Posted , 11 users are following.
Hi everyone, its been over two years from me and im in about week 6 of a bad relapse. Its getting quite worrying now that i can still be so sick after this amount of time. Has anyone else had similar experiences?
0 likes, 35 replies
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Sarah0350 ashley44325
Posted
It's been 2 yrs and 7 months for me and I'm still seriously restricted.
ashley44325 Sarah0350
Posted
thanks Sarah, its nice to know you are not alone sometimes. It makes you panic doesnt it
Frecoman2000 ashley44325
Posted
Hi, In Oct. 2000 I was told I might have Mono and prescribed a couple of rounds of different antibiotics. They didn't work, ruined my last year of university. I did not recover until May 2001. Here's the thing, my Mono test was negative. Since then I have had a recurring wide range of illnesses with no diagnosis. Now my doctor thinks I am crazy. As a last resort I have done some research. Mono usually lasts 2-4 weeks. Lupus can mimic mono. When I get these attacks I get ulcerated sores on the roof of my mouth. Almost like burns but they do not blister. I think I was misdiagnosed with Mono in my thirties. I have not had it confirmed yet because Lupus is hard to diagnose. I looked at images of the Lupus mouth ulcers online and they are a perfect match for the ones from my last attack. And yes men also get Lupus. I hope this helps someone get answers. Sincerely: John
ashley44325 Frecoman2000
Posted
thanks john, interesting, ill look into lupus!
craig07920 ashley44325
Posted
Hi Ashley,
I hope so much that this relapse settles down for you very soon, you've been through so much and I can imagine it must be frightening to be going through a relapse and to bring back all the memories of earlier days in your battle against this horrible virus.
I remember having a relapse at just before the 2 year mark in which my blood test showed positive for mono again, for the very first time since the very first blood test I had. It scared me so much thinking I would have to go through all this again. Thanks to God only I didn't, things did settle down within a few weeks, I think it can just be different for everyone Ashley, it might just be taking a little longer for your relapse to settle down but truly it will settle again - your body is two years down the road of equipping itself to fight this thing and in no way will it go back to where you were earlier on again.
Let us know how you are doing and message any time Ashley - just want to see you feeling much better and I still believe that you are going to and much better times are ahead - thinking about you.
Craig
ashley44325 craig07920
Posted
thanks craig, hope you are ok
craig07920 ashley44325
Posted
Thanks Ashley, been having a bit of a tough time lately with back pain but God has been helping me. Grateful for that. Hang in there and hoping you are okay.
Craig
lisa29739 ashley44325
Posted
hey Ashley – it’ll be two years next month for me. I still am not back to normal and have to super manage my diet and exertion. It’s very frustrating. I have taken some supplements that work to kill viruses and they have helped some. They also think that I have Lyme disease on top of everything else so I’m treating that as well. I still can’t exercise but I can manage a 10 minute walk every day most days. hang in there you are definitely not alone.
ashley44325 lisa29739
Posted
hi lisa, what supplements are you taking? ive started on high doses of vit c but im a bit causious of taking a lot of things as my stomach is so painful
lisa29739 ashley44325
Posted
I totally understand that. I had gastritis in the beginning and had to have an endoscopy because they thought I had ulcers. Ever since I’ve been taking DGL and that has kept that feeling away. Although I do suffer monthly bouts of IBS. The main supplement that I’ve been taking since November is monolauren. The only improvement I’ve really noticed is that my relapses are shorter. I kind of have a base level of functioning which isn’t anywhere near where I used to be but it’s manageable. Then when I overexert myself or get any kind of stress I relapse for 2 to 3 days.
stacie00863 ashley44325
Posted
Hi - I'm at 16 months and I have experienced relapses throughout. It is very frustrating. But I have also learned to listen to my body and rest. I go back to my Immunologist soon to hopefully try a new regime to try to get the mono to go dormant. Best wishes to you on your recovery.
Stacie
ashley44325 stacie00863
Posted
thanks Stacie, out of all the doctors i have seen i think one had heard of ebv and im sure he googled what it was after i insisted on the test for it lol
Mono_too ashley44325
Posted
Hi Ashley,
My daughter has been sick over two years, she can do more than last year, she really has to watch getting over tired. I had it for over a year myself and whenever I have a virus it seems harder to get over. Every year seems to get better though.
ashley44325 Mono_too
Posted
thanks mono, i hope your daughter feels better soon! at the moment it feels just like it did 2 years ago. i just feel like im dying everyday to be honest
Mono_too ashley44325
Posted
Hi Ashley,
I know how you feel, the worst feeling ever. I started drinking green tea and my daughter drinks nettle tea, it really helps with the inflammation. I also found that vitamin D helped also.
craig07920 Mono_too
Posted
Thanks for the advice about green tea Mono too, it's something I could think about for my back too perhaps.
Hoping that you are well and that your daughter and granddaughter are doing as well as possible at this time.
Craig
Mono_too craig07920
Posted
Hi Craig,
The nettle seems to help my daughter. I hope this helps with your back.
craig07920 Mono_too
Posted
Thanks Mono, that advice is a great help and I really appreciate it. Hoping that you are feeling well today.
Craig