PAE - 5/6 years and over after PAE

Posted , 14 users are following.

Hello folks,

you have no idea how your contribution hear has been inspiring and exciting. l am planning to go for PAE and would like to briefly here from folks who have done this PAE for well over 5 years and how it's working out for them after all these years. The main PAE thread had become so long wading through to get this information is very tedious.

thanks to all.

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  • Posted

    My PAE was easy, but only about 10-20% effective, and lasted about a year. Turns out I had a median lobe issue so results weren't very good, unfortunately. Today the IR doctors are much more aware of this median lobe issue.

    Hope all goes well for you...

    Tom

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  • Posted

    Its been almost 5 years PSA is staring to rise again I am almost positive I will have to do it again soon . Other wise I would say it is a positive experience for me . Good luck

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  • Posted

    You will be taking a chance with a procedure that has had too many failures and too many repeats.

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    • Posted

      Hi, Derek et al,

      I have never undergone a PAE procedure but, many, many, moons ago I was involved in the design of self-actuated prosthetic limbs and learnt much. One of the things that stands out in my mind concerns how the human body realizes when an injury interferes with nerve activity or

      blood flow and responds by attempting to repair the damage.

      Is this not what might be happening with our PAEs?

      Just a thought, but anyone with answers please put me out of my misery! Many thanks, alan86734.

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  • Posted

    I just completed a PAE at St. Louis Un. hospital in St. Louis, MO. Mine had to be done in two procedures - the first attempt, through the wrist, could not embolize the left side. The second attempt was in the femoral artery and succeeded in embolizing the left. That was completed 10 days ago. I will report on progress. I should note that I had a urolift last October, and it was a complete failure. I was in serious pain for 4 months, and the pain only went away when I had the first PAE at the end of May. The urolift did not interfere with the procedure. I have been told that I should start to see improvements in a month or so.

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    • Posted

      from many of the posts i've read , looks like pae is not that bad and there seem to be a significant number of people who had good results . I guess some may have to go for 2 or 3 procedures for it to work for them, may be due to the nature of the procedure and our prostate.

      hope it works out for you this time around

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    • Posted

      I want to update my experience. It has now been two months since my second procedure, and while I notice steady changes, there is no significant improvement, at least not yet. I do have a lot of pain. The procedure's purpose is to kill off part of your prostate by restricting blood flow - it feels a lot like a UTI, and I have to test myself with OTC kits regularly to eliminate that UTI is causing the pain. I have had to go on antibiotics occassionally, but it is usually just the post procedure pain. My stream is still very weak, and I have frequency and urgency issues. My follow-up is not for another month.

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  • Posted

    Hi. Sorry my reply isn't after 5 years later but maybe my experience will be of a little interest. i had pae in April. i was up 8 times a night before and am now up 4 times. the process took 10 minutes and with very little pain. it was done at 10am and was home by 3pm. the blood and clot passing was soon over as urine was running clear by 5pm.

    the procedure worked perfectly (3 clips). the reason i have not had a satisfactory result is due to my bladder losing elasticity by pushing urine past constricted urethra for 3/4 years prior.

    i think the main determinant of a good outcome is the bladder state. if you ask the urologist to check it when doing the cystoscopy this should provide a pointer as to the outcome. i alao think this woukd apply to any of the other prostate procedures.

    Geoffrey

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    • Posted

      Geoffrey,

      If your procedure only took 10 minutes and you had 3 clips this is describing a Urolift, not a PAE. A PAE takes a couple of hours and there are no clips. It's done by an Interventional Radiologist not a urologist. I am a bit confused by your post.

      Tom

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