Perimenopause and SEVERE joint pain - any one else??
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Hi
I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.
Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.
I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!
However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.
Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!
I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.
I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.
I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !
So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???
Lesley.
85 likes, 1485 replies
LMHO Lesley998
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alison_94436 LMHO
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You are not imagining it.
Good luck
terri16632 Lesley998
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Hi. Hopefully, in sharing my journey, it will help someone. I'm 53 and have been really healthy until about a year and a half ago. First the clicking started. My hips would click every time I moved. It was so noisy, it was embarrassing. Gradually it spread to my wrists, my knees. Next my right foot would tingle. My left shoulder ached constantly. Varying aches and pains in my arms, joints, legs, you name it. Sometimes in my toes. Constant neck pain. And the muscle spasms. My back would spasm so bad I couldn't walk for days. So I started with the doctors - the general practitioner who did blood work. My enzymes were through the roof. AST 957/ALT 1194. They thought I was a raging alcoholic and that my liver was damaged and wondered how I was still walking. Had an ultrasound, nothing wrong there. Figured it was muscle enzymes and they were "leaking." I was told to stop exercising. What?? Working out caused the levels to rise further so my numbers were always outrageous! So I was referred to a rheumatogist. They ran more tests. MRIs on my arms, xrays of my neck and back, nerve specialist. Nothing. No lyme, no arthritis, no fibromyalgia. So the prednisone and plaquenil started to get the enzymes under control. After 8 months of plaquenil and prednisone, the blood work looked better but I still felt like garbage. (At one point, they put me on Azathioprine (Imuran) which was awful. My muscle spasms got worse and I couldn't walk for over a week. Watch if you are prescribed this stuff. It can be bad!) Still tired, weak muscles, painful walking, standing. I thought I'd have to go on disability because I have a desk job and I couldn't sit down for more than 10 minutes at a time. My rheumatologist diagnosed my condition as Myositis (which I had never heard of), and which presents as muscle infllammation among other things. All last year, I thought I had Myositis and was resigned to a lifetime of watching everything I consumed for fear of flare ups. Do I go gluten-free, paleo diet? On and on. I visited three chiropractors. Each one had a different method and the one that helped the most was the one who told me which vitamins and supplements to take. In all honesty, those haven't helped me to feel better but they opened my eyes to alternatives. A few months ago, I wanted to get off the meds because they just weren't helping so I was finally weaned off the prednisone. At my last rheumy visit, I was informed that my blood work was normal and that my myositis was gone! Surprise to me! I still felt the same and I was told myositis was incurable. Huh?? You must have arthritis!! I almost yelled at the poor doctor. I felt bad and kept apologizing to the poor girl. Last year I didn't have arthritis, now I do because you don't know what it going on? I started taking Move Free Ultra (a variation of the Glucosamine / Chondroitin supplements they sell). I've been on that for 5 weeks. I joined a gym. I started going 3 to 4 days a week. Then I woke up with a muscle spasm and couldn't walk for 2 days. DIdn't do anything but sleep! So I started researching again. I came across this post (and I'm SO glad I did) and I thought it could all be estrogen related. I might be magnesium deficient because of the muscle spasms and nerve tingling. Everywhere I turned, magnesium was being discussed. So I started a calcium/magnesium supplement. The calcium I was originally taking didn't contain any magnesium so it seemed as if it was actually depleting whatever little magnesium I had. I purchased Magnesium Lotion. Next I turned to the possibility that I am simply going through perimenopause. My cycles are out of control. No hot flashes or night sweats or anything typical but cycles are as close as 2 weeks apart some months. So I researched wild yam. I started on Mexican Wild Yam about 2 weeks ago. I am feeling SO much better. I am not fighting sleep on my way home from work any longer. The clicking is gone! My neck pain is about 60% better and the joint pain is at least 80% better. The left shoulder pain is still there but my range of motion has improved. By the way, I emailed my rheumatologist and asked her to add the magnesium test to my next round of scheduled blood work and it came back as 1.7 (normal is 1.6-2.6). That's 2 weeks after I began the magnesium so I don't know what it was before! For the record, I take Centrum Silver 50+, Vitamin D3, Vitamin B12 and Iron (because I'm anemic when I don't) as well. I need all those vitamins and my blood work reflects that but the only actual changes I have felt -- and they are major -- started 2 weeks after I started the Wild Yam and Magnesium. I'm going to see a new gynecologist to have a chat about menopause in 2 weeks (my usual gyn is having a baby and home on bed rest (ugh!)) but I am hopeful that the Wild Yam works and I won't have to do estrogen testing since from what I've read, it seems to be so random and unreliable unless you get lucky with the right doctor. I'm optomistic and really hope to be able to exercise without restraint again and wake up without worrying about what will hurt today.
Carolmayhew6 terri16632
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I have had excruitiating pain since feb in both knees MRI showed degenerative changes n arthritis OMG it's been horrendous unable to walk for nearly 3weeks saw orthopedic who said it's arthritis but if I can't cope with the pain he would do keyhole to see what was what I put up with it for 4 weeks till I couldn't put up anymore I'm 15 days post op on my left knee that I had arthoroscopy on n ligement n meniscus torn both repaired but told knee isn't in gud condition ?? Will need new knee if symptoms persist like yu I started to take calcium with magnesium n I have found a slight difference I also had the easy move but didn't find a change with those my vitD was deficient n I have had course if 14 days tablets n now 1 a month I've felt awful really anxious fatigued n ache in parts I didn't know I had what is the wild yam yu say your taking
My gp commenced me on citalompram 2weeks after trying HRT but it gave me a morning sickness type feeling so citalompram was given for anxiety n is helping I also take multi vitA-Z n an effervescent vit simular to borroca
Hope yu stay well n thanks for sharing your probs my right knee is aching n the left which is the operated 1 but told it can be 4-7 weeks recovery so I need wait n hope it settles
terri16632 Carolmayhew6
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Hi, I know aching knees are so hard to deal with. You have to wonder if any of it can be relieved naturally. I'm taking Mexican Wild Yams 2 tablets daily-500 mg each. I'm in the US but the ingredients are simply Wild Yam(MEXICAN)(Dioscorea Villosa)(Root). Have you had your magnesium level checked? So many aches are related to that deficiency. When my joints ache, I rub some magnesium lotion on and it really makes a difference.
