Pain management living in chronic pain

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After a Spine fusion and revision both less then one on lumbar L3-4,back in 1996...  a Total knee Replacement an a total revision all in one year back in 2010 same knee left side..... This year 2017  January , had aTotal left side hip replacement , it  dislocated in February this year , pushed back in at  emergency room . Being left in this pain is unreal on pain medication, 8 months post hip dislocation left side, nothing takes pain to a bearable place.  Please help in so much pain... Thank you , Mike

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  • Posted

    Hi Mike

    I had a left hip replacement in January 2016.  The new hip dislocated the end of April 2017 and was put back in under general anaesthetic in emergency.  I am still suffering with damaged nerves in my left foot.  They tell me there is nothing they can do only give me pain killers which I don't like taking because I have only one kidney and no spleen. I am having pain in the right knee and the right ankle.  I have tried various alternative therapy android private for two different Physiotherapists who tell me the problem comes from my spine which is curved.

    Do you think spine fusion would help this?  All the best Brenda

    • Posted

       Hi Brenda did you have a posterior  hip replacement, ?  What about your spine with those the MRI say , also  I must mention the morphine pump I had this in 2005 for about eight months I had a little infection and they had to take it out,  I think I'm going to push for that for myself ,   The nerve pain is terrible I'm sorry to hear you're still going through so much I'm eight months post hip dislocation and I know my pain is worse  did you try physical  therapy or go back again ice helps more  than heat,   God bless you hang in , Lord is with you Mike

    • Posted

      Hi Brenda I thank you for the compliment you gave to Me and Danna, we hit it off great, we are all pain buddies,  this is not easy mentally physically and psychologically ,  God works through people if we isolate with the pain will destroy  us , it's a shame your hip replacement this located after that length of time when everything was healed,  regarding the fusion I would get a second opinion if you're close to New York city hospital for special surgery number one people flying in or driving from all over the world to get there and are the best , ,  I did  some research on this nerve pain that I have as well ,and it's supposed to go away in time that's what I read I'm getting ready for a doctors appointment today let me know what happens stay in touch God bless you Mike 

    • Posted

      Hi Mike

      I couldn't reply to the posts because of the error page, I'm on the website now.

      I know nerve pain is supposed to go in time but mine doesn't seem to get any better.  Whether it's because it's in my foot and I am continually on it. I don't know!   Even though the doctors keep telling me there's nothing they can do only give me pain kellrers, which don't work.  I keep trying and I'm seeing the doctor again in 2 weeks.

      I live in the UK and have tried various alternative therapies and seen different surgeons but I'm reluctant to have further surgery.  It seems if I have one surgery it causes another problem.

      I wish you all the best and let me know of your progress God bless you Brenda

       

    • Posted

       Hi Brenda ,  I understand how treacherous this pain is , no one that hasn't experienced it could not understand totally .  Why did the hip dislocate,??  In my case I think I said too low on the couch and was horrible I heard the click that shifting like a car shift drop to the floor had to wait two hours before somebody could open my door I live by myself ,  I enjoyed your reply about Danna and myself ,  there's no time for games we need all the resources that are  available to us ,  and I feel spirituality is Medicine,  I don't know if marijuana is legal in the UK is what it is in California I went there several months ago  and did you get a medical card and tried it and it helps more than you would believe it takes the mindset off the   The terrible pain ,  and helps muscles to relax ,  it's worth a try , I know the pain must've been horrible when  it dislocated that's really horrible ,  I hope this helps you in someway God bless you my prayers will be with you there's a beautiful hospital in New York call hospital for special surgery they fix other doctors mistakes the whole hospital is  totally orthopedic , your pain buddy Mike

    • Posted

       Hi Brenda I just wrote you a letter they didn't send it through you know how they review to see if it goes through I feel for you I understand it's terrible after the length of time that that  hip dislocated ,  how did it come out dislocate ?  Please feel free to write me anytime I am your pain buddy Mike God bless you

    • Posted

      Hi Brenda I just want you to know you telling.   My. story also it's a pain in the foot The thigh foot backside , groin is tight , lm 8 months post dislo, l really really  thought the pain would decrease as the months went on,  how are you feeling now God bless Mike

