Pain on my legs after a 10 days of ofloxacin for urinary tract infection

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Hi everybody. Please tell me your testimony. My doctor has prescribed ofloxacin foe 19 days and now I have pain on my legs and lower back when I touch or even when I am wearing or removing clothes. Symptoms started on 3rd day of medication. My doctor says it will take few days but I am reading in Internet that this can take much longer. Please advise me.

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16 Replies

  • Posted

    Some people suffer very badly with pills containing the word floxacin, i wont advise you, but in my opinion, drs know very little about the torturous life disabling damage it can cause.

    I took ciprofloxacin 5 yrs ago, and suffered with most of the side affects, i still have them so looks like i will never recover. My life is ruined, the dr does not want to know, not one word of advice

    This may not happen to you but if it does, i doubt you will get any help. I am sure that others will post on here to try and offer positive help.

     

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    • Posted

      What are your main side effects?

      In my case I also took Amiodarone and Bisoprolol so the blame is difficult to pinpoint. 

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    • Posted

      Symptoms are a kind of pain when I touch my legs'skin and when clothes touch my skin (legs and lower back).

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  • Posted

    Hi Thierry,

    You're showing signs of Adverse Reactions to a Quinolone (Ofloxacin, Ciprofloxacin, Levofloxacin, Moxifloxaxin etc).  Go to your doctor NOW with the leaflet that came with the Ofloxacin.  The leaflets warns that if there are any pains you should STOP taking the tablets.  John knows- he's been unable to do much since he took Cipro and there are thousands of other affected people with the numbers growing every day.

    Your doc is right that "this" can take much longer.  I think he means for the pill to cure whatever it was you are taking it for but in reality the pain and other symptoms it can cause you now and in the future will last for very much longer.

    The FDA in the US announced last July that they are restricting the use of all the fluoroQuinolones to serious infections where there is no alternative.  This is becasue they finally accepted that the Quins can have 'persistent and damaging side effects that may be permanently disabling'.  They are calling this damage FQAD - FluoroQuinolone Associated Disability.

    Here in Europe the EMA are conducting a review into the side effects of this class of antibiotic at the moment and they will announce their decision in August.  The UK's MHRA have indicated they think there is a problem but will do nothing until Europe says so (we're still in the EU!).  Meanwhile, since they won't do anything soon it's up to forums like this to spread the word that these ABx are evil!  Yes, they do a job but so does a flamethrower but you don't need one of those to kill a mosquito! 

    Quins are favourites with doctors as they are broad spectrum and will kill everything! This is very lazy doctoring!  Did you doc do a culture to see what bug was causing your UTI - or at least to show that you actually had a UTI in the first place?  Many people have been damaged when they didn't even had an infection to start with!  Ask your doc to put you on a safer, more appropriate  AB straight away if you still do have an infection.  

    Check out this discussion started by the moderator - it gives useful addresses plus the actual posts will be very informative for you.  There are also others under this heading.

    http://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

    (Derek's comment is regarding pills for a heart condition - many pills have effects on each other and make some side effects worse.  In the case of Quins, however, the side effects are already quite bad enough!)

    Good luck

     

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    • Posted

      Many thanks Myriam for these relevant information. Actually I took all those pills during 10 days until last sunday and I am now healed from the infection but the problem is that the pain stasted on the 3rd day of medication (weekend of 4th june) and I was thinking it was just a reaction of the infection because I was still suffering fever at that time. But now i am no longer suffering UTI but I am still feeling pain on the skin of my legs. The doctor says it will last in few days but I am afraid but most of information I am getting in Internet.
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    • Posted

      Hi Thierry,

      Your doctor is wrong!  I'm sorry to have to say it but these pains probably are from taking the Ofloxacin and will be around with you for a while yet.  You've done your research, much of what you have read will be very frightening for you but you must remember one thing - many, many people recover but it will take time.  A lot of it depends on your age, how many you took, what your health was like before you took them, your genetics and so many other variables.  

