Osteochondritis dissecans in ankle

hi, I know its been years since this has been discussed, but I am desperate for info and support for osteocondromas. I'm not even sure if it is related but I cannot find ANY discussions anywhere. I'm a new mom with a 2 year old who is getting multiple spurs it seems every week I find a new one. Now at #4 in her hand/ fingers. And 7 total. I'm getting. A but overwhelmed. Please help

 

Hey everyone, 

I sprained my ankle 4 month ago, i was told i had grade 2 ankle sprain .. I exerienced little pain after standing or walking for a long time for about 4 months and finally decided to see a specialist.

He ordered an MRI since my X-ray showed nothing.

The mri showed a very tiny fracture at my tala dome (ocd), the doctor told me that i don't need a surgery, all i can do is wait and see

I really don't think it is getting better, in fact i think it's getting worse..

I couldn't find any doctor in my country who can do the surgery since i live in Egypt which is a very poor country ,

So i'll have to live with my ocd untreated. 

any tips guys ??

I hope all of you get better soon

Hi everyone!

I know it's been a bit since anyone has posted, but I want to share my story and get some advice.

I've never been a very active person, so first off how I developed OCD is beyond me. My doctor suggests I was born with it.

I was probably about 8 when my doctor decided to do an MRI and we found I had holes the size of a quarter in both ankles. After a little bit of physical therapy (my doc didn't want to preform surgery at first because I was so young) the hole in my right ankle healed, but the left one did not.

So far I've had 3 surgeries. The first 2 being a simple clean out and bone graph, which failed miserably both times, and the latest one (I had this one back in December 2014) they did another bone graph, then proceeded to break the ankle where the hole is, plant a cadaver bone, and then sealed it with some plates and screws.

I have been in pain most of my life, I have never been able to stay active because when I do, the pain isn't tolerable. I've had to quit many jobs because of this, too. It's quite sad, I'm only 19 and have so much trouble already.

I'm so glad I found this thread, I thought I was alone.

So what I'm curious is, how do you guys make it through work? Do you have to stand a lot? If so, how do you get through the shift? I desperately need to start working again, but it's hard to find any part time sit down jobs where I live.

Hello-

Thank God I found this forum. Yes, my back from recovery and being in a boot for so long!

My knees hurt so much, I feel I'm falling apart. It's a domino's effect.Yoga and strength is helping, cortisone shots.

This is very hard and challenging!

Probably you are not reading the forum now. . I've just been diagnosed with osteochondritis in both ankles, but my orthopaedic surgeon has said nothing about immobilisation . .I'd be interested to hear your experience.  He told me to use crutches and to walk as little as ossible. . and nothing else.  

So I have had an OCD in my right ankle for probably 8 years now (I am 15) and it was diagnosed a few years back. I decided to put off surgery and continue playing soccer and basketball, until a few days ago I was at the gym and a bone fragment popped loose. I can barely walk and I am just wondering if I should just clean out my ankle or try to reconstruct it. The doctors think that if I only clean it out, it will eventually worsen again and need more surgeries. If we reconstruct, they are worried about messing with the growth plates and I will have one leg shorter than the other and walk with a limp the rest of my life. (Its unlikely the latter will happen) From all of your experiences I just wonder what I should do

Hi people! Thanks for such a support group. Let me tell you my story with my ankle (talus) OCD.

I'm Erhan from Istanbul, Turkey. I am 33 years old. In the beginning of 2011, I had a serious ankle sprain during a soccer game. There was a lot of swelling. I had the x-ray and was sent home to rest. 3 months after the incident, I fell duringy snowboarding and hurt my ankle again. My doctor requested a MRI and that was the time I had this OCD in my ankle.

It was in an erly stage so they didn't give me any treatment. Just some Glucosamine pills and they forbid me to play soccer and other high-intensity sports.

During these years, I was feeling the pain only after long walks and especially playing soccer. I was very dissappointed for not able to play soccer. Then, I've lost 15 kg of extra weight and the pain was nearly gone. I tried to play soccer again. But the pain came back.

