Painful Burning Sensation In Urethra - No Uti Or Std - Female

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I am a 21 year old female in the UK, and I have been suffering with a painful burning sensation which I believe to be coming from my urethra since September 2014. The pain comes and goes throughout the day, and it will be at its most intense after having urinated, and after sex. At its worst I struggle to walk. The need to urinate has increased but there is no difficulty in going, though I do now most often have two streams when urinating which sometimes will stop and start. On multiple occasions there has also been thick blood in my urine too. 

No UTIs have ever shown up on the paper dip test at my local GPs, though I have had UTIs in the past. I have tested negative to all STDs. I have had ultrasound scans which have shown nothing abnormal. I have had numerous internal examinations by doctors and one by a Gynaecologist, all have said everything looks normal and healthy.  

My GP has had me try at least 6 different types of antibiotics but none have had any effect on me, except for Cefalexin which I took once a day for 28 days, the pain felt lifted and sex was possible again, but 3-4 days after having finished my course I was back to how I was before them.   

I drink plenty of fluids (including cranberry juice) and eat healthy, I don't drink alcohol, smoke, or take drugs. All pain killers have very little effect on the pain, only a hot water bottle sat between my thighs brings any relief. Taking cranberry capsules, and/or cystitis relief sachets has had no effect. 

I am about ready to give up on my local GP, its doctors and the NHS, no matter how many appointments I make and attend no progress is ever made, no tests are ever taken and my request to be referred to a Urologist has been repeatedly turned down, I am only ever told to drink more water and to try a new antibiotic, which I pay for each time, no one seems willing to search and to find out what is causing the pain. Affording to go private is a problem for me though, and so I just hope there is someone out there who can relate to me and give me guidance/knowledge on what to do.  

This pain is now negatively affecting all aspects of my life. 

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  • Posted

    Hi smile

    This suggestion may seem a little strange and is not based off of what doctors have, or would, suggest, but is based purely on personal experience; I have had issues with it my whole life and like many of you, have received no effective help from doctors. So, I first let me say that I am not a drinker. Actually, any time I try and drink a glass of wine or a have a beer, socially or for whatever reason I may feel like having one they always end up un-drank and poured out with maybe total of two sips drank. That said, when the burning and pain flare up there is only thing I've found that provides relief....one or two beers, consumed in their entirety before allowing myself to urinate again. For me, it's not the easiest to do that, being a non drinker, but after drinking two beers as fast as I can and waiting until I really really have to pee afterwards, the burning and pain subside. I have no idea why.. I don't get an alcohol buzz so it's not that, but it does do something, and that something is the only thing that works for me. Luckily, my flare ups are sporadic now and I only have to do this several times a year, so it's not a long term solution by any means but when the pain is such that any relief, even short term would be welcomed, this does the trick. For me it's two beers, for others that may be different, and for some it may do nothing, but I hope that maybe sharing what works for me does end up providing relief to someone , somewhere, sometime smile Good luck to everyone in this discussion smile

  • Posted

    If keflex worked for you partly, you can ask your MD to upgrade that form of catagory of antibiotic and give you 2 gm of ceftriaxone IM/IV for several days which should make a difference, You will have to pick up antibiotic from hospital pharmacy, and a nurse or MD give it if IM, or an IV started if given that route. Good luck with finding an answer. Don't give up, you will over come this.

  • Posted

    I have had the same symptoms over 3 years. I see a great Gynecologist, Dr. Mike Guiler, in Lexington, KY. He diagnosed me with vulvodynia after 6 months. We tried everything possible and now starting with steroid injections, this coming Monday (ouch) but I am willing to try anything until we find something to get rid of it or to calm the symptoms down.

    Please read about vulvodynia and ask doctors if it could be a possibility.

    • Posted

      My name is Michelle the last two months I've had off/on excruciating pain radiating from my urethra. I had a transvaginal ultrasound which revealed small cysts. I saw a Urogynecologist and he took a urine test and Friday I'm supposed to get results and I'm nervous. I don't no if I have inflammation in my urethra or not? Otherwise I guess maybe a CTscan. Have you had a urethrascopy or Cystoscope. Does either one hurt? Any advice is appreciated. Thank you

    • Posted

      Hi Michelle,

      Know the feeling 😣 Had a cystoscopy 10 years ago and due to have another one in a couple of weeks. The whole procedure takes about 20/30 mins and you're completely knocked out so absolutely nothing to worry about! No pain at all. Hopefully they find the cause of your pain. Some times the procedural investigation is a treatment in itself so hopefully you get relief after the cystoscopy.

      Good luck!

