Perimenopause and SEVERE joint pain - any one else??
Posted , 512 users are following.
Hi
I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.
Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.
I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!
However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.
Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!
I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.
I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.
I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !
So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???
Lesley.
85 likes, 1485 replies
Lesley998
Posted
You could be describing me two years a go. I was EXACTLY the same as you. Same pain in arm, developed into a frozen shoulder. All other tendons were agony. i was terrified.
It will pass...it takes a while but it IS related to menopause, please try not to worry.
beth82334 Lesley998
Posted
It has been the not knowing that drives me insane. Doctors know very little and I am always dissappointed when I go. I am glad to read everyones experiences. It is helping me~thanks!!
sheryl37154
Posted
I seem to have touched a sore point with you. I did refer back to my books on menopause written by drs who have made menopause their speciality and there was no mention of joint pain let alone frozen shoulder. There was reference to fibromyalgia, and fibromyalgia is a symptom of Haemochromatosis, and it may never pass, it could just get worse and worse without treatment.
I had asked others who had been through/going through menopause if they suffered joint pain and they said no. I suffered severe joint and muscle pain for years after an early hysterectomy even though I was taking HRT, and it turned out to be undiagnosed Haemochromatosis. Iron was loading up in my joints and muscles because I had stopped menstruating. You are living in the land of a high prevalence of Haemocromatosis.
Ask your dr to tell you what is really causing it then if ALL blood tests say you are ok? Usually drs don't do ALL blood tests. Do you know what your Iron Studies levels are, what levels your pituitary gland hormone s are, what your C-Reactive protein is? Push and search or you may be sorry later.
I have not seen your factual information - are you a dr? You do not say so. I could drown you in factual information but it would be boring. Please don't attack people who are responding to these posts, as it will put others off from responding.
lisa326
Posted
helen16248
Posted
Just wondering if you are indeed a doctor!
I am not a doctor or in any way involved in the medical profession. I am a normal working class mother who is going through the menopause
But I can tell you this Sheryl. I have spoken with dozens of women including my own mother who have either been through or are going through the men/peri and have had/having the same joint pain as described.
I do not think it would take an Einstein to work out the fact that the pain must be related to peri/meno!
Good on you or any other women who has went through without having to put up with this nightmare. But please understand the way we are feeling...
Justme7
Posted
Lesley998
Posted
As the OP of this thread, I did state right at the start that I am not a doctor.
victoria130
Posted
I think the point of this highly successful discussion forum is to allow ladies to share information that is difficult for medical practitioners to label so that they can help themselves. It has greatly helped me and others seem to be terribly pleased they found this discussion too. I am coming out of the menopause slowly now and my joint pain is starting to diminish and my energy levels are coming back.
This discussion helped me to appreciate what was 'wrong' with me and helped me to manage it better.
Thank you ladies to all those who have done what doctors could not do.
sheryl37154
Posted
I counsel people with the same problems. As I am an official coordinator of a support group, I consult personally with drs and specialists for their perspective and knowledge to take back to the group.
The nature of these posts attracts those people with the same problems, but instead of insisting that their problem is normal because so many are posting about it, we should be opening our minds to other answers.
If I have interested someone in seeking help for other causes of their pain (as an outcome of estrogen depletion and loss of menstruation, which is the key factor in this symptom) then it has been worthwhile. We do not have to suffer menopause symptoms that our mothers' did because knowledge was so low then, and it was expected that they had to put up with it then.
But often we have to push our drs for other tests, as there is still the ingrained attitude, that we have to just put up with it, like our mothers' did. May be there is comfort in that for some, but not for me and not for many others whose health was destroyed by so-called normal menopause symptoms.
We can agree to think differently rather than 'scrap' about it, so I will leave you to it.
Susan
Posted
Briefly, I am 53, had my last period last October which has coincided with the most awful painful elbows, knees and bottom of left thumb joint.. have tried different physic/massages and nothing has cured it. My doctor put me on Vitamin D3, which I have taken for six weeks with no improvement in my aches and pains.
Last week I was in floods of tears as it was so painful to get myself up the stairs at the library because there was only one handrail and I hadn't realised that at home I had been kind of supporting myself with both bannisters to get up and down the stairs. This event prompted me to go to the docs again..
I have had every blood test appropriate for my symptoms, latest one was one for muscle damage - everything has come back clear and in good order.
I have been a keen exerciser for many years and have lost 5+ stone in the last decade, I love being active and now that has pretty much been taken away from me I feel sooooooooo low and depressed, my hormones are all over the place, even cried at an advert the other day :-( feel like I am going crazy, paranoid, worrying about myself and everyone else - I said to the doc this morning that my mind needs a rest, there is no let up at the moment for me.
His latest route he wants to go down is HRT, I do suffer with atrial fibrillation at times and I also have an under active thyroid for the last 20 years, just about manageable with thyroxine. He is consulting other colleagues about HRT for me, it would be on a trial basis to see if it makes any difference to my symptoms, if it does I will stay on it, if not I will stop.
This thread has to be the most reassuring I have come across that I am not alone in this awful symptom, I thank you for that and look forward to conversing with you and sharing how I get on and if anything works.. meanwhile I am going to research Macca Root.
Thanks ladies.
helen16248
Posted
Besides this horrible joint pains has anyone been suffering from male pattern baldness?
I swear I am starting to resemble my husband more and more each day ... and that is no joke!
Also I am feeling more aggressive and stubborn than usual ...
Anyone else?
beth82334 helen16248
Posted
BellaRubia helen16248
Posted
i hope Hape helped.
polgara27
Posted
I read this with much interest. I am amazed at how many doctors are putting women on HRT. It's proven to be bad for you, along with birth control (in all forms).
I use Vitex (chasteberry) and Maca (a Peruvian vegetable) to help me with my perimenopause. These are all natural with no side effects. I do have occassional aches and pains but nothing compared to when I am not using them. I also take MenoSleep tablets at night that have chinese herbs to relax me and stop night sweats.
After living a nightmare with the Mirena IUD and having silicone poisoning from it, I will never again have artificial man made sinthetic hormones.
Good luck ladies, but natural is the way to go.
Sandy07
Posted