In the begining of 2014, I was re-diagnoised. The OCD was there again. It grew a little bit i think. And my doctor advised me to try Platelet-Rich Plasma (PRP) injection. Which is injecting PRP from my blood, right into the lesion region, in order to enhance the repair process. It was not a certain cure but worth trying. But i did not go for it. Another doctor adviced me to wear orthesis for a period of time, but also i didn't go for it.

Now it is the end of 2015 and, I regain all the extra 15 kg of body weight that I lost before. And I have the pain more occasionally. I did MRI, and another doctor advised me that, I did not loose the surface of the lesion, it is still alive, so we can and we must try PRP. If the surface is gone, if the lesion collapses, there is no point for PRP. Then we will think about Mosaicplasty and other options.

Right now I need to decide whether to take the PRP, or mosaicplasty or both, or nothing.

I can give you the details about my MRI when I arrive at home, but what would you do if you were in my shoes?

Thanks.

 

My daughter has this condition in both ankles, she has had two surgeries on one ankle and is still in constant pain. Searching for a new doctor who has treated this condition before. Her last doctor was staff physician to a professional football team but had never seen or heard of a lesion as large and severe as hers. She refuses to let him operate again on either ankle. Any advice is appreciated.

Hi, I'm 21 and have recently been diagnosed with OCD in both ankles of the medial talus bone. It has been a long time coming! I suffer with pain in my knees, hips and lower back... I am aware that is a bit of a domino affect and wondered if anyone else experiences these additional problems? I'm worried that I will develop further problems due to walking in a way that helps my ankle pain. I hope when i receive my ankle surgery that the pain in my ankles goes completely and that the other pains in my joints will ease.

Let me know any advice, it's such a miserable condition to have when you're so young!

Alex, what is the Facebook group you wrote about ?? Thanks

Most of the stories are similar. This is mine. I'll try to be brief.

Dec 2011, played soccer, goalkeeper stepped on my right ankle.

Took an X-Ray, misdiagnosed as a grade 3 sprain.

Year and half later, pain was still there, did MRI, OCD was present on over half of the talus.

Tried to avoid surgery as long as possible, took supplements plus losing 35lb helped [now I gained 40lb ] until I felt amazing and played 1 soccer game, results: nightmare after the game for both ankles.

MRI again, OCD didn't grow but I had tendonitis on the good ankle, but surprisingly according to the doc, the cartilage on damaged ankle was intact, so he drilled from underneath from the opposite side of the lesion.

Nov 2015, surgery, non bearing weight for 5 weeks, after that I took everything easy, no crazy stuff done.

Mar 2016, my pain is double than before the surgery, I honestly don't know what to do since my job is to be on my feet, I've been off work pretty much since the surgery.

I just hope there was more doctors with extensive knowledge about these lesions, because most of us have one thing in common, we were misdiagnosed.

P.S. sorry about my English.

I had a significant case of OCD of the talus bone.  I needed several grafts of pedia bone and cartilage to repair my ankle.  My surgeon was excellent but the communicative relationship between patient and doctor were not ideal.  I had my surgery about four years ago and had begun to bike ride, ice skate and progressed to more weight bearinging exercise.  I love to play soccer so about a year ago I tried to play some.  Initially I could not deal with the pain but became able to play on turf and softer fields.  I also increased the amount of time I could play and the intensity at which I played.  There isn't much information about people with a grade IV lesion and participating in weight bearing exercise, especially something that requires as much agility as soccer. I have to rest my ankle the following day and play somewhat conservatively.  To complicate things I have psoriatic arthritis and my surgeon recognized the arthritis during surgery.  I was wondering if there are other people that have had grade IV repair and have exercised having had similar success.  I recognize that I may be limiting the shelf-life of the repair but also acknowledge the numerous benefits of exercise.  There isn't a lot of literature about OCD and post-surgery weight bearing exercise.  Any insight you could offer would be appreciated.