  • Posted

    I had the same problem for years! I found a couple of remedies: baking soda water, Cistex, heated pad on lower back, please read explanation:

    I suffered from age 16 to 29. Doctors put me on antibiotics and pushed cranberry juice, cran supplements. I stumbled upon a thread that had suggested drinking baking soda/sodium bicarbonate mixed with water, about 1/4 tsp to 8oz water ratio. This actually helped, but a year later I developed heart burn problems. I was finally recommend a urologist, who diagnosed me with cystitis, (which cranberry anything causes the bladder to flare up bad, invoking more vaginal burning) and pumped my poor bladder with sodium bicarbonate! (That's how they treat it.)

    But here's my real relief....the urologist suggested I start an over the counter supplement called Cistex. I get it at Walmart or Walgreens or CVS. It's right next to the cranberry supplements. It works for me and it costs me $11 ! Here's the twist for me. Cystitis and IBS run hand in hand, and when I'm struggling with IBS the Cistex, though helps a bit, is 100%, I have to let my bowels run its stupid course and then all better.

    Another think that helps me is actually laying on a heated pad on my lower back. Took me years to figure that out, but it helps way more that trying to numb the south parts alone.

    Hope this was at least helpful!

  • Posted

    Sounds like you and most of the people who are replying to this suffer from candida which is an overgrowth of yeast and I'm not talking about just yeast infections...I've been suffering from this all my life and it has showed it's ugly head in more symptoms than I can count and now just recently with painful urination...I'm not a doctor of course but have done a lot of research over the years and been to a lot of doctors and found that your diet has a lot to do with the symptoms you're having....my reccommendation is to eat a high akaline/low acid diet along with cutting out most sugars and carbs because it sounds like your ph balance is off...but good luck with that because I've been trying to do this diet for almost 6 years with no luck because I'm addicted to everything I'm not supose to eat sad

  • Posted

    Hello PetalP and other Urethral Syndrome sufferers.

    I'm 53 and have suffered from what I can only assume is Urethral Syndrome on and off since my 20s.

    I looked for a forum that recognised what I was suffering with on Sunday night because the discomfort I was feeling had got so bad (I'd forgotten how painful an inflamed urethra can be).

    I can't offer a magic cure, but maybe my thoughts below will help... I looked back on my recent activity, and I could tick virtually every box for bringing on an attack – lots of sugary food and booze over the Christmas/New Year period (generally I drink alcohol, but keep sugar and bread low in my diet), sex, using a diaphragm (I am possibly the only diaphragm user left in the world!) using spermicide, coffee drinking, cycling, eating chips and a gherkin covered in vinegar, not drinking enough water or dilute liquids, drinking beer and orange juice, eating too many chocolate mints, a bath with a christmas present Bath Bomb plus getting a cold/immune system feeling low... I haven't been good at taking my vitamins and low-level anti-biotics for my skin over Christmas period because I've been away.

    These things could just be part of life but clumped together they don't help!

    I very often used to get discomfort in my urethra before my period... I'm perimenopausal now, so it's possible I'll start menstruating soon, but who knows. There is definitely a hormonal pattern to my 'urethral syndrome'.

    I never got a medical diagnosis, and got fed up of going to the doctor, so how I have self-managed is this:

    Avoid sugary things and bread/yeasty things. Avoid beer (I love beer). Avoid vinegary things (I used to love pickles, but rarely eat them now). Drink lots of water – and I confess to drinking a lot of weak tea. I maybe have one coffee a day.

    Before my period is due, I try to remember to drink water with sodium bicarb in before I go to bed. You can also drink lemon juice in water. This sounds counter-intuitive but apparently lemon juice becomes alkali in your stomach, and the point of the sodium bicarb is to make your urine more alkali rather than acid.

    If I have an attack this is what I do:

    Big glass of water with teaspoon of Bicarb or lemon juice – or just water / weak tea

    If possible, have a hot bath without toiletries

    Go to bed with a hot water bottle and listen to the radio on quietly until I fall asleep. It amazes me how the magic of comforting heat on the urethral area often takes away the pain almost instantly.

    I also sometimes use a tea-tree vaginal pessary or just put some coconut oil in my vagina. I don't know if the tea-tree helps, or it's just that having some vaseline/oil lubricating the vagina helps ease the pain and irritation. Try it!

    And on that line, I am always careful about being clean before sex and using a lot of lube. I really never want to get another dose of real bacterial cystitis ever again (I did get those in my 20s and at times through my life since).

    If it's daytime, I try to drink a big glass of water/bicarb and go for a walk to distract myself from the pain. Sitting down is not comfortable, as I'm sure you all know!

