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Hi! I could really do with some help guys! I'm new to here so not sure if this is the place for it. Im looking for people who are currently fed via a peg direct into the stomach or something similar?
The reason for this is my sister is disabled to cut the story short recently she has been given a feeding peg as her stomach muscles have collapse and unable to hold food. She is nil by mouth completely. She isn't able to eat ANYTHING as when she does it makes her really poorly.
However, she is still gets cravings and temptation of eating/wanting food. My sister says she isn't hungry as the food peg puts 'liquid food' direct into her intestines/tummy giving her the nutrients she needs and the feeling of feeling full. Its the craving and temptation of food she is massively struggling with and its starting to effect her mentally to the point she doesn't want to leave her house because everywhere she goes there is temptation of food around her - she has tried all sorts to help keep her cravings at bay for example blending food, custard, soups, hard boiled sweets, ice cream etc but anything going down her throat makes her very ill as she shouldn't be consuming anything other than water.
We have been to dieticians, doctors etc but no one seems to help or understand! I just thought maybe if there was someone out there in the same situation as her that she can talk too and share tips/advice it could help? or even a forum/chat group anyone knows of in the UK she can talk to people and get this feeling normalised!
Thank you for taking time reading this post! Please help us 😦
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