      My friend John here has suffered very badly for a long time but a lot of people find they are feeling better with less pain after a few weeks.  Go to the link I sent you before and check out the websites listed there - also read the discussions (I have just been posting on that thread as well!).  The websites will give you hints on how to help yourself like eating a good diet e.g. no crap and sugary stuff or booze as your body needs to start healing.  Do NOT take Ibuprofen or any other NSAID, or steroids e.g. predisnolone.  I don't know which country you are in but check the names for equivalents if you're not sure.

      Are you in Europe?  The EMA are currently reviewing the side effects of these drugs and will make an announcement on them in August.  You can tell your doctor about this as he probably won't know. Show him some of the evidence you have found as well.  Don't let him send you for tests as they will all come back normal.  There is no test (yet) for Quin damage!

      Good luck!

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    • Posted

      Miriam you are right and thank you for your kind advices and your knowledge about these disastrous pills. I am feeling bizarre since I took them and the pain on my skin seems to resist despite that it is now one week I stopped the pills. Fortunately the pain is not unbearable and I am able to work but in evenings I am abnormally tired. Let me wait and see.
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    • Posted

      Myriam I sent a message thanking you for your relevant advices but I am not seeing it.actually I am in Africa. Pain in my legs'skin is still there (not unbearable because I am still working). But since this morning I have diarrhea. I don't know what to tell that doctor who prescribed me that thing for 10 days.

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    • Posted

      The diarrhoea is possibly because the antibiotic will have stripped all of the bacteria from your gut - both the good and the bad (not that there was probably much bad!).  You can try taking live yoghurt or probiotic drinks or kefir  - any of these will help replace the good bacteria in your gut.  Or you can perhaps find probiotic capsules in health food shops? They not to eat too  much sugar or junk food or any food that will give your gut a hard time.  Try to eat a lot of healthy and fresh ingredients, and things that are easily digested.

      The doctor probably won't know what you are talking about if you go to him as he's been taught that side effects to Ofloxacin and the other Quinolones are very rare.  Did your pill packet have a warning leaflet in it?  I often suggest people take the leaflet to the doctor and go through it, telling the doctor which of the side effects listed they have had - or still have.  Or you could ask your doctor to look up the FDA (US food and drugs Agency) announcement of July 26th 2016 where they say about the long-lasting and dangerous side effects of these drugs are often more risky than the benefit they may give.  Other drugs are usually better and safer!

      Good luck!

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    • Posted

      Thanks Myriam. I discussed on the side effects which I have read in the leaflet with the doctor and told her about the FDA warnings I have found in Internet but as you have said she responded that this is very rare. I am going to try yogurt for my intestines.
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    • Posted

      I hope the yoghurt helps - make sure it's live though! 

      The doctor said it's rare because she's been told it's rare.  All doctors think it's rare so they rarely believe anyone who says they have side effects!  The doctors never report back to whoever the drugs authority is in your country - here it's the MHRA - so they think side effects are rare!  It's a self-perpetuating cycle. 

      Do you have a system of reporting side effects yourself?  I'm trying to encourage anyone in the UK to send in a report to MHRA so that we can get this 'rare' myth busted!

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    • Posted

      Hello, yes we have a similar institution in my country (bureau of standard for every items). I hope it will bear fruits at the end of the day if everyone reports. I am a little bit happy today because I am no longer feeling the pain on skin of my legs since yesterday and diarrhea stopped due to other antibiotics (cephalosporins).
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  • Posted

    My main" side effects", or permanent damage include: heart, digestion, eye damage, tinnitis, hazy brain,memory, tendon pain, muscle wasting, weak, tired, joints, limited walking to 20 mins, structure loss. Feeling like death warmed up as we said in the sixties in uk.

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    • Posted

      Sorry John. When did effects started? Was it during medication with quinolones or was it after (delayed effects)?
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    • Posted

      It began within 3 hrs but i ignored it because they were only harmless antibiotics. 4 months later new probs appearing including tingling legs, heart and digestion. None of them mild. However those 3 are now ok.
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