Oh dear!
Posted , 9 users are following.
The day after my last post was feeling a little down ( heart surgery) so after lunch laid on bed with relaxation CD. half way through went into AF and ended up in resus, again. They dosed me with beta blockers which lowered it, but a bit too much! Anyway, I spent 4 days being tested for everything and they found abnormalities in liver enzymes (ALP). They did an ultrasound which showed nothing and advised my GP to refer to gastroenterology if not clear in a week. Still on 12 mg pred. Tried to reduce to 11.5 but too painful. Seeing Rheumi mid May who wants me on methotrexate but still have raised ALP (whatever that means!). GP said to test again in a month!
4 likes, 18 replies
judytal Whisper2003
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Take care of yourself.
pat38625 Whisper2003
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pat73046 Whisper2003
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bronwyn97278 Whisper2003
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linda82701_USA Whisper2003
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Whisper2003 linda82701_USA
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margaret22251 Whisper2003
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tina-uk_cwall Whisper2003
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what I do know is that the liver us a tricky little bugger and many readings and scores following a test go be back to normal within a few weeks. I know because this is the situation I am in presently. All my results were either good or progressing that way until my last but one test when particular counters were raised again, my Dr didn't want to panic and so retested me 2 weeks later and once again these particular counters are looking much better and heading in the right direction. Yesterday when I went for my results a locum told me that sometimes if the pile ducts on that particular day are a little blocked that could also result in a worrying reading.
i definately would not be inclined to reduce at the moment as you are far too anxious. Leave things to calm down further then try. As for the mtx I would not want to start those meds until I had a clean bill of Heath re the liver. All the best, christina
Whisper2003 tina-uk_cwall
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I am catching your hugs, Margaret. Thank you so much
EileenH Whisper2003
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Whisper - how very disconcerting! Are you just on beta-blockers? I'm on a beta-blocker, an angiotension II inhibitor - both for heart rate and BP - but also on propafenone, an antiarrythmic, which works brilliantly (and an anticoagulant as well of course). No problems at all now. I was told that the cardioversion thing is all very well but doesn't last long and often ablation is also unsuccessful so they reserve it for cases that don't respond to medication. I think I prefer the Italian attitude to a/f since all the people I know of in the UK seem to have ongoing problems.
Get better soon!
tina-uk_cwall Whisper2003
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Whisper2003 EileenH
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I forgot to mention - the nurse said my BMI is too low so she will refer me to dietician. Wrong subject for me I think! She even checked to make sure I was eating all my disgusting hospital food. I eat loads every day and was starving in there so would've eaten anything anyway!
EileenH Whisper2003
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No - too low a BMI eh? I'm up for a fat transplant if you like! My niece was in hospital a few weeks ago, she has cystic fibrosis and is like a streak of pumpwater! She put up piccies of the food on Facebook - all beige and all disgusting and it was supposed to be the high calorie version.
Whisper2003 EileenH
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Despite the diet recommendations on the posters the food offered is distinctly lacking in fruit and veg. I did request eggs and bacon for breakfast but was given the usual cornflakes. I did request a cheese salad but it was half a plate of grated cheese with a tiny pot of salad and two sachets of salad cream.
1st May is my follow up with heart team to discuss, hopefully, the medications. Until then no one will adjust any of them. They had plenty of questions about the pred though - and some of them had not heard of GCA though most had of PMR. Bit disappointing when you have to keep explaining yourself!
EileenH Whisper2003
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