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Oral Lichen Planus flare up

Posted , 22 users are following.

ckitefly
ckitefly

So right now my OLP is really bad.  Has anyone had same issues I have right now and if so, what treatment did you get or suggest.  My ulcers in back are very inflamed in the back of my mouth ( behind back molars) and along the gums line on the side of my mouth ( inner cheek below teeth).  Monday they started hurting really bad and now infected to the point that I have facial swelling,  facial pain fever and dizziness.  Went to the doctor and was given a high dose of antibiotics but oh my god the pain so so bad that I can't even drink water without being in pain.

I've had this since 2008 and this is the worst I have ever had.  Any suggestions would be great appreciated because since starting antibiotics, fever is persisting and dizziness started.

Thank you.  So desperate right now.

2 likes, 54 replies

54 Replies

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  • ellen57898
    ellen57898 ckitefly

    Posted

    I am so sorry that you are in such pain.   I see a periodontist who just diagnosed my OLP. She had dental inserts made that fit over my teeth and gums. I put  Triamcinolone Dental paste on them and leave in mouth for 30 minutes 2x day. I just started this last week so I am unsure how well it is working.  Since this an oral disease, you might want to see a specialist in the field. Your dentist can probably recommend someone.  Please let us know how you are doing.

    Ellie

    • linda32054
      linda32054 ellen57898

      Posted

      Ellen, the dental inserts sound wonderful! I'll tell my dentist about that. I would be willing to try them.

      Thanks,

      Linda

    • mary_pooh
      mary_pooh ellen57898

      Posted

      Hi Ellen not sure how the inserts would help heal tongue or cheek ulcers also I don't think I could open mouth wide enough to use them as corners are cracked n bleed !? X

    • ellen57898
      ellen57898 mary_pooh

      Posted

      My LP is on my gums (at least for now). They fit ove my teeth and extend up my gums. Your situation is much worse than mine.  You are right. The inserts would be torture for you and not cover the areas infected. I hope you can find some relief. Change doctors if you must. Your quality of life is being ruined.  In the meantime, eat pudding and read trashy novels.  But seriously, search for a new doctor.   

      Is is there anyone on this forum who knows where to look for medical help for Mary.

      Ellie

  • Sue2017
    Sue2017 ckitefly

    Posted

    Hi

    So sorry to hear your OLP is so bad. I was diagnosed (by biopsy) just a couple of months ago. My dentist sent me to the dental hospital. I was given a steroid mouthwash which I have not used as i am wary of side effects. However after brushing my teeth with a regular toothpaste, i am finishing with an aloe one. After a few weeks of this and also having a couple of hygienist visits, I am much better. Having said this, i know this is a condition that varies from day to day so I can't say for sure if it is the aloe that has helped. I was also warned by the consultant that stress and illness make OLP flare and that it is really important to be proactive and that if these occur I should start to use the steroid mouthwash before it gets bad.

    I hope this all makes sense. Does anyone else have views on aloe?

  • nicola_66716
    nicola_66716 ckitefly

    Posted

    I feel your pain. . . I have really bad flare up just now to my gums are red raw and burning face is sore to touch . I am going to phone dentist in morning see if he can give me steroid tabs you dissolve them in wa ter and gargle then spit out .
  • Purl45
    Purl45 ckitefly

    Posted

    I’m miserable. The OLP has really flared up. I have ulcers all over my mouth. Most doctors don’t know what to do. I’m calling my dermatologist tomorrow. Anyone ever go to an ENT?  Any other doctor suggestions?

    thanks

    • Sue2017
      Sue2017 Purl45

      Posted

      Hi

      So sorry to hear you're in such pain. I went to my dentist who referred me to the dental hospital in London. They were brilliant. Perhaps your local dental hospital has an emergency clinic?

    • mary_pooh
      mary_pooh Purl45

      Posted

      Purl I have been in agony with olp for 12 months and the best cure has been from my homeopath I'm on Merc 200 and streph remedy it's giving more relief than steroids x

    • elaine92400
      elaine92400 Purl45

      Posted

      I see an ENT regularly. I see one in my home town and one in Seattle. They keep an eye on me and I feel very confident and well watched. I probably see one of them every 4 months. I think it is a good idea,
    • RKH123
      RKH123 mary_pooh

      Posted

      Hi Mary, can you clarify what merc 200 and strep remedy is?  I Googled them and up pulled a Mercury 200 motor for a boat!  😁. Thank you!

  • Nitojen
    Nitojen ckitefly

    Posted

    i think i have it in my mouth too, but  my dentist didn't notice weird.

    • gail41674
      gail41674 Nitojen

      Posted

      My dentist didn't know what mine was. Wanted me to see oral surgeon, but I went to dermatologist. She took one look and right away knew what it was. I posted on this forum the treatment she gave.

  • gail41674
    gail41674 ckitefly

    Posted

    I have OLP. My dermatologist has me on 30th blood thinner injection once a week, Chlobetasol propionate steroid gel (rub on gums and hold in mouth 15 min 3x day, then Spit out!), and 20mg doxycycline tabs 2x day. This keeps the blisters at bay but gums still inflamed in couple of spots. She also said I need to avoid nightshade plants. Potatoes, tomatoes, eggplant, peppers, tobacco. Don't use tobacco, so easy. Have cut way back on others. She said would have to be off all for 3 MO to see difference. I also have lesions on my legs. I have a different steroid cream for my body and it does help a lot to reduce swelling and itching. Keeping stress at bay is very important. I can tell it makes mine worse. Aloe Vera gel is soothing inside mouth.Anybody with any other treatments?

    • gail41674
      gail41674

      Posted

      Should say 30 mg blood thinner.
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