Ovarian cyst painfull and not liking watch n wait approach
Posted , 22 users are following.
Hi hope someone can help end of November 13 was admitted to hospital for suspected appendicitis with pain in my right side was due for ultrasound but they sent me home cos I was feeling better but pain still in right side then I took my self to a n e as pain still hadn't gone this was start of dec next day sent me for ultrasound discovered a 4 cm hemorrhagic cyst on right ovary still a wait n see approach been spotting on of with brown discharge n red thought it might be my period but only had one a week before suffering with terrible uti at the minute and have a constant ache in my right side and then get sudden attacks of sharp pain like a stabbing pain I'm tired of waiting and been in pain due for ultrasound in few weeks any advice or why they making me suffer much appreciated
1 like, 24 replies
shanda
Posted
My journey with this started at the end of October. I had back pain. (Lower right). Upon visiting the clinic at my work (I work in a remote location with a clinic but limited diagnostic resources.) They did a urine test which came back looking suspicious for a uti. Upon physical exam (which was quite painful) they felt with the urine test and the pain (specifically location) I needed to go for further diagnostics to rule out kidney stones (or infection in the kidneys) or appendix. By further diagnostics they sent me to the hospital two hours away from my work site with hopes I would get an ultrasound or CT Scan. I had another urine test, blood test and physical exam. They said, "Nothing concerning about the urine or blood test" and based on the physical exam wrote me a prescription for pain medication and a muscle relaxant, calling it a pinched nerve.
Upon return to work our protocol is to follow up with the clinic when they send you to the hospital. I explained the outcome, they did another urine test and physical exam. The urine test was worse and the pain was still bad. They said they disagreed with the hospital 100% and based on the urine culture, they said they wanted to put me on antibiotics. I agreed with the clinic and took the antibiotics they gave me but had an allergic reaction.
When they switched out my antibiotics they made it clear that if the infection was in my kidneys (as they suspected) the antibiotics they gave me wouldn't help I would have to go home and follow up with my doctor because they didn't have another medication that I was able to take. The antibiotics didn't resolve the pain.
I visited my family doctor and with the exam she 100% agreed with the clinic at my work and that it was likely kidney stones or appendix. She was going to send me for an urgent CT. When she looked at the urine test though she determined that it likely wasn't appendix and revised my orders to an ultrasound to look for kidney stones or ovarian cyst.
I had my first ultrasound November 12th. They diagnosed a right ovarian cyst about 2 CM with a slight bleed. I had a repeat ultrasound on Dec 30th. They want you to go through a couple of cycles before they take a new snapshot, to determine if the cycle changed anything. Sometimes for those not going through menopause, the cysts can resolve.
I visit the doctor today. If the cyst has not resolved then I will be asking to be referred to a specialist and looking to have the thing out!!! I have had menstrual like bleeding: November 18 - 4 days, December 3 - 4 days, Dec 22 - 2 1/2 days and started again on the evening of January 5th. While much of the back pain had been resolved, I am woken up in the night with it about every hour and this time with the bleeding the pain is back during the day in my back. The pelvic pain is also quite prominent to the point where I needed to sleep with a hot water bottle.
I am not sure what the ultrasound results will say or even how my doctor really feels about it all but based on what I have read so far and the feedback I've gotten on this site, if the cyst isn't gone, I will be making them get rid of it.
I know this doesn't ease your worrying. But I hope it lets you know that you are in NO WAY alone!!! I will post after I see my doctor.
Shanda
claudia44833 shanda
Posted
natasha_39800 claudia44833
Posted
Hey claudia44833!
I'm experiencing the same thing as you and I was just wondering if they found at what was wrong with you? Hope your feeling a bit better now!x
emma34067
Posted
Thought i would share my experience with you, l as by reading the forums before my op it really helped. Had pain on and off for a year, irregular bleeding, but most annoying wanting to wee all the time, this became the main reason along with my Auntie being diagnosed with Ovarian Cancer (stage 3) that i visited my doctor, i also had developed high blood pressure ( not sure how much this is linked to cyst). Was sent for a scan on kidneys in October 2013, found a cyst 5cm, referred for a internal scan 2 weeks later, they found 6 marble size fibroids, 5cm cyst (fluid filled) and a 7.5cm tumour. was a little bit shocked..... Was referred to Gynaecology, which i saw on the 28th November 2013 , consultant explained that the pain was related to the pressure and not the cyst, the fibroids were not a concern at the moment, but because of my family history he wanted to remove the cyst and tumour (which he did think may be a dermoid cyst?) along with ovary and tube on the left side. Only waited 3 weeks, which was good because i was by this time in a lot of pain. Had surgery on the 20th December 2013, this was done by key hole and a 4 cm cut along bikini line, the cyst was stuck to the tumour which was growing off my fallopian tube not my ovary, this meant they could leave the ovary and only remove the tube. Had no pain on tummy, used some pain killers, could of left that evening but my blood pressure was not right so stayed over night. on returning home took pain killers for a couple of days. Had no pain on going to the toilet. The only real problem i have suffered from is pain in my shoulders and neck from the trapped gas, this can be really painful and can catch your breath, so be prepared. Peppermint tea helped, hot bath, heat patches and a massage, im nearly three weeks post op and still have pain in shoulders,guess it will go eventually, just awaiting lab results, should hear this week, good luck to everyone will keep you up dated re: progress, dont give up, keep pestering yor doctors, i am feeling alot better, starting to feel normal again, lots of energy, first period last week since op, no pain and much lighter- only 4 days instead of 8 !!!
kay81644
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wuzzle
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emma34067
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shanda
Posted
I will still continue watching this board and offering support wherever I can!
Shanda
kay81644
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kay81644
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wuzzle
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lisa15739
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kay81644
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kay81644
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dawn70887
Posted
Sorry you are having such a miserable time of it. I have been through a similar experience twice now. I had an ovarian cyst about 2 yrs ago. I was very anxious - but it turned out to be a simple cyst - I had 4 scans and it went away after about 5-6 months. Then last year I had pelvic pain again and a scan showed a 5 cm cyst in my right ovary again. This time I was less worried and 3 scans later (last one Nov 2013) the cyst had gone away. Relief!
i wanted my gynaecologist to do something to get rid of the cyst but she explained this was not necessary. i found the waiting for the next scan very worrying. I did a lot of reading about ovarian cysts and "watchful waitin". it seems this is the normal approach and seems to be the right one - unless the cyst looks worrying when they scan you - if it appears solid or more complicated. I spent lots of time Googling my symptoms and the tests that I was having.
This internet article sums up watchful waiting well - with references as well if you want lots of detail:
http://www.enetmd.com/content/watchful-waiting-ovarian-cysts
I had a lot of pain with my second cyst and had to take strong painkillers. There is also an article about ovarian cyst pain: http://www.enetmd.com/content/ovarian-cyst-pain
I hope this is reassuring. Let us know how you get on and try not to worry, I am sure the cyst will go away. best wishes dawn