    • Posted

      Hi Mike my dislocation happened on the 30th April 2017.  That was 15 months after the hip replacement.  I was taking the heads off the dandelions to stop them seeding in the lawn.  I bent down the hip went and all I couldn't straighten.  I had to lower myself onto the lawn. My husband who was watching the TV saw me and rang for the ambulance.  When they arrived they couldn't move me so they had to bring the stretcher in two halves.  They managed to push them under me and get me into the ambulance.  On the way to the hospital I had a full canister of gas and air.  I kept asking if it was laughing gas.

      once at the hospital I was taken into theatre and given a general anaesthetic to put it back into the socket.  I spent 5 days in the hospital.

      That is my story and that was 5 months ago and I'm still trying to sort out the problems with my foot.  The hip isn't bothering me but I keep getting different opinions on what is causing the foot problem.  I've been told by 2 different physios that it is my 5 vertebrae and the scoliosis.  The orthopaedic surgeon said it was from the old injury I had when I was 15 years old.  That is 55 years ago and it was a fracture of the tibia and fibia on the same left side.

      I keep plodding on but it's not as easy as I wish.  I can't walk well and I'm a rambler and the dancing I had started doing is on hold.

      I wish you all the best Brenda

    • Posted

       Hi Brenda I feel your foot problem and that's on the same side as the hip dislocation is from the hip dislocation you damage the sciatica nerve , I did as well . I'm not sure yet if there is anything they could do my thigh feels cracked inside my groin is tight etc... God bless you Mike

  • Posted

    dear Mike and Dana, 

    Your posts have touched me -

    again, this forum has proven it's value - the understanding, unconditional support and compassion we find here, we can find nowhere else --- Even our beloved partners, family and friends are not able to understand what we are going through - they are, of course, not to blame ..

    I am so sorry to hear about the pain you both are in ... sometimes it helps to "talk" to your body .. the part(s)that hurt so much .. and then listen to what they say...

    I am a big believer in the Mind Body connection - Maybe there are some unhealed emotions, or some resentment, somethings you are holding on to ... 

    Talking about it with someone might help ..

    Maybe you can continue your exchange using Private Messages (push on envelop next to your name) - You seem to  have a lot in common ..

    God bless you both and keep having unwavering faith -

    big warm hug

    renee

     

    • Posted

        Hi Renée thank you so much for your kind words about Danna and I ,  we both understand  ,  as you do that this is a complex problem mind body spirit ,  relying on a higher source is very important  and part of the healing and except , what we cannot change,,  after we give it all we have . Stay in touch and I hope you feel better God bless you Mike

    • Posted

       Hi Renée ,  I would like to mention this book to you Dr. John Sarno ,   I forgot the name something back mind ,  back in the 90s in New York City he had a program designed to address the pain in the back he says there is always related to emotional distress , his program stop people from having surgery and improve their lives what  you say is very true. Unfortunately I think after the many surgeries that approach might not work any longer once you have surgery after surgery I think cutting  the muscles and tendons and everything else creates its own problem ,  well you are completely right . God bless pain buddy Mike

    • Posted

      dear Mike, 

      John Sarno's book I read was Mind Body Connection - It was one of the mandatory books I had to read for my Masters in Clinical Hypnotherapy .. It all makes sense ...

      John, I know it is very challenging for you right now, but please do not give up hope .. 

      your body hears everything you say/think - continue to have unwavering faith, which means that you need to let go of the outcome ... 

      angel blessings

      renee

    • Posted

      Hi Mike, 

      My previous response went to moderator and I am not sure if it will be posted ...

      I just wanted to tell you to not give up - to keep unwavering faith and let go of the outcome -

      your body hears everything you say - even though it might seem that some thing is not working any longer, it does not mean that there is no healing taking place -- 

      our bodies are miracles, Mike ..

      Come here anytime okay ... Know that you are loved and not alone

      Angel blessings .

