Perimenopause and SEVERE joint pain - any one else??

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Hi

I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.

Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.

I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!

However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.

Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!

I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.

I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.

I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !

So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???

Lesley.

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  • Posted

    I can't tell you how relieved I am to find this site. I thought it was just me. Lesley your symptoms of palpitations, strange rushing sensations & 'skipped beats' are exactly what I've been experiencing for the past few months. I also have horrendous joint pain. Some days I feel about 90 and I get light headed and feel I will faint. I am miserable & depressed and am only surprised my husband hasn't left me yet. I am 48 and can honestly say I've never felt worse. I also want to burst into tears for no reason. I never thought the menopause would be this bad as my mother seemed to sail through hers. I've just bought some Menopal Plus - at least I think that's's the name. Has anyone else on here tried them? I would honestly take anything to feel normal again. I have a very stressful & responsible job which probably doesn't help matters but I would appreciate anyone's advice as I am desperate to feel normal again.
    • Posted

      Hi Fiona85

      I was reading some older post and come across yours about the palpitations and strange rushing sensations with feeling faint. 

      I had a tachycardia ablation a few years ago from having thesse same symptoms and felt so relieved after the surgery...only for them to return again. I'm wondering if alot of these symptoms wasn't my heart but my hormones contributing to my symptoms.

      Anyways I was reading you bought menopal plus. Maybe I've missed your update on a recent post about it but was wondering how many years have you been in Perimenopause and is menopal plus helping your symptoms with that strange rushing sensation?

      I'd like to try it if its working .... 

      Thanks a bunch..be blessed!

  • Posted

    Hi Fiona - glad you found us. There is nothing worse than thinking you have something awful wrong with you, and it can't 'just' be menopause. I think there must be hundreds of women out there, googling their symptoms - I hope they all end up here so they know they ARE completely normal ! We should never, ever underestimate the power of hormones.

    That 'rushing' sensation of adrenaline is horrible. I used to get it as I was drifting off to sleep, it was like this massive wave, or rush went through me and woke me up fully - my heart would be pounding and it just felt horrible. I wondered if this was actually a hot flush, as I have never had one...but apparently they feel different! I also was incredibly depressed and anxious - morning anxiety was the worst, I would wake up with butterflies in my stomach and an underlying dread for no real reason ....I would just feel uneasy and on edge all day. This is due again to too much adrenaline or cortisol being released by the adrenal glands - its all to do with estrogen fluctuations.

    I'm not sure about natural remedies. I have not heard of anyone who really suffers with this hell *really* getting any relief from symptoms. I think we all probably have two choices - tough it out, (now that you know that it IS peri/menopause and it WILL end eventually when you are through it) or, try HRT, which somewomen swear by and gives them their life back. You could have a look at the menopause matters website which is great and gives some really good advice about HRT.

    I know what you mean about feeling normal again...sometimes I think my poor husband thinks I have had a personality transplant. I used to be so youthful and fun loving and NORMAL, now I am weepy and irritable and hobbling around like a 90 year old. I cannot wait until I am though it all, I just wish someone would tell me how long it takes but we are all different.

    Take care x

  • Posted

    Hi. I have experienced terrible pain in my neck and back of head, through side of face and into forehead along with other aches and pains, such as lower back, hands ,knees etc. I am 48 and have had night sweats and mood swings. I've had loads of investigations at ENT, neurology, MRI scan, physio and no one can find a cause. I suggested to two GPs (both male) that perhaps it old be hormone related and both have dismissed the idea, although I really feel it has a bearing on things. So frustrating. Back to neurology mx so might try suggesting it to him. They make you feel a bit stupid though.
  • Posted

    Hi my name is Tricia until recently healthy Now i ache from head to toe I'm 50 and periods are stopping and Doc said oh it peri menopause However now this is seriously effecting my everyday life. I have worked all my life. At the present time I have been of for 6 months wondering what was wrong with m. Thinking surely I cant be expected to suffer this LOL I have tried various herbal remedies Emmmm to no avail really. I am debating HRT but all the usual stuff, doctor reluctant to give it to me. Not for any existing health issues, just that its ONLY the menopause so just rough it PFT Great to find this site
  • Posted

    NO WOMAN should have to 'tough out' menopause, it is not 'ONLY' anything, it is hell for some of us! I bet you have a male GP!!

    Physical aches and pains are suffered by a lot of us as you can see from this thread, and they can be so bad they are almost disabling. Have a look at the menopause matters website to see just how many women are struggling with hormonal issues.

    If you want your life back - go on HRT!

