Pain and more pain.
Posted , 9 users are following.
I've been reducing my prednisone dose by 1.25mg per week for three weeks, because GP now believes I don't have PMR. Each drop resulted in a worsening of whatever it is I've got (pain in wrists, forearms, elbows, shoulder, neck and ribs at the back)., I came down with a rash on torso around this time but GP advised it wasn't connected to prednisone and told me to decrease dose in 2.5 mg steps which I did. Next day I was woken at 1:00 am by excrutiating pain in both forearms, applied hot compresses and pain gradually abated. Saw Gp the next day, his advice was 'hang in there'.next day around the same time again woken by excruciating pain in forearm, four hours later got wife to take me to emergency. Doctors treatment: none, other than 25mg prednisone for five days then reduce to 10 mgs. I'm a bit worried when I drop from 25mgs to 10mgs I''m going to be in a world of pain. Comments?
0 likes, 33 replies
Kassie_beetle tony09890
Posted
Cheers
Kathy
tony09890
Posted
I'm aware ibuprofen and prednisone together are not recommended; however, my GP suggested it ' as needed', and as I said I can only take 3-4 doses before feeling ill. Believe me if your in enough pain you will try anything. Have an appointment with a dermatologist next Friday.
I was on 15mgs prednisone for around two months before starting down, made it to 10 and that's when the excritiating pain began? Up until then I was ok as long as I didn't use my hands.
I'd like to try using my hands in a day or so but I have also identified RSI as an alternative based on my symptoms and areas affected. With RSI they recommend complete rest.
maid_mariane tony09890
Posted
Really reduces the pain over the day and much better in morning almost normal where before it took me up to 3 hrs to move
Mariane Toronto
ptolemy tony09890
Posted
You could try paracetamol instead of Ibuprofen, but ideally the steroids should be enough.
lodgerUK_NE tony09890
Posted
If using enteric coated pred, wash off the dye, it can cause a rash.
If not, then it could be hives which is one of the rarer side effects listed for Pred.
Follow this link to another place on this site and then read up on everything.
http://www.patient.co.uk/forums/discuss/pmr-gca-website-addresses-and-resources-35316
Also look at the British Society of Rheumatologists Guidelines on the Treatment and Diagnosis of PMR.
tony09890
Posted
Kassie_beetle tony09890
Posted
if I were you I would go back to the emergency department for review. It almost seems like you may need to be admitted for further investigations.
How is the rest of your body? Has the Pred helped?
Kathy.
tony09890
Posted
ptolemy tony09890
Posted
maid_mariane tony09890
Posted
how was spreading the dose. I found the first day a difference in the afternoon and night. Before the pains would start to return later afternoon. It's been a week doing this for me and much better.
I hope it helps you.
I'm armouring myself with the 2 methods of reduction to present to my Rumi this week just in case she has other ideas. I'm not ready to reduce and it's been 3 weeks today. I need another 3 to get into a rhythm and learn my limitations.
Keep in touch, were do you live.
mariane Toronto, CND.
tony09890
Posted
maid_mariane tony09890
Posted
Glad to hear your a little better but i personally would take your evening dose and spread it between lunch and supper. It may help you out more during the day and not as disrupting to sleep.
This forum is great and I'm sure Eileen will comment she is great.
This disease truly seems to hit us active people so the lack of doing for us is doubly emotional than most. It's a hard pill to swallow but as someone on this forum said it is teaching us all "patience ". For me that is extremely difficult but i have to learn in order to heal.
Keep me posted, private message
Mariane
lucy82013 tony09890
Posted
I think you may have a point has your dr done any scans at all.
tony09890
Posted
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lodgerUK_NE tony09890
Posted
You wrote 'just so angry'. Being angry won't help you to deal with PMR. Neither stress nor anger are a help in dealing with an auto-immune illness, in fact, just the opposite.
We all know how difficult it is to accept that you can no longer live the life you were living before, but it will get better, albeit slowly and you will be able to do some of the things you did before.
The sooner you can come to terms with this vast change of lifestyle, it is not easy and is there no-one you can talk to about it all. Just spilling it all out to a family member, close friend or a counsellor should help. Don't bottle it up - let it all out. No man is an Island you need to talk.