       

    • Posted

      Renee,

      I'm very sorry if I went out of bounds on your site. I guess what I thought I was helping, but I could read between the lines of your comment about MikeNY and me going to private messaging.  I was going to make this a private message but decided to just go public, as it will be my last posting. Mike thought it was a compliment, but it was just the opposite. I, too, have a degree in sociology and have no thought of trying to convince others of whatever it was I was doing; perhaps having faith in a higher power. I guess I went the wrong way. Richard has made the best comments I have ever read and I got so much encouragement from his postings--MikeNY, too. I will not do any more posting. I wish the very best to each and every one of you but you have made it obvious that my posts were not really accepted. The last place I ever want to be is a place where I'm not wanted.  My heartfelt blessings to all of you. I've very sorry if I offended anyone, and I will sincerely miss the forum.  I guess that's just life.  Dana

    • Posted

      Hi Renée did you See what Danna wrote thinking he went out of bounds and he apologized to you regarding his communication to me do you  understand this he for sure never went out of bounds , and all of us have a right to be who we are ,where we are, and how we are I would suggest you write them a little note assuring him he did no wrong God bless Mike

    • Posted

      Danna I am also one of  oh very good perception ,  and I believe her complement was Not a scolding it was a complement you have a right to be who you are where you are and how you are and if you stop that action  you defeat the purpose you are helping me for sure and I am helping you that's enough right there for anybody thinks you went out of bounds they should get off the site themselves  this is a site of healing not of games we are suffering you stay on the site will you will disappoint me God bless Mike 

    • Posted

       Renée could you please tell me why Danna is apologizing to you thank you ???

    • Posted

      Dear Renée I know you are a very nice person and I think danna misunderstood charlottes very nice Brenda has so very  nice people, sure are paying Buddy would need a little encouragement at this time got bless you Renée

    • Posted

      Hi Dana I hope you're feeling better ,you said you a person that felt a target ,  you said you were a person of higher education , l  an as the same,  if the option exists to go private and you were complemented by Renée , and  Renée   whi l found to be kind ,  and very knowledgeable , so I'm pointing out to you that we all have the option to go  to go private as was suggested by team ,

      It would not be there if it did not provide a positive role in healing process , and l know  Renée admired that  and ment well, l was a officer in NYC , l read people very very well , pray on your  reluctance and remember God works through people he is giving me this message for you I feel this I was going to pull out myself when they started moderating what I was saying I thought it was a personal action and did write a letter back , The Lord put you here for a reason like

    • Posted

      Dear Dana, 

      I am so sorry that you thought you went out of bounds with your postings ... I am not sure how you interpret my words .. the exchange between you and Mike touched me deeply and perhaps I should not have suggested going through private messaging ...the reason I did that was to give you this option - sometimes more can be shared via PM than publicly and this is based on my personal experience ...

      I am not sure why and what you apologized for, however, I do apologize to you that I made you feel as if you can not express who you are ... it was never ever my intention ...

      How are you doing otherwise, Dana ? 

      God bless you and keep you 

      renee

       

    • Posted

      dear Mike, 

      I am sorry I did not respond sooner ... for some reason I did  not get the notifications until recently -

      You are right though -- By no means I wanted to make Dana feel bad, or anyone else here on the forum - I believe that things happen for  a reason even though I might not understand them at the time - we all have our own views and it takes courage to express them - I believe in the mind body connection and holding back talking about it -- it is very fragile and sensitive and personal ..I also believe in a Higher Power and practice letting go and let God almost every moment of the day ...

      This hip journey has been and still is very confrontational for me --- it effects me on all levels,physically, emotionally, mentally and spiritually -

      No, going to moderation is usually being picked up by the system - it might be a word, or sentence, or link or someone who reports the discussion if they feel the posting is inappropriate - Fortunately we have an excellent moderator !!!

