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Hi all, I've recently posted and read lots of threads regarding people unable to get a proper diagnosis and suffering through this.
I have had many tests done including CT scan, CT enterography, ultrasound, colonoscopy, upper endoscopy, blood panels, blood screening for inflamatory diseases, stool and urine tests and more. Nothing was conclusive enough to establish a diagnosis.
They did find inflamation in my terminal ileum which according to GI was not characteristic of Crohn's but after 2 scans, still decided to put me on corticosteroids for 6 weeks.
I'm 2 weeks in and and don't feel any better at all. I have pain everyday mostly in my upper abdomen and mid back. I feel like something is inflamed or out of place under my upper right ribs. It causes a burning and gnawing sensation under both ribs from front to the back of ribcage. I also struggle with gas, which makes my lower abdomen distended and tender. I also have frequent belching and hiccups.
My stools are everything but normal, they often are multi-toned, pale and full of residues . It's generally consistent and somehow formed.
BUT, I've realized after eating steaks or grilled meats, my stools turned extremely bulky and disgusting . It did look somehow like a cow's dung.
I was and I'm still concerned of pancreas/gallbladder issues but nothing has showed up in the tests. Enzymes were normal, no findings on both CT scans. My elastase 1 came back over 500 which is not suggestive of EPI.
I asked for a MRI and EUS next.
Is anyone going through something similar ?
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