Posted , 28 users are following.
Seems us folks with osteochondritis dissecans in the ankle are not too common.
I have suffered with this condition since 1996, and it's been quite a lonely thing as I don't know anyone else with this in their ankle.
I have had two rounds of keyhole surgery for a grade 5 lesion, although I don't believe my lesion is too big on the grand scheme of things. I used to play an awful lot of sport when my ankle went wrong. My GP at the time failed to diagnose me for a long time, repeatedly sending me away with a muscle strain, eventually I got a second opinion and the x-ray confirmed I had soft bone in my joint. Unfortunately nobody took any action to immobilise itt and the soft bone fractured out into my ankle joint.
Luckily I got an amazing GP when I went to university and she was responsible for me seeing a good specialist and getting surgery in 1998 and again in 2002. This really helped to stabilise my ankle and after a number of years being quite active (I was able to walk upto 8 miles at a time!) in spring 2011 things went wrong again. This time my back was the problem. After not being able to get a diagnosis through all the tests on the NHS I found an osteopath who has diagnosed my problems. I have developed a scoliosis of the spine due to my ankle problems tipping my pelvis forward on the right side (same side as ankle joint affected). This in turn has put my back out of line and has stopped me doing a lot of stuff I used to enjoy. Its frustrating and really has knocked my confidence, as well as painful most days in some way.
The NHS have not ever really known what to do about the chronic pain I have experienced (even after the successful 2002 surgery I've had periods of intense pain in that joint), and now it seems I have chronic back pain to add to the mix. Even getting physio to help mobilise my back has taken 15 weeks.
Has anyone else out there experienced back pain after having osteochondritis in their joints. If so did they find any particular strategy worked in getting help with pain and knock on effects? I'd really appreciate hearing from anyone else with their experiences.
1 like, 31 replies