  • Posted

    Hi Lesley that is what I was thinking I have a phone call tomorrow from doctor I am going to plead my case again ? We shall see Thanks for the advice
  • Posted

    ....Tricia, even if you only do it for a few months like I did, at least you know it WAS hormones that were causing all the pain body changes, and the worry is less. I still have bad back, neck and shoulders, but I definitely improved on HRT. It doesn't have to be for life. it has been proved the bad press it got in the early 2000's was unjustified - it is perfectly safe to take - cant link here but lots of info on the web! Ask for the bioidentical stuff (estradiol and uterogestan) try to avoid synthetic hormones like Prempak, or Premarin.

    Best

    x

  • Posted

    Google 'HRT is safe'.... here is the headline from the Daily Telegraph

    "Hormone replacement therapy can reduce heart deaths without increasing cancer risk when taken for ten years, a 'significant and reassuring' study has confirmed "

  • Posted

    Thank you I'm definitely thinking If I want to work and function I will need to take it lol
  • Posted

    rolleyes I ache permanent Cant slep at night until I totally crash with weariness No pain killers touch it It feels like I have flu constant without the runny nose This is replaced by perfuse sweating
  • Posted

    Hi I am 32 and have already had a partial hysterectomy @ 30 leaving me with an ovary and a half. Partial ovary removal at 24 and very prone to ovarian cysts. Within the last year and a half I've developed night sweats(like waking up drenched!) and severe hot flashes and what I thought were bipolar episodes. Around the middle of last year my right hip started to ache here and there and rapidly became worse followed by my left hip a couple months later and mid to lower back pain. I couldn't sit indianstyle on the floor anymore without my right leg straight out. Then came the popping and cracking in my hips and knees along with a crackling sound in back of my neck. I have gone to 3 diff GP and had exray after exray. One said arthritis and the others say everything looks fine. But to sum it all up all they seem to want to do is medicate me with painkillers and muscle relaxers which really do not help and only aggravate and depress me even more. Now they want to send me to pain management which I'm sure will be the same. I've always been a very athletic and active person until this all started. My mind is constantly on the pain the worst of it is in my hips and knees now. I cry and pray every night for an answer and solution to not be a slave to my pain everyday and enjoy life again. I find myself jealous and bitter at times watching the other moms walk their kids to school(our school has no busses) this has taken my entire body over completely very quickly and some mornings I am so stiff and swollen I can barely get out of bed but it also hurts too much to stay in bed. The last few weeks the pain has moved to my shoulders and elbows. I would give ANYTHING to feel normal again. I physically feel years and years older that I know I should. Does this sound like this perimenopause could be the culprit?? I plan to share everything I have learned from these threads with my GP in hopes that there's a light in all this dark. I completely emphasize with you all and wish you well and hope you can find your correct path to live pain free as well... Amanda
  • Posted

    Hi Amanda.

    It does sound to me like you are suffering from the effects of changed hormones, and imbalances of estrogen, which can cause extreme pain in the joints and other symptoms. However, the fact that you say you are swollen does not fit with this. Usually menopausal arthritis does not show any sort of inflammation. If you have any HEAT or redness or swelling, this is more likely to be another auto immune condition which can be easily controlled with meds.

    I f I were you, I would go to the doctor and ask for blood tests, to rule out an inflammatory arthritic condition. If there is NO inflammation in the blood (sedimentary rate, called ESR) then it is pretty likely to be menopausal arthritis, and some of us women get great results from HRT, although we have to come off it one day! I think it is better to have HRT while you are younger, so you can continue a normal pain free life until you would naturally have started the menopause. HRT will also help with the sweats and other symptoms, Anxiety and depression and bi polar tendencies are all known to be linked to peri menopause and hormones.

    I did not have swollen, or red or inflamed areas - just extreme stiffness and pain in the tendons over certain areas (biceps, hips, shoulders, knees, neck) and I also suffered with extreme crepitus which is basically the medical term for those cracking popping sounds in neck, knees and elbows. My neck crackling is so loud my husband can hear it. This is due to the changes in your connective tissue and cartilage, and the cushioning stuff that sits between our vertebrae...if you swivel your head slowly, does the base of your neck creak like it needs oiled???This is what happens in ageing normally...but in menopause, in some women the changes to the skeleton, tendons and and muscles are speeded up by lack of essential hormones.

    Hope you get some relief from your worries and pain...go back and have a chat with your doc.

    best

    Lesley

  • Posted

    Hi Lesley,

    Just reading your reply to Amanda. What you say is very interesting. I also have the creaking in my neck you describe and have had neck pain and stiffness which affects the left side of my head, shoulder and left arm at times. I am 48 and have been wondering for some time if my problem could be related to hormone fluctuations as no one can find a cause. I draw a blank from the dr each time I mention it but he can offer no better explanation. It is very debilitating and I have had to give up work because of it. Wondering whether to go and try again.

    S

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