Pain 2 years after total hysterectomy

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im experiencing pelvis pain, where my uterus used to be, I had everything removed so wondering what are these twinges and pains that come and go? Anybody had this?

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  • Posted

    I also had a sub total hystetectomy just ovaries left. Since operation I have had pelvic pain on and off but now it's continuous. It been over a year now. I have had lots of investigations but nothing comes back. Have been told it's phantom uterine pain. A bit like when u loose a limb ur brain still thinks it's there. Have had lots of pain injections, blocks but so far nothing has helped. I'm on continuous morphine patches and other pain relief. I didn't think that I would be like this a year on. I'm sorry you are also experiencing pain too. I suggest you see your GP for further investigation.

    Let me know if you get any answers. smile

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    • Posted

      Oh dear sounds very similar, I too thought once my hysterectomy was done and dusted no more excruciating pain. Ok, the pain I have is nowhere near as bad as before but just feels like ovulation pain and twinges, I keep thinking it can't be right! I be read about adhesions that can form on scar tissue but don't think there's a solution to that as it could end up having an op to get rid of adhesions but more can form from having the 2nd op, so seems like going round in circles. I just hope they become less regular but I never had these last year, this is my 2nd year since op.  Yours must be painful to be on morphine, god I was on morphine injections before my op, i do hope this pain goes away 

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  • Posted

    Hi. I had a total vaginal hysterectomy 2 years ago kept ovaries and tubes. I seem to be going backwards I am still having pains every month sharp twinge inside vagina and a feeling of pressure too. I'm having a laparoscopy in July to see if it's endo again?

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  • Posted

    Me too. My LAVH BSO was 18 months ago. With major adhesiolysis. Have had loads of scans and tests as pain when walking and problems with bladder and bowels. Adhesions apparently might have cause kink in tubes, so doc going to investigate, needs releasing despite risk of more...had adhesiolysis comp,etely across back and organ separation..worst side has actually been majorly better since first op, just the hyster site that is causing me probs.  It's nice to read of other folks good recoveries, but thankful not only one in slower recovery boat, feels like such a lonely journey most of time, doesnt it?...not that I wish for other folks to be in pain. Sometimes feel people are thinking "oh, arent you better yet, get over it already, i, my grandmother, aunty, whoever they knew had 'a hysterectomy'...didnt have all these problems, you must be a hypo, milking it, whatever"...but even the kind questions/responses can leave you a little 'low'...fed up not being able to say 'i'm great, better, fantastic'..please God, one day soon..

    anyway, sorry going on a bit! Hope you get help and all sorted. Dont suffer. Dont be fobbed off either. You dont need to struggle, there is help out there, sometimes just need perserverance to get it.

    very best wishes

    KarenG

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  • Posted

    I had a partial Hysterectomy a few years ago and having severe pelvic pain. My dr thinks it could be scar tissue from that surgery and having appendix removed. If continues maybe you should talk to your Dr about possible scar tissue. That doesn't show up on ultrasounds. Good luck

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  • Posted

    hello nanny rose. i am experiencing the same pains. on and off. i have them 1 to 2x a month. its terrible. im wondering why im having them as well. been told me see obgyn due to pain. honestly im tired of the pain. mines gotten so bad that it put me in bed and keeps me from being able to stand or walk.

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    • Posted

      i still get it too, a couple of days in the month. Let me know how you get on, i dont really want another op so i take strong painkillers on my bad days but if it gets any worse i will have to take action. Hope you get sorted soon x

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