Perimenopause and SEVERE joint pain - any one else??

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Hi

I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.

Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.

I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!

However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.

Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!

I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.

I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.

I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !

So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???

Lesley.

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  • Posted

    Try progesterone cream I have and omg the benefits are actually amazing. I started the hot flush a year ago and within months of the first was a walking fountain if I didn't work from home I would have had to have stopped working. I then progressed to the joint pain all over body including the jaw, sit down for a few mins and struggle to move felt like a 90year old. My neck still clicks loudly at times and my hands can hurt like hell but the cream I use seriously it is remarkable the difference it has made to me is fantastic its expensive from my point of view and I was a sceptic till I was so at the point of despair I just went for it. Progesterone cream is brilliant go for a good quality one and try it for yourself.

    I brought 1 jar out of desperation I now buy packs of 4. My peri came in like a steam train and now its like a fiat 500.

    • Posted

      Hello, I'm happy to hear You Are feeling relief from the cream. I will start with the cream again and stay in it.

      Thanks!

  • Posted

    Hi Lesley

    I was so glad to stumble upon your post. I have been experiencing joint pain which came on literally overnight. Like you visited a young female GP and was told ‘old age’  (I’m 54) and prior to joint problems , exercised regularly and I am on HRT but doesn’t appear to be helping to alleviate my symptoms. I was wondering what treatment you have since received?

    • Posted

      Hi there just reading everyones post, Im 52 this year in peri since i turned 50, what a nightmare, just after my 50th birthday i woke up with such a bad back and indigestion type symptoms, went to docs then xray, then physio, no mention of menopause, then last august, one day my knee just swelled up, after seeing 4 doctors who said it was sprained i was sent for xray, which camd back as mild arthritis, again saw physio who said arthriris was so mild it was normal! Did excercises then ankle swelled up, now yesturday my other knee swelled up. I ask doctors whether its hormone related and all they do is smile at me! Ive also had metallic taste in mouth, crawly skin, post nasel drip, panic attacks, like morning sickness, mucas throat, no many hot flushes, heart palpations, forgetfulness, dizzy, no libido. I cant take hrt, and ive a cupboard full of vitamins, which dont work, My mum has rhumatoid arthritis and i wonder whether i gave this, all i want is for someone to say dont worry you will be ok. I have a 13 year old daughter to look after,sometimes reading these posts are the only thing that gives me hope, is there light at the end?
    • Posted

      Hi Louise, I posted a few days ago too, which is why I was alerted when you commented on the thread. I am at the beginning of my journey (aching joints, indigestion, mood sensitivity) and was also wondering how long the process might last. I'm hoping someone who posted 5 years or so ago will respond again saying they are back to normal!! Hang in there, stay positive, nothing ever stays the same and normal service will be resumed! 🤗

    • Posted

      Hi there,

      Thanks for your reply, I went back to docs yesturday as my original one swollen knee has developed into a swollen ankle and two swollen knees and I can hardly walk. The doctor was the 1st one that actually even looked at my knees, and she informed me that I have actually got muscle wastage in my thighs and calf, so i have to have a lot of pyshio and that I do gave perimenopause arthritis/tendonitis and she said I will settle but could take one or two years! I never realised I would be like this, I have to take pain killers lots of physio and am trying devils claw herbal treatment. I hope you get on well. All the best

  • Posted

    Hi Lesley. Sorry, I know that your post was a long time ago now, but it was very interesting and the only thing I've managed to find which describes some of my symptoms, so I was wondering how you are now.

    My story so far. 3 years ago I started having a strange taste in my mouth and some dryness. Nothing improved it and I couldn't work out what was causing it. I went to the hospital to have it checked and they just said that it was dryness and it happens some times. It's still there - sometimes it's worse, but it never goes away.

    I had 3 Mirena coils one after the other - a total of 16 years and never really had periods over that time. I had it taken out in May this year (when I was 51). I had a period in Sept and one 3 weeks later, but nothing since.

