Palpitations / high heart rate after getting up from bed in the morning :(

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i am 31 years old female. hi i have been struggling with high heart rate and palpitations which comes out of the blue when i get up from bed in the morning. my heart rate goes up...doing between 125-146 bpm. gets lower when i sit down and increases with standing and little walk . as the day progresses i can walk 2-3 kms without any issues but do get palpitations while sitting/watching tv/working on computer.

?sometimes when i am out with friends or at work i get palipitations for no reason pushing my heart rate upto 156bpm with little dizziness and goes away by the time i call ambulance..

this issue has completely taken over my life...

i don't know if it is related or not i do chest pains mostly all day which gets worse when i hold my breathe in, twist, stretch.

have told my GP he keeps putting thing on to panic disorder...

?yesterday called ambulance, they picked my heart rate as 146bpm n by the time they did ecg it came down to 125bpm with sinus tachycardia on ecg.

?i have seen 3 cardiologists - 2 in december 2016 and 1 in feb 2017, had 3 stress tests, echos and numerous ecgs with NORMAL results...

3 holtors so far picking up sinus tachycardia n occasional sinus arrythimia. but i have had no issues while wearing monitor

?started with panic attacks which got worse n worse with time ending up having palpitations..

?sometimes palpitations makes me have a bowel movements .. don't know if its related..

?my thyriod, blood works, lipids are NORMAL with no issue. no electrolyte abnormalities.. B12 is high

can anybody ANY HELP please.. i am so desperate for help.. can anyone tell what can be causing this...........

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  • Posted

    Thanks everyone for your replies.

    I can’t figure out why this doesn’t happen when I go abroad. I’ve been in Thailand for 3 weeks and no issues whatsoever.

    I’m sure it’s a food sensitivity or something that’s affecting my vagus nerve maybe? 

    I do have IBS and am really bloated at the moment. Do you think there’s a link?

    • Posted

      i have food senstivity n IBS so thats in common
  • Posted

    Hi Mandy,

    Have you tried cutting out dairy or going low FODMAP?

  • Posted

    Hello, 

    These symptoms are so debilatating. If im feeling fine and all of a sudden i feel a flutter/palpitation, it changes my whole mood. Sometimes im scared to even move as i dont want it to accelerate my heart rate. Im supposed to travel next week and I get nervous thinking I’ll have an SVT episode(sudden very fast heart rate), almost makes me not want to go. 

  • Edited

    Hello,

    Is anyone still using this forum? I am having the same issues and I'm so over trying to find the cause and a remedy. I'm 34 years old. I've been to ER 5 times with blood work and EKG'S, Chest Xrays, CT scan for blood clots, Blood work with my GP, Echocardiogram, two 24 hours holter monitors with 2 different cardiologists and EVERYTHING has come back normal besides palpitations and IST. I was taking Metoprolol in July, it worked but it made me really tired, Dilitzem didn't do the job for me and my last episode last Tuesday I was on Ivabradine and I think my episodes was a side effect from the medication. Now, I'm on nothing has my GP told me to stop taking it because of my last episode while I was at work. She says my heart is fine but now she thinks I have anxiety. I thought I wouldn't be able to function without a medication helping with my heart rate, but surprisingly I'm doing ok with just 1 or 2 episodes a day that goes away in a few minutes. Sometimes I feel light headed and tingling/heaviness feeling in my legs in the morning. Has anyone been diagnosed? Any suggestions? Anything will help.

    • Edited

      hey, yes well mine is due to pre-longed stress. i use yoga and good thoughts through out the days, and eventually it has a good effect. i am on atenolol for the 140 plus beats per min when i have bad dreams. ive never had atrial fib etc, but it feel like it sometimes.... try yoga and stress free life for 6 months, you will be amazed at what can benefit the heart over time. oh and cut back on salt if your a salt person, and sugar does not help! hooe this helps 😃

  • Posted

    I have had issues with waking during the night and getting palpitations/irregular beats for the past couple of years. I have had 24hr monitors, ECG, echocardiogram, been on beta blockers, etc. I do, apparently have a slight mitral valve reflux, but they say that is not causing any issues and is nothing to worry about. I had terrible side effects from the recent beta blockers I was prescribed, so I weaned off them, although I had only been taking them for two months (they weren't helping anyway).

