permanent dizziness vertiigo / more than one year
Posted , 7 users are following.
Hello,
sorry for my poor english, i'm French, try to find people sharing their sad experiences and need support.
Since one year and a half i experience constant dizinesswhile truning my head, walking, turning my eyes ...always!) at that time i withdrawed duloxetine at only 30 mