Pain Clinic

Posted , 13 users are following.

Hello, all new to this. x  Have had fibro for many years now, but eventually got referred to pain clinic after Rhuemo said there was nothing more they could do for me. All I can say is what an awful experience, after being examined quite roughly, I was basically told to change my lifestyle, exercise, STOP all painkillers and really should get back to work. Was wondering how any of you have been referred and what was your experience?  Many thanks

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  • Posted

    No experience YET that was horrible they did that to you.

    ​What pain meds are you on?

    ​How long out of work?  Does your GP understand your situation (he is the one that will keep you out of work).

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  • Posted

    I feel honestly that doctors just give you painkillers n that's it. Any pain you have is Fibromyalgia and you have to just deal with it. It's not right they fob you off 😞
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  • Posted

    My goodness that is disgraceful. .you should not and have not have been left with nothing? ...I think you have every right to say that you are not happy and want to see another pain specialist. . If you are unable to work. . It is not on purpose. . ,and the stress is causing your pain levels to rise to the level of your not being able to function... I wish you luck, I know how awful it is.. big hugs to you. Deirdre. Xxxx
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  • Posted

    Tahnk you everyone for replying x x Im on 75mg Pregablin three times a day, lost my job in September due to absence from work etc..... he looked at my walking stick (which I have been using for about three months now) and asked who had given it to me, I replied that I have got it myself and he sort of laughed and sneered. He also said that people 'like me' use aids that we dont need and next I will want a wheelchair !!!!!

     

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    • Posted

      I hope you turned the doctor in. Maybe even Sue. I'm tired at the way dotors great people

      Too bad you didn't record the visit. Perhaps we all should start recording our appoints.

      Sending love

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    • Posted

      morning Domybest;  and Yes you probably will be needing a wheel-chair next, if you are anything like me..............I, too, have a stick, which there have been times that I've needed to use it (around the house where I don't get Weird looks)....but cannot go to shops without use of a Small Trolley to lean on............so don't feel that you are alone in this one..............Bron
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  • Posted

    I strongly advise you to contact the Patient Advocate Liaison Service (PALS) at the hospital where you attended pain clinic as their treatment of you was utterly appalling. 

            My own experience was similar in that the Rheumatologist I saw was unhelpful, and I asked my GP to refer me to the pain clinic. The doctor I saw was lovely, she took a full history, then examined me for trigger points which no one else had done,(they were all positive) and concluded that I had fibromyalgia. She prescribed Pregabalin and I have gradually increased the dosage so that I am now on the maximum, and it seems to suit me, although I do sometimes need Tramadol or Co-Codamol when pain gets too bad. She also recommended a tens machine which was provided by the hospital, and I have used it from time to time. Also offered to me was a pain course, which I declined at the time, but a couple of years later, I have now asked to do, and will be doing in the Spring. A taster session was offered which I attended, and I picked up a few pointers just from that, so am looking forward to the full course, as MANAGEMENT of pain is the important thing, not just painkilling drugs. I'm sorry you had such a negative experience, and urge you to contact PALS so that hopefully no one else is treated like this.

            This is turning into an essay, but I just wanted to add that I have successfully claimed Personal Independence Payment, and when I had to give up my Nursing career after 36 years, I took a temporary admin post, and when I found I couldn't manage that, due to the fibro, I successfully claimed Employment Support Allowance. Good luck x

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  • Posted

    I also had a pain clinic dr be very rude and condescending to me. I then didn't get an appointment for a follow up within the reccomended time frame for the procedure I had done so I did call pals and after having to chase them up 3 times when I followed it up with an email I got an immediate response and suddenly got a new appointment with a lovely dr.

    I was concerned I would be treated with contempt due to me complaining but it was the opposite, I got a nice dr who gave me the time one would expect for an appointment. He even called me directly a few weeks later to suggest the next steps and let me dictate in the appointment what treatments I wanted to try.

    You owe it to yourself and to every person who's due to seem him to report his behaviour, you might not be the first to complain and if he has to many complaints then he certainly will be warned. I refused to see my 1st dr again and in the end they gave me other options.

    He sounds like a complete idiot and I don't know why Drs think they can treat people like this, a lot of them seem to hold themselves in much too high regard considering they aren't even fixing anyone's pain. I wouldn't mind being treated like rubbish if I walked out and was suddenly feeling like I did in my teens but when u walk out feeling the same then they certainly shouldn't be acting like they are gods.

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  • Posted

    Hi....he sounds an absolute, total DISGRACE...you should report him, he. Has no right to upset anyone...especially when they are so distressed......

    You have not just been unlucky.....you have been let down.......

    Make both your rheumatologist and your general practitioner know just how disgusted you are...and that you intend to report the pain clinic specialist for. 1) a total lack of consideration for your feelings....2 ) offered NO PAIN RELIEF ... .. when it is supposedly ? His specialty.....3 )... talking to you..as a patient in a derogatory and belittling manner....4 ).... left you in a state of total panic .as who to turn to next....keep photocopies of it ....and post to ....

    NHS.....MEDICAL BOARD AUTHORITY......GP......LOCAL MP...HIS PLACE OF EMPLOYMENT....( keep extra copies. )....

    We have to stop the ( only a TINY MINORITY. )...doctors who ignore the not only physical but psychological affect of illness...

    I apologize for a long post...I wish you so, so, so, so much luck and peace of mind.....in my prayers...DEIRDRE xxxx

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  • Posted

    Hi, that does not sound like a particularly good experience. I have been to the pain clinic three times and to be honest I haven't found them very helpful. It's not their fault because there is nothing left for them to physically do, so they basically have to clutch at straws.

    Each time I've seen them I have had treatments ranging from facet joint injections to acupuncture. I've yet to find someone who is able to help me.

    Good luck, keep strong smile

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  • Posted

    PLEASE domybest,  please complain about this dreadful person.  That is NO WAY for a supposed Doctor to behave.   It's sounds more like he needs some treatment himself!!   

    Please do as deirdre has posted here ... it is important for those who also come after you getting this treatment.  He needs to be hauled up to the Medical Council.  

    There are also Medical Ombudsmen whom you can ring to ask advise on how to lay complaints, OR you can actually complain direct in writing to the Ombudsmen and they take it from there and deal with it.  I know as I have done this once here in NZ.   It soon got actioned.   I was given apologies by the whole medical centre, sadly nothing from the doctor himself, he remained aloof.  But it obviously woke them up to his/the doctors gawd awful mindset.  

    All the best going forward...stand your ground, it's all that we can do!!  It's our lives...   Don't let a prat/twat/idiot bring you down, you bring him down off his high horse and get even.  It maybe the best ever thing that you do for this doctor as it seems to me that he needs a holiday or some help himself!

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  • Posted

    Dear do my best. I was shocked to read of your brutal and utterly unprofessional experience with this si called doctor. I also feel strongly that he should be reported to the BMA. I have just gone through a nightmare with the DWP who are another set of bullies.I have had Fibromyalgia for 8 years and also a frozen shoulder for 4 years. I have just had shoulder surgery also. Two days after surgery they stopped my ESA benefits due to an assessment that they had done a month before surgery. I got my MP and GP involved and that is what made a huge difference in the end. But they are hauling me in yet again for another ESA and PIPS assessment. The irony is that the PIPS was done back in May at my house when I could drive. Now that I can't drive they want me to travel an hour and a half away for another Pips assessment. The stress they have put me through is unbearable.I am wondering about taking them to court instead!!!!!!!!!!!!!!!!
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