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Pain and more pain.

Posted , 9 users are following.

tony09890
tony09890

I've been reducing my prednisone dose by 1.25mg per week for three weeks, because GP now believes I don't have PMR. Each drop resulted in a worsening of whatever it is I've got (pain in wrists, forearms, elbows, shoulder, neck and ribs at the back)., I came down with a rash on torso around this time but GP advised it wasn't connected to prednisone and told me to decrease dose in 2.5 mg steps which I did. Next day I was woken at 1:00 am by excrutiating pain in both forearms, applied hot compresses and pain gradually abated. Saw Gp the next day, his advice was 'hang in there'.next day around the same time again woken by excruciating pain in forearm, four hours later got wife to take me to emergency. Doctors treatment: none, other than 25mg prednisone for five days then reduce to 10 mgs. I'm a bit worried when I drop from 25mgs to 10mgs I''m going to be in a world of pain. Comments?

0 likes, 33 replies

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  • Kassie_beetle
    Kassie_beetle tony09890

    Posted

    Hi Tony

    i live in Brisbane. A question Do you think the pred is helping? Many of us PMR sufferers have had great difficulty coming to terms with the life changing effects of PMR and that is why this forum has been so helpful hearing others stories. For me I went from being a Nurse working 4 days a week, I played Golf 2 days a week to someone who could do very little. I had to retire because I was unable to work. I had planned to work till I was 70. This was devastating.  I was very fatigued and had to have a sleep in the afternoon  for 2-3 hours. I am on 10 mgms of pred reducing very slowly. I am able to do a little more now but still pay the penalty of increased pain and fatigue if I get a bit too smart and over do it. It took me months to accept the change in my life but when I did Adapt my lifestyle I was a happier person. I really do hope you find a Doctor who can help you. Sometimes you have to go searching. There have been a number of people on this forum who have had difficulty with their Doctors and they have got

    Second, 3 rd and more opinions. 

    Take care

    Kathy

  • tony09890
    tony09890

    Posted

    Yes, that in itself is interesting, quite a few sufferers complain of the fatigue, but I have never had that problem.   I have plenty of energy, I'm just unable to channel it in anyway.
    • ptolemy
      ptolemy tony09890

      Posted

      I never really had fatigue until I got to around 8mg when the adrenal glands have to start waking up, I now feel knocked out a lot of the time.
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