    A few days ago, something came to mind about problems with being near and using wi-fi. Our wi-fi router was less than a metre away from my right side, and we use that for watching TV via an Android box, so it is on and transmitting all the time. I thought I would try moving the box to the other side of the room, and lo and behold, I have had four nights without palps/irregular beats! I actually feel like a new person these past few days, and whether it is coincidence or not, if it works I am sticking with it!

    Perhaps this is why some of you are OK when you are on holiday - there is not as much wi-fi frequency around. Worth a try.

  • Posted

    Ok, bare with me here.. I am going to take you down the rabbit hole a little bit....but I am VERY curious at this time... How many of you take a multivitamin??

    Here is my story!

    I am 32 y f. I quit smoking in October of 2017. By December 25, 2017, I had everything... heart palpitations, dizziness, weakness, general malaise, near fainting, chest pains, shortness of breath, nausea, constipation, diarrhea, insomnia.. you name it. I've had about 10 EKG's, 2 Echos, in and out of the hospital more times than I can count. ER visits, rapid heart rates.. I'd be sitting and watching TV or laying down to go to bed and my heart would just start speeding up and I'd hit 140, 160, 180, and once hit 200 bpm. Like you, sometimes my palpitations would make me have a bowel movement and things would return to normal shortly after. My doctor said nothing appeared to be wrong and said everything points to anxiety or depression... I said I do NOT have anxiety or depression.. now my doctor has known me since I was a child and agreed that I do not seem like an anxious or depressed person, but that he didn't know what else it could be as all my symptoms pointed to that. Then I hit an insomnia stage.. I couldn't sleep.. AT ALL. I hit almost 5 days straight of no sleep and was rushed to ER and given lorazepam to calm me down and to help me sleep. I felt SO out of it. A couple days later I was then given Mirtazapine to help with my continous insomnia and to help treat anxiety/depression. I took this with the understanding that if I got better, I'd have to accept that it was anxiety and/or depression. Turns out that medication made my hands and feet twist, shake and seize every 20 seconds for 12 hours (i've later found out that this is called dystonia and is a very rare side effect). I immediately quit taking any medications and continued on my bizarre health path. At this point from all the unexplained things happening to me I was convinced that I was GOING TO become depressed and anxious, as all of these things kept happening with no reason!!! All my tests came back negative. I'm not celiac, I do not have a thyroid problem, I am not diabetic, etc.. I was finally sent to see a cardiologist. He did all the tests too and all came back normal and FAR from diagnosing me with anything.. said I was not even close on the scales to having any legit medical issues, that my heart is healthy and strong and that whatever was making my heart speed up the way it was, was not due to a heart issue but a unknown secondary reason -- perhaps hormone related.

    Now, the reason I asked about the multivitamin.. when I decided to quit smoking, my doctor urged me to take a multivitamin, as he said it is normal for my levels to swing a bit in the first few months of quitting.. The day I quit smoking, I started taking the multivitamin as per his instruction. Fast forward 1 year to November 2018.. still taking this pill every morning... and still having extreme issues almost rendering me useless for living. It's Saturday. I normally wake up around 6am, but I slept in until around 10 am. I get up and continue with my day and surprisingly I feel refreshed and almost dare I say..normal!! It reaches 3 pm before I realize, crap! I forgot my multivitamin.. within an hour of taking it, I'm back to my swinging heart rates and regular "ill" feelings. Sunday, again, I slept in and forgot the multivitamin. I feel great, and normal like I had the previous day.. I take the multivitamin and bam! all the feelings are back. So needless to say, I put two and two together and quit taking the multivitamin to see what would happen. I'm not kidding you when I say I haven't had any "issues" since I quit taking it! I have spurts now when I walk a short distance and my heart rate will spike to 110 or even up to 120 bpm sometimes, but I am trumping that up to being pretty deconditioned from spending the last year in a chair or in bed doing breathing exercises for "anxiety" to keep myself functioning... haha!! I laugh about it now, because it seems so ridiculous that I may have wasted an entire year of my life being on what felt like my death bed all because I was "trying to be healthy".

    The truly interesting part is that I've become a little obsessed with finding out WHAT was in that multivitamin that caused all these issues if it was in fact that pill... so far with trial and error, I've narrowed it down to FD&C Red No. 40 food coloring. Numerous articles that I have read suggest that food coloring has the potential to do these types of things. I couldn't eat fast foods, or carbs or basically anything that was not vegetables or chicken.. turns out Red No. 40 is common in foods and medications and in anything with a pink, red, or orange tinges.. so some breads have it, etc..

