
Posted
My 3 fingers in both hands with the palms are going numb with tingling for several months, mostly on the left & occasionally a 4th finger joins the others when it happens. My tougue swells once or twice a week with sores on the side . My stomach is upset every day so I now take a half of an Imodium. You are not alone.
EileenH Tinapoly1
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Tinapoly1 EileenH
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No Eileen, It is the middle ,ring ,& pinky fingers on both hands with my palms.
EileenH Tinapoly1
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r.d.s26296 lynda62707
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I have a dull ringing noise in my ears. Sort of like a whine from a radio.
My face is like a round moon, very swollen, which could be the reason for the noise in my ears. (The swelling could be pressing on the blood vessels inside the ear )
I'm now on 18mg Prednisone...
My Rheumatologist thinks I have Rheumatoid Arthritis , so wants me to take methotrexate.......I have just done a CCP anti blood test to confirm it's RA.
Saying I don't have pmr is a mistake on her behalf.
I know that the attack came so suddenly, couldn't move in bed, like my whole body froze up. Couldn't pull my underwear up, sit or get up , comb my hair. Excruciating Pains in shoulders, upper arms ,legs hips. Etc etc.
That was all 5 months ago.
margaret22251 r.d.s26296
Posted
I dont like it but it gives me a life, i wont let them increase the mtx, as the are meddling with my doses od pred one minute it goes up and the next they want to decrease it at a fast rate.
I went to see my doctor and told her what i am doing, and she said i will have to inform the hospital, and i just said ok.
Its your body i have learnt to listen to my now the longer i have pme, and with the help of Eileen and many other people on this site i have also learnt to tell the doctors. Good luck
val26097 r.d.s26296
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EileenH val26097
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EileenH lynda62707
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EileenH
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lynda62707 EileenH
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Holy moly!! Sooo many different side effects! Ehy didn't my Rheumy advise me of at least Some of these? So grateful I found. this forum. Btw...its 3:38 a.m. as I write this. I guess insomnia is another side effect?!
EileenH lynda62707
Posted
Half of them don't know!! We find out by experiencing it and then looking in the medical literature!!!!