    I've had aches in one of my sacroilliac joints for a few years - gardening/running caused the problem, but it would always go away if I rested it. Over the last year, it's got worse and never really settled totally, but wasn't at all bad. I can't quite remember when, but probably in August or Sept of this year my spine started cracking. It was worse in the lumbar area, but would go up the spine to. It seemed to be worse when a bent towards the side of my bad SI joint. About 6 weeks ago I started getting cracking in other joints too - ankes, wrists, knees, shoulders, neck. So I decided to go to a chiropractor. He said that my SI joint was pretty immobile and so the rest of my spine was hypermobile. I went to see him 3 times and each time he tried to crack the SI joint. On the last visit it made a real cracking sound and was pretty painful afterwards. That was about 3 weeks ago. I went back to see him to say it was all getting worse - more painful and that the lumbar spine was now starting to hurt and I could feel the vertebrae catching on each other. He sent me for an xray and it seems that I have a slipped L5 vertebrae - called splondylothesis. He said to go back and see him in the new year to discuss the options for treatment.

    Anyway, every day it seems to be getting worse and I can't sit down without the lumbar spine feeling painful.

    I'm due to see a female GP on 28th.

    So, I realise I have a mechanical problem in my spine, but I'm also very concerned about quickly this has all happened and I'm wondering if the hormone changes have caused the joint cracking. I haven't had any other menu symptoms e.g. hot flushes/mood swings.

    What I really would like to know from you is whether going on HRT helped with your joint cracking/pain and how you are now.

    Sorry for such a long message, but I thought it best to give you the history!

    Many thanks.

    Judy.

     

  • Posted

    Hi Lesley. It's very reassuring what you have written. I have noticed stiffness in my ankles and fingers but for the last couple of days my right wrist is so painful. I already have sciatica in my back but that seems worse some mornings too. I have been having really heavy periods for about two years now where I just flood through everything with no warning. I have now been started on medication for this so see what happens this month when I start taking it. No joke this menopause is it with all the feelings we experience. 

    • Posted

      HI Debbie,

       I can relate to this menopause---well stuff --- to put it nicely.... yes not a fun time in our lives....why do we have to go thru this...who knows...not fair, but we have to just deal with it.  I have noticed the stiffness too, but I will share with you that I had a hysterectomy about 5 years ago, so I am left in limbo to when I will go thru menopause....but I feel I am...I..I am fortunate that i don't get my periods, so I cannot comment on that.  I will share with you that I am feeling the joint pain, but its not too bad....I started taking the devils claw--I took that for my back after being diagnosed with a herniated disk--I love this stuff, but its not a miracle thing....

  • Posted

    Hi Lesley

    I am 51 and so grateful for your post. At last someone with the same symptoms.

    Mine started in my neck and lower legs/feet. It takes a number of steps to 'warm up'/walk flat feet in the mornings. I've been for physio and seen my GP but it was diagnosed as inflamation from running.

    In August it started in my right hand pinkie and later spread to the entire right hand. It's worse while Im sleeping but gets better during the day when I start using the hand. I even struggle to lift the kettle. Recently my left hand joined in and my elbows. Besides the pain and discomfort it feels like my hands are swollen but its not.

    I thought it might be due to knitting and crocheting and even stopped that for a few weeks but nothing changed.

    Now I realise its all connected and thanks to you what the cause might be.

    Waiting for my estrogen results...

    Thanks a mil.

    Any remedy suggestions?

  • Posted

    Hello. I recently was reading your health issues. I am very concerned cause thats exactly how I am feeling. How do you feel lately and howwas your treatment. Terrible pain all my body joints. Scary OMG.
  • Posted

    I see that nobody has commented on this thread for a couple of years now. I'm just at the beginning (peri) of my menopausal journey. I was wondering how the women who had complained of symptoms 2-5 years ago are feeling now? Is there light at the end of the tunnel? HRT or no HRT? That is the question! Anyone out there willing to give us an update please 🙏?? I'm 50 in November and current symptoms are elbow and foot arch pain though I fed there are many more to come....

  • Posted

    Hi Lesley 

    I’ve been reading your post and all of the comments and I’ve got to say it’s really interesting. 

    I’m 39 and I have been put through the menopause in a brutal way with no help, basically, I went In for a fibroid removal ( but opted for the hysterectomy and to leave my ovaries) and the results came back as I had uterine cancer

    Luckily they managed to get it all so didn’t need chemotherapy but this meant I had to go back In a few weeks later and have my ovaries removed. 

    I have a 15yr old a 12yr old and a 3 yr old and I’m struggling to cope, my husband works away all week so I’m on my own. 

    The tiredness is awful but the pain is unbearable.