    But my attacks are nearly always late evening/night time.

    What I think are underlying causes/possible connections. I have no medical proof that my thoughts are correct. It's just what it feels like to me!

    Someone on this thread said that the urethral lining is actually skin rather than an internal body lining. If this is true, I think it's interesting, because I feel that the pain may well be caused by a kind of eczema/acne of the urethral lining – or like a kind of localised 'thrush'/candida reaction. I think the candida connection is important to think about in terms of good diet advice. Generally I don't get typical candida symptoms.

    I started getting hayfever when I was 11. It's much better as I get older. But lately I've started getting (very mild) eczema on my toes and fingers and my eyebrow. There could be a connection. I try to keep dairy produce low in my diet.

    I have also suffered in my 30s, and again now, with rosacea. I've taken oxytetracycline for the last 3 years. I take a low dose and it keeps my skin in an OK condition. If I stop taking it entirely, the rosacea comes back. I sometimes wonder if it also keeps my Urethral Syndrome under control, but no proof of that (except I haven't been good at taking the oxytetracycline and my vitamin stash over Christmas/New Year).

    Pre-menstrually (and peri/menopausally)... as well as having different hormone levels in your body, I think your immune system is likely to be lower, and any little thing that you battle with is more likely to get worse.

    I try to keep fit by doing yoga, cycling and running. I am so NOT a super-woman. I'm small and borderline over-weight. But I think exercise is important for your physical and mental health. It can be fun, too. They help me deal with stress, and Christmas and January are stressy times for me (and many others).

    I've started taking more vitamins/minerals/'healthy stuff' lately (being mindful of perimenopause). I'm rubbish at taking them regularly but this is what I sometimes stuff down my throat in the morning. I get bored just taking the lids off the pots sometimes, but I think they help.

    Vitamin B

    Propalis

    Spirulina

    Omega 3

    Evening Primrose Oil

    Vitamin A

    A post-50s mixed vitamin (I realise I'm probably double-dosing on some of this stuff).

    I think Omega 3, Vitamin B and Propalis are probably the most useful for me, but I find it hard to notice definite, rapid changes.

    If I'm feeling low in the winter, I sometimes take 5HTP and/or St Johns Wort capsules.

    If the Urethral Syndrome continues, I will look into getting a locally applied HRT/oestrogen cream prescribed.

    I don't know if my post will be helpful, but I think it's good that this forum is here for the poor women who suffer this ghastly complaint to give each other moral support and share ideas, and I assume that medical professions keep an eye on the discussions and it may be possible to make links and connections between different women's symptoms.

    I'm curious to hear other people's responses. I've just read on this thread that long-term low-level anti-biotics might help U.S.

    I remember too many nights sitting on the loo feeling cold and miserable wondering whether I was the only person in the world suffering from such a petty but all encompassing pain. It was horrible having to re-visit the experience on Sunday night! I hope this forum and other people's experiences help you, PetalP, and others on this list.

    • Posted

      well urethra syndrome one of my urologists told me that it is painful ( i have an irritation in bladder and when dehydrated a burning feeling in urethra that goes away after i drink water but sometimes it seems pretty psychological cause it can go away right when ill drink water before it can go in bladder other times it needs to go in bladder first) after a uti it went away and now after a uti is back all doctors tell me it is from stress cause i obsess about it not pain just a throbbing a discomfort sometimes a feeling in urethra (3 urolog. my pagthologist agrees ...so he told me i dont have urethra syndrome cause it has a lot of pain but they actually give antidepressives for that cause it psychological..look that up with a doctor...
    • Posted

      Because the pain is so bad when it starts, and it reminds me of the misery of previous attacks, I tense up. I know I do it. It's really hard not to.

      Using the hot water bottle is a really good way to relax again, and be distracted from the pain, which then reduces in intensity.

  • Posted

    Hello, although I am no Dr. I do have the some Med background. Have you seen a GYN? They need to check your Urethra.  Sometimes part of the Urethra comes out or a small growth appears near the opening of the Urethra. Some have symptoms, others don't and are just lucky to find it. They usually just burn it off.  Hope this helps

  • Posted

    I had/have the exact same problem sine I was 16 ..I'm 23 now. I thought it might have been a uti but the pain comes and goes generally starting after I pee.. The only thing that has worked (I've tried at least 10 antibiotics in the past) is drinking baking soda and water mixed. It might sound gross but try it! It's literally saved me

    • Posted

      How many times in a day have to take baking soda with water
    • Posted

      Just whenever I feel a burning sensation. And keep drinking the mixture on a bearable level till the pain goes away. Google it it really works

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