    I almost gave up on finding answers, as it seemed like there were none and I prepared myself that this was going to be my new normal and that I'd never feel like myself ever again. Then one day, it just hit me! I just couldn't settle with that! There is a reason that things happen to people, everyone is made differently and we just need to figure out what those reasons are so we can get back to living a normal life!!! I understand that with some of you, it may not be as cut and dry as being allergic to something and may be a legit heart problem or other issue.. but never give up advocating for yourself!! Do not accept living in the dark because other people think nothing is wrong. You know yourself better than anyone else, and do not believe the easy diagnosis of anxiety if you feel that really just doesn't fit.

  • Posted

    hey mandy, im feeling your pain of the trauma you feel as ive been all through this.

    well ive experianced your situation and i was diagnosed with IBS - panic disorder..

    its a cycle, so once it starts its like you have trained your body into something every morning. it took me over 2 years to realise this. i had multible times of diagnosing myself from heart attack to food related to blood problems etc... was not fun i tell you. but alcohol, chocolate, stress and fruit (yes fruit weird triggered my IBS and stomach pains. i had every test in the world from ciliac to blood test to heart and even bone tests and zilch nothing. so the only way i cope is taking magnesium tablets and i have a eating plan. try vitamin B and magnesium, also try some breathing excersices, breath out through ur lips coursed slowly, its all worth a go. i hope this helps 😃 good luck

  • Posted

    One other consideration of which I've become aware recently: wireless radiation can cause heart irregularities. Dr. Martin Pall's discovery that voltage gated calcium channels are activated by wireless radiation used in WiFi, cell phones, smart meters, etc., releasing calcium ions when they aren't supposed to which can interfere with heart rhythm. A friend of mine who was abroad for 3 months used his Fitbit watch to monitor his heart and noticed upon returning home that his resting heart rate each morning was gradually increasing for no reason since his return. I mentioned the WiFi to him and he realized he had his router right next to the bed. He moved it to a far away place in his house, and now his morning heart rate has been gradually coming back down! So one more thing to consider!

  • Posted

    look up Postural orthostatic tachycardia syndrome most doctors dont really know about just yet

  • Posted

    I am having same issue at age 47 for a few years. I do have some health issues, like blood clots, DVT/PE's in past and on blood thinners now for life. I woke up one night in 2017 in AFIB, mostly due to sleep apnea, which is now controlled by CPAP machine.

    But I've always suffered from these steange "panic" attacks for years. They can trigger when I wake up from sleep and STRETCH MY LEGS while laying down. I'll get a massive attack for some reason.

    Up until recently they were gone. But occassionally I get a massive one. I feel impending doom, like I'm going to pass out, a surge of adrenaline, and heart rate can speed up to 130+. Sometimes the feeling is gone in a few minutes. Other times it makes me feel tired in my chest across my heart and the feeling of tiredness and another impending attack last for an hour or more. Sometimes my whole day is ruined due to feeling like crap after one attack.

    Doctors all point to panic disorder. But I still think something else is going on. Why would stretching legs in the morning cause a surge of adrenaline and panic?

  • Posted

    I'm not sure if any of you have received answers yet, but I have had the same issue for many years.

    Many Many doctors later and I have finally been diagnosed with Dysautonomia. My heart races upon standing every morning or after a nap. palpitations and constant fatigue. I have been on beta blockers for a long time to help keep my heart rate down. My heart still increases anywhere from 30-45bpm after getting out of bed for approx 10 min then settles back down to high 80-90's.

    Dysautonomia is a dysfunction of the autonomic nervous system. Many with this disorder have pots, where I do not as my blood pressure does not go down upon standing. It's taken about 18 yrs to get this diagnosis.

    • Posted

      Hi @raelene36077. Thanks for your post. What is the treatment for Dysautonomia? Is this a disorder that can be managed well? Thanks!

    • Posted

      Hi, I see that your message is the most recent so i want to ask you if youve figured out how to manage these horrible symptoms. Ive been dealing with this since i had surgery and its taking over my life.

    • Posted

      Hi, mine is being managed with Bisoprolol betta blockers. I would suggest asking to see a cardiologist in regards to your symptoms or an Autonomic Specialist.

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