shaznay96184 terri16632
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Now I know why I self-diagnose and medicate!!:-)
Fortunately. I've been very well throughout my 54yrs, rarely ill, never take meds (other then antibiotics occasionally) and have inherited a 'just get on with it'-attitude from my dear late mum.x
But nothing really prepares us for the onslaught of Peri/Menopause!!
At the end of last year I too ached like crazy, 'clicked' as loud a
s you did (!) and felt totally fatigued. So went to my GP, saw the Nurse Practitioner who only heard my (silly I now know!) ref t
o being a little tearful watching a TV prog, so she decided my route through Peri should be that of SSRIs!!! Funny as I hadn't s
aid I was anxious, depressed, unable to cope etc. She was hellbent on me riding it out with nothing but the happy pills! Not for me, ta. I heard what she said about just 'deferring' symptoms while on HRT, but who cares about that when you're 54, think about sex, but can't be bothered to even try it??! I couldn't see myself getting through this without anything, reaching 60 and then wanting to have a sex life.....by which time my ol' man wo
uldn't be able to, after me giving him yrs of knockbacks!!! Life's too short etc......!
She managed to get me to have a blood test for Vit D levels: big deal - I think the world and 'her' wife are lacking that!
Didn't get the SSRIs. Bought myself some Vit D supplements,
and then thought it was time I informed myself of whats in story - and found this wonderful forum:-)
As a N.Y. Resolution I decided to re-try some Bioidentical Progesterone Cream and a good vit/min supplement, Menopace Original. Result: within a very short time I felt 100% better! The aches (namely left shoulder/elbow/sometimes neck/shoulder blades) the tingling pins n' needles and the 'restless legs' are all so much better. Not quite up to swinging from the chandelier, but I'll get there.....again!
Up until this month I have had Periods as regular as clockwork, so am very excited to have my first ever disrupted/missed Period. WHAAHAY!!!:-) only another 12 of them and I can say I'm officially menopausal!
Judging by the level of info you have about your tests, I'm assuming you're from the US?
As great as our NHS in the UK can be, its not so great about addressing mundain stuff like Peri etc. Just can't imagine my GP
s wasting their budget sending me for bloods/scans/consultant appointments.
Think because I've never really been ill, I don't understand others who seem to go for run-of-the-mill, obvious ailments. Besides I can buy a cure for anything from haemorroids to conjunctivitis at the local Asda!!!
I'm glad you feel free from your discomfort by addressing your hormones/vit levels. I find it amazing how much better I feel fo
r taking SOMETHING. I know lots of women credit SSRIs with sorting them out mentally, and that's great: I just don't think they're for me right now. I feel fine with my moods etc. I've always
been hot-headed/reactionary and like it! For me the worse symptoms have defo been the physical ones.
I'm probably my own worse enemy, and my lack of confidence in the medical profession will be my downfall, but I really don't think I've got to the stage yet where I need too much else to he
lp.
But, and its a big but, when I can't stand it any longer and my self-help is no longer working for me, I'll be hot-footing it down to my GP demanding all sorts, not least conventional HRT, like any good, hypocrite would do:-) :-) :-) !!!!
Keep smiling and laughing- its a great distraction from all the cr*p we're having to endure :-)
Sx
PS - I use a Magnesium spray for aches after gardening etc. Brilliant stuff!
barbara49965 terri16632
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Carolmayhew6 terri16632
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Yes I saw your reply in general discussion
Ooooh to spray I may give it a try x
alison_94436 shaznay96184
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Me all over
Must get the spray
And all power to ya
I,making to my G.P and ask for some tests to see where I,m low, see what happens :-S
terri16632 Lesley998
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corrine32651 Lesley998
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lenie95046 Lesley998
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alison_94436 Lesley998
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Yes me, I am just starting with these symptoms.
I,m in lots of pain everyday, through the night, in the morning.
My arms neck back hip feet, you name it, feel like I,m in the gym everyday.
Nit been to the docs with this yet.
I had a cyst in my right breast about a month or 2 ago, which was a relief but after that I got this onset of body pain
Starting on my right side, foot hip, shoulder, podiatrist said I,m shorter on the right leg, doc says not related to eachother.
It,s got gradually more painful and spreading.
Yours is the first thread I,ve found.
Thought I might have Lupus.
Now I know it,s qll part of the menopause.
I will nip and see the doctor though.
So you have an allie regretfully :-)
catherine70562 Lesley998
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I just found this site and I am you. Please have you found relief and if so what have you done.
Suemops Lesley998
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More recently, I woke up with a sore and stiff left wrist. This was so painful! In fact it was so excruciating that I had to leave work to see a doctor. He checked my uric acid levels to check for gout. My levels came back within the normal range, 5.9.
This entire year, each morning I have woken up stiff and sore! I have not been told that I am perimenapausal...but at this age I suspect that I am. However, last year during my yearly, my obgyn told me that my estrogen levels were decreasing. Your symptoms are almost identical to what I experience. I am so glad that you shared your experience with the rest of us silently suffering women. Now, I can ask my physician the RIGHT questions!