1. Community
  2. Skin and nails
  3. Lichen Planus

Olp brilliant treatment that's working at last

Posted , 9 users are following.

mary_pooh
mary_pooh

After suffering chronic olp from two years I have finally seen a brilliant surgeon at guys London turned out I had extremely high thrush count too so I'm on Nystatin and flixonase which I mix together with 10ml water and swish for 3 minutes for three months to keep both problems at bay and my mouth is pain free at last all ulcers and soreness has gone hallelujah !!

3 likes, 35 replies

35 Replies

Next
  • julia52834
    julia52834 mary_pooh

    Posted

    Wow Mary that’s great! Continue healing YAY 👍🏼🎉🙏🏼

    • mary_pooh
      mary_pooh julia52834

      Posted

      Thanks Julia my thrush count was 10,000 (mega high) no wonder my.mouth was red raw !! I took 14 days of flucozanol first to flush it thru.now the other two meds should keep everything calm gotta see a haematologist to see why my white cells are so low !? Xx
  • floramac
    floramac mary_pooh

    Posted

    I thought flixonase was only a nasal spray?
    • mary_pooh
      mary_pooh floramac

      Posted

      It's the nasule drops he said to empty on pipette in the water with the nystan for olp ! It's working anyway xx he said if you use just steroids for olp it will give you oral thrush that's why I'm using both medicines he's the first doctor who I've seen who seems clued up !! I'm so happy to be out of miserable daily pain I hope other people may try this and find relief god bless you all xxx

  • floramac
    floramac mary_pooh

    Posted

    Thanks for the great info. How did you get your referral, GP just says nothing you can do just keep an eye on it, for the last 7 years !
    • mary_pooh
      mary_pooh floramac

      Posted

      I just said to doc I'm fed up and can't carry on with pain so she referred me to guys the Dr cook I saw is an expert in olp he said there's no cure but at least we can keep things calm xx

  • Esuma
    Esuma mary_pooh

    Posted

    This sounds amazing Marypooh - was the specialist your local doctor or were you referred especially? I’m so fed up of seeing my doctor and just being given the same thing over and over even though I’ve said it doesn’t work! 
    • mary_pooh
      mary_pooh Esuma

      Posted

      My local doc referred me because you need a specialist in this field local doctors don't really know enough about olp !!

  • kirsten96475
    kirsten96475 mary_pooh

    Posted

    That is fantastic to hear! So, so pleased for you x
    • kirsten96475
      kirsten96475

      Posted

      I meant to add, what is the doctor's name? x

    • betsy49
      betsy49 mary_pooh

      Posted

      Where is this Dr Cook?  In the United States?
    • floramac
      floramac mary_pooh

      Posted

      I doubt my gp would be able to make a referral to him, we are in the West Midlands!
    • mary_pooh
      mary_pooh floramac

      Posted

      Well I'm from Kent so it's a fair train journey for me but well worth it ! Maybe there's a dental surgeon at your local hospital that could help ? I just want everyone with olp to get a treatment that works for them . I didn't even know I had oral thrush it was only coz they did a saliva test at guys !! Wishing you luck x

    • Esuma
      Esuma mary_pooh

      Posted

      I see a dental surgeon at my local hospital - I saw one for about a year who then referred me to someone for a second opinion who I’ve been seeing for about a year now too. He’s a nice doctor but I’m just not convinced, every time I see him it’s like he’s forgotten my diagnosis and what we’ve tried before and suggests the same things?! I had an experimental treatment that was for People having transplants but no luck, aside from that it’s been the same things tried before. I’ve also not been given any information about the condition at all since I was diagnosed apart from being told it’s not curable and a little like eczema with flare ups. My experience is not like that mine has been the same if not worse for two years and so painful! It’s such an awful condition I’m so glad you’ve got some relief from it 
    • sandy58862
      sandy58862 Esuma

      Posted

      This is my understanding to date. 11 months.

      Yeast is an opportunistic disorder. It invades your weakened immune system from the Lichen Planus. Treat both. Take the antifungal in pill or swish form along w steroid. Additionally I take an immunosuppressant. On this regimen for 4 weeks now.

    • mary_pooh
      mary_pooh sandy58862

      Posted

      He said I can't take immunosuppressants coz my cells are half as low as the recommended lowest rate already he said if I took them I would not be leaving hospital !! But hopefully the nystan/flixonase treatment will do the trick. I tried so hard to fight olp with diet/suppliments but it didn't work so steroids it is unfortunately !! Xx

    • mary_pooh
      mary_pooh Esuma

      Posted

      Guess I'm lucky to have found a great doctor they all differ on opinion maybe ask yours for same meds as me xx

Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.