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On a scale of one to ten pain is 11 :(

Posted , 4 users are following.

hazel70459
hazel70459

Hello I am 42 years old and since I was 30 I have been suffering a burning throbbing acheing pain all over body some parts are worse than others, back and fourth to doctors and tests Its been very frustrating as the pain is very real to me, my doctor has been very sympathetic. I also have silent migrains and have recently been diagnosed with Non epileptic seizures. I have also been diagnosed with Fibromyalgia finally!!! . keeping my spirits up despite pain. I have two children and a lovely husband so i have no option to let this beat me down. At the moment i am off work as I am having seizures, but the pain has increased alot so aswell as the duloxatine I am on for pain I have been given amatriptaline. what I want to know has any one got any other ways of dealing with this ie: food /exercise/ treatments. because on a scale on 1 to 10 the pain is at 11 today sad. 

0 likes, 27 replies

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  • caroline271
    caroline271 hazel70459

    Posted

    Hi Hazel, When my back was very painful I took everything I could and that just took the edge off. My back would go suddenly into spasm making me scream out then every step I took jarred it too. One day I took paracetamol, ibuprofen, tramadol and dihydrocodeine. It sounds like you need your meds reviewing if they aren't getting your pain under control. Others speak of warm baths, heat pads.
    • hazel70459
      hazel70459 caroline271

      Posted

      Thank you for taking the time to reply . I have been put on allsorts in the past worked for abit then wore off. I am on duloxotine and last night I had my first amatriptaline doctor seems to think the combination will help.Today I am in agony hope that it wil start to help , think positive. how is your back now?.
    • caroline271
      caroline271 hazel70459

      Posted

      Mostly it's ok now. Occasionally it may spasm or ache terribly but nothing like it was! I had physio for a while but it seemed to make it worse. I hope the duloxetine works well for you. I took it for a while and it made a big difference for me within 3 days. I haven't tried amitryptilline as yet but could go with something to help me sleep a lot better as I don't get the deep sleep and I'm awake a lot too.
  • bluesman
    bluesman hazel70459

    Posted

    Hazel, my daughter has seizures and migraines and I have fibro. I believe they are connected. If you have had more than two seizures that is classed as epilepsy so I'm puzzled why the diagnosis is 'non epileptic'. Anyway I will cut and paste what I have already stated on another post:

    I reckon I had fibro for more than ten years before being diagnosed. When eventually I was diagnosed, I was prescribed Paroxetene, an anti depressant which killed the pain but gave me an a la carte selection of nasty symptoms that I couldn't live with. I came off them and by that time I had learned the secret of magnesium. I had started taking Boots Calcium and Magnesium tablets with vitamin D. By the time I had been taking them for two months, I would say the pain an stiffness is controlled by 80-90%. I take double the RDA of two tablets (I take four per day). I also bathe regularly in Magnesium sulphate (Epsom Salts) - two cups full in a nice hot bath. For sleep I take valerian - again at higher than the recommended dose. These things won't work for everyone but most fibro sufferers are deficient in magnesium so nothing to be lost trying. It can take a while to build up in your system. My sleep pattern has improved greatly. I also liten to a lot of relaxation/meditation stuff. There is a great one hour countdown to sleep by 'The Honest Guys' available free on youtube and spotify which you can listen to via earphones.

    For pain I now take Naproxene wich is high strength ibuprofen.

    Go to google and try magnesium deficiency along with 1) Fibromyagia 2) Epilepsy/seizures and 3) Migraines. Epilepsy and migraines often go together. There are hundreds of specific diagnoses relating to different types of epilepsy. If there isn't a specific known type it is usually referred to as 'idiopathic epilepsy' i.e. epilepsy with no known cause.

    • hazel70459
      hazel70459 bluesman

      Posted

      Thank you for your advice I love a hot bath so I will try epsom salts. I have had a cluster of seizures since 22 december and I have been reffered to a different nurologist now, long wait !!!. I am so grateful to have discovered this site, helps when people get it , so thank you. smile 
    • tiswas24537
      tiswas24537 hazel70459

      Posted

      i would use magneisum flakes from the sea bed not epsom salts . much better natraul 
    • hazel70459
      hazel70459 tiswas24537

      Posted

      Forgot to ask before I go spending my money do you find it helps? 
    • tiswas24537
      tiswas24537 hazel70459

      Posted

      if i you have a bath in them and soak then i get a reallly good sleep . but like i said we are all differant .its all trial and error

      but most fibro sufferers bennifit from using magneisum smile

  • tiswas24537
    tiswas24537 hazel70459

    Posted

    i was very much better when i had weekly relexology [ lady retired now ]

    no one eles has taken over ,so i have gone for accupunture

    which helps with alot of the symptoms.

    magneisum flakes from the sea bed helps with body pain as does magneisum oil applied to the limbs if you can take it internaly as well as a supplement that helps 

    plant based is the gentlist , i am also taking colidaul gold , and ionic minerals .

    and i have a electric  heat pad .

    • hazel70459
      hazel70459 tiswas24537

      Posted

      Thank you for your reply. I will try reflexology and magneisum oil. I hope you are feeling well. Thank you again I appreciate the advice. 
    • tiswas24537
      tiswas24537 hazel70459

      Posted

      iv just had my accupunture treatment ,and the ladie who does them said that she has a doctor who came to her thru her last pregnancy and has booked again to come for a second time while she goes thru ivf

      she also has another doctor and several midwives doing courses on accupunture that come to her for training as part of there course so fingers crossed its getting thru that we should have integrated medicine

      and theres training in alternative medincine on some medical courses to so lets hope it keeps moving in that direction .this might improve things all round for everyone .lol

      a lot of doctors do a week end course in accupuntutre which is totaly pointless , three years plus regular up dates . 

  • deb02429
    deb02429 hazel70459

    Posted

    I used to think I had silent migraine.  come to find out it was intracranial hypertension.  it causes bad headaches but can cause body pain too.  a lot of people with it have seizures.  I think the diagnosis Fibro is an excuse for the doctors to stop looking for the actual cause of your symptoms.  Dr. Gold showed that fibro gets better if you treat the sleep apnea.  sleep apnea can cause intracranial hypertension.
    • hazel70459
      hazel70459 deb02429

      Posted

      Hello thank you for your reply. Thats interesting to find out. I dont get a headache as such thats why I was surprised when I was told I am having silent migraines I do however get pressure on the right side of my forhead, and feel nausea.  I have had the pain in my body since I was 30 and I agree while my doctor was sympathetic , it was the same conversation every time I went and more pain killers. I sleep ok ish pee about 5 times a night and find it difficult to get comfy as pelvis hurts or back arms ect Even bought a new bed as adviced by one doctor didnt help use a cushion inbetween legs to balance out. Had tests for arthiritis / scans / ect ect. all came back negative. I am waiting an app to see a different nurologist so I will make a note of this. I am going armed with video footage a dairy and confidence in myself not to take any bull crap!!!!. Thank you smile
    • deb02429
      deb02429 hazel70459

      Posted

      peeing 5 times a night is almost surely from obstructive sleep apnea.  you are not waking up because you have to pee.  you are waking up because you can't breathe, then you realize you have to pee.  this is obstructive sleep apnea.  some people with intracranial hypertension don't get headaches.  but nausea is a common symptom.  and since it is increased pressure in your brain, your symptoms are consistent.  do you get a whooshing sound in your ears?  pulsatile tinnitus is almost pathognomonic.
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