      Thank you Mike ---the right people will come in to your life at the right time -

      God Bless you

       

    • Posted

      Renee,

      I'm sorry, too, if I misinterpreted your post. If my messages should have been private, then I'm very sorry. I was posting to Mike and thought that maybe it would help others, too. I don't know what to say. Like you and Mike, this has affected my life on every level. No one in my family had ever had anything like this, but I'm sure I led a more active (sports) lifestyle. I was a tomboy and took blows that spectators gasped at and got up and continued playing. I pitched in a fast pitch softball tournament with a skull fracture; no one at the hospital bothered to call and inform me of the results of the xrays. I didn't last long in that game.  It was 103 degrees, and I got so disoriented I didn't know up from down. I looked like Frankenstein because of the swelling and bruising to my face and head. Sure, my parents tried to stop me, but I was bent on playing. They did go because I'm sure they knew they'd have to pick up the pieces--and they did!!  I fell up the stone steps to our house and broke my cheekbone.  Big deal, I said.  In another softball game a girl slid into me while I was covering home plate and completely tore my kidney loose.  It didn't damage it, I just had to have surgery to put it back where it should be. (It was in my pelvis).  That's why I can't seem to understand why this has gotten me down.  No, I'm not 20 years old, but what's that got to do with it?  Apparently, quite a bit.  I've relied on my religion to get me through and I feel it has.  Why not now, I keep asking?  Okay, I'm off the subject again.  Please accept my apologies if I misunderstood. I'm sorry to Mike, too.  He's a great guy and I'm sure, now, that I was off limits. When I hear about people hurting so badly, I want to help and I have no way to do it.  My words most likely shouldn't have been public.  Boy, am I ever sorry.  I just hope everyone can forgive me.  I really meant no harm.  Dana

    • Posted

       Renée that was great that was very very good I knew exactly what you meant you were too smart to have any other opinion you are open minded spiritual intelligent and I hope you find peace in this pain situation We know how it affects every part of our life and I tried to keep Danna from not leaving and to understand that make you show much bless you Mike

    • Posted

      Dana,  I hope you're feeling better I think Renée said it all you have the right to be who you are and if you love the Lord more power to you, whatever brings us peace , we are a family we are pain  buddies,  May the Lord bring you peace tonight and every night Mike

    • Posted

      Dear Renée ,  you were very kind ,your words from the beginning never had I interpret anything but warm hearted communication , and being very complementary to both of us ,  you're on the right track , coast to coast - radio keeps me going as well , been listening to it for years , very knowledgeable information on everything . Peace Renée your pain buddy Mike

    • Posted

      oh no, Dana ....  please stop apologizing for posting, darling ... 

      I am sorry I suggested the private messaging - I did not mean that it was not appropriate or anything like that - 

      I had to smile when I read your story ... looks like you have been challenging your body almost to the extreme redface -  and every time she put  you back together - And she is doing it again - 

      You say that you relied on your religion to get you through - why stop now?  

      you are not abandoned, you know ...you never will  be - Relax in the knowing that all is well, perfect as it is right now ... if it was not, it would be different, and that would be perfect too ...

      Dana, be at peace with what is -

      you are such a warm and loving soul - put your arms around your self and tell your self that everything will be alright ...

      in loving embrace

      renee

    • Posted

      Hi Renée you have a point our conversations look so positive and productive between Dana and myself, yet somehow she  managed to make it a negative which I completely do not understand I'm about in bed 24 seven with this pain, she said no one informed here of her wrong  perception , I only did about 10 times, God bless Mike

    • Posted

      Mike NY,

      I'm sorry..I guess that has been a major fault I've had for too many years. I hope we can put this behind us and go on. I can guess what's caused it but I won't get into that. It has nothing to do.with anyone on this forum and most likely nothing that anyone said. It's all me--honestly. I only hope that you and Renee can forgive me. I wish I could write a book, and I certainly don't think I've had a harder time. So many have it so much worse. I've had a wonderful life with the best, most loving parents anyone could wish for. This all started when I lost them about 5 years ago. That's all I'll say about that. I hope so much that you are both on the road to mend. Love and healing to you and all the others. Dana

    • Posted

      Dear Dana, 

      No need to ask us for forgiveness, darling - It is time to forgive yourself - this has been and still is a very confrontational journey for me - I mean the hip surgeries ... 

      you know what they say, right/ It is an inside job ...

      Be gentle and kind with yourself and have compassion with Dana -

      Know that all is well

      God bless you

      renee

       

    • Posted

      one more thing ... writing your story in a journal or something can be very therapeutic and healing -

      sending you love, light and healing

    • Posted

      dear Mike -

      See Dana's response ...