    My knees and In my neck and fingers especially. I can’t wash and dry my hair properly because my arms ache so badly, I can’t get comfortable at night as everything aches. 

    My tumour tested positive to hormone treatments so they’ve said it’s not wise for me to have it. 

    I’m at the point that I’d rather have it and risk getting cancer eventually than to carry on suffering like this. 

    Can anyone please help? 

    • Posted

      Hi Claire,

      I've just read your post and felt compelled to write and say that I'm so sorry you are feeling so awful. Having a young family, especially a toddler and trying to cope on your own must be a real challenge to say the least! To be so desperate to choose cancer over pain is incomprehensible.  Can you take anything to help this? Anti-inflammatories? What has your GP said about the tiredness and pain? You must demand more help/advice or ask to see a specialist. Maybe this group could help you?

      http://www.hysterectomy-association.org.uk/hysterectomy-support/

      Floradix for tiredness may well help (the liquid kind as more quickly absorbed) - buy from Amazon. How about an orthopaedic mattress topper for your bed or perhaps a heated blanket or hot water bottle to ease the joint pain?

      I'm sorry I can't offer any official help, call the hysterectomy helpline on the link above. Please don't suffer in silence.

      Big 🤗 

      Clare.

    • Posted

      Thank you so much for replying so quickly Clare. 

      It’s so kind of you to comment and suggest something. 

      I’ll definitley have a look at the page you’ve posted. 

      Thank you thank you soooo much. 

      I’ve got my next appointment with Gynaecoligist on the 8th March, I will know more then. 

      I had a bone scan last week which came back as I’ve got osteoporosis starting in my pelvis and hips. So the aching in my arms and fingers can’t be that. 

      Oooh it’s such a mine field isn’t it. I just want to feel half human instead of the walking dead.

      Thank you so much again.

      I really appreciate it ❤️ X 

    • Posted

      Hi Claire, 

      Just yo let you know your joint pain will def be due to oestrogen  deficiency . I’m Peru and was nearly crippled with it until o started in hrt. It’s not a very well publicised symptom but debilitating . So sorry you can’t take hormones, my dr did tell me it would eventually go without treatment xxx

    • Posted

      Good Day Ladies 💝

      Just want to share some brief information in hopes that it can provide light to any who may be able to use it-

      I have been in Peri for over a year & have commented on a few of the threads here in this forum to share what I have found useful-

      I too have had many symptoms.. too numerous to list, but chose to manage NATURALLY as HRT no matter which brand/form you choose or how temporary you decide [cream, pill, spray] ALL carry the risk of Cancer, Stroke, Blood Clots !!!!

      Ladies there are Essential Oils, There are supplements that Can & Do provide relief to help us manage through this phase of life ..

      Draw comfort from others here, but pls DONT JUST GIVE UP and settle waiting years for symptoms to subside.. this is our LIFE and every day is meant to be lived? Research Clary Sage /Lavender Oil/Ylang Ylang-

      Take control and be determined to find a viable solution tht will wrk for you.. most Dr's are clueless [if its not a HotFlash]and offer nothing other than HRT🤤

      Research Maca [a herb that balances our hormones/estrogen levels] ..restores libido, hair loss.. etc.,

      Ladies, on that 1 day that you are feeln better [we have to excercise, stretch!.. it's imperative ] our muscles will become tight, and even more sore if not-

      I am not a Dr or Nurse, but I am a woman who is going through or has dealt with many of the same issues.. the ER visits, the Lab wrk [ugggh..😫] debilitating nausea, achy Joints, digestive issues, cold hands/feet, anxiety, heart palpitations.. etc.,

      If you ask.. I will gladly share what has worked for me-

      Be well💝

    • Posted

      Like you A&E visits Lab wrk lol. All started with tendinitis then health anxiety and then prolapse all in the space of afew months. Ready for the hills fed up with the whole thing just want to feel like me again 

    • Posted

      Hang in there [easier said than done i know] The decrease in hormones combined with the anxiety from stress =A perfect storm for muscle tension and inflammation leading to an increase in sore joints & lower back pain-😣😣😣[ouch!]

      First line of defense eat an anti-inflammatory diet, exercise regularly [not easy to do when your body is in pain] this will keep our BMI lower and decrease inflammation in our body-

      We are all in this together .. searching/sharing a solution💝

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