      One of the things I am practicing is to not take anything personally ... it is never about me (or you) - we hear with our own ears, see through our own eyes which is different from anyone else.

      I am so incredibly sorry for the pain you are in and sincerely wish I could help you more ... 

      you be gentle with your self too Mike ..

      God bless you 

    • Posted

      Dear Dana, I feel like we are friends,  Renée speaks highly of you ,  and so do I ,   nothing you say could change that you are a sensitive caring hurting person, ,,, everyone on this site Understands.. I have not stop caring about you remember that ,,, we are family we are in the foxhole together continue sharing put any feelings of insecurity you may feel aside ,,, peace Mike

    • Posted

      Dear Renee, thank you for pointing that out you are a special person peace Mike
    • Posted

      Mike NY,

      I am slow in getting back to posting. I haven't forgotten anyone and realize that I can twist the nicest and most sincere compliment into something that it just isn't. I have the utmost respect for you and Renee. I feel guilty about complaining so much when I read about others who have it so much worse. A lot of my complaints are compounded by other problems, and I get overwhelmed--as I'm sure everyone does. I'll post again when I get to my computer. I hope both you and Renee are getting some relief. I sincerely care about everyone and want everyone to be pain-free. I'll post later. These little letters on my phone take me forever. I think I have to correct more than I write! Your friend, Dana

    • Posted

      Dear Dana, first off if you feel  sad , or miss your family and want to say these things it's ok  l miss my wife she passed in 2006, and she was a nurse , boy could l use her TLC now  , you know for  most people in chronic pain  including myself  are effected in every area of  there life . Pain is in charge , relationships break up loneliness sets in , we say wait l must break through only to find it the same everyday, sometimes l feel if l were  paralyzed  be better off , this constant pain has a mind of its own,. My wife was 45 and a nurse when kidney cancer  took her in 06, l feel she is  absolutely with me . She was very sweet . That's how l feel , l know most things are out of our hands, it's not easy we are taught to hold tight onto everything but nothing is permanent in life .  The philosophy of Buddhism  is very real  ---detachment even from pain could temporarily bring comfort, it's the mind set really big time .  This means pamper one self into deep stretching  or create  a world that brings relief , this is a mission for me , my pain is chronic  everyday  and it hurts bad , lm seeing a spine surgeon November 7th , l pray he could help me , had a fusion in lower back in 96 , again in 98 , now l have nerve damage in spine had a EMG done a few weeks ago ...Mike

    • Posted

      Mike NY,

      I am so very sorry for the loss of your wife. I've never been married and can only try to imagine the pain and compare it to the loss of my parents. (I'm straight). I always feel like I have to through that in. I hope your appt. Will be a productive one. My appt. is Oct. 24th. I'm terrified of any injections in my back. I doubt if I let him do that. My knee is causing as much pain as my hip. I don't know why they won't address it as they know they caused the injury. I'm certain I'll get a second opinion. Mike, I can't imagine paralysis being better. Don't give up hope! Just know going in that it can be fixed. It blows my mind how much pain you're in. I hope you have someone to visit you and talk. I don't have anyone except my brother and I don't see him often although I talk on the phone to him a lot. He mowed my yard today--that's why I didn't get back to posting. I feel so depressed when he leaves that I go to bed and cry like a 3 year old. I'm so lonesome and I'm sure you know what I mean. Keep me updated and just know that healing is here and now. Again, I'm so sorry for your loss. God bless your heart. Dana

    • Posted

      Dear Dana, Gods blessing Oct 24 th.... peace be with you --Mike 
    • Posted

      Mike NY,

      Thank you Mike. The best to you at your appt., too. Dana

    • Posted

      Dear Mike, 

      I am sorry for the loss of your wife as well --- My sincere condolences -

      You are right Mike - we keep ourselves emotionally attached to so many things that we cannot change - doing our best to let go and let God ... every day I try as I am sure you and Dana are too - this causes our body to react and manifest pain ... 

      Sometimes it helps to isolate the pain you feel and talk to it ... it may sound strange and a bit out there but it helps me - it takes time, attention and compassion for your self to do this ... just try to communicate with your pain, hold it gently and soothe it ... no judgement or anything ..

      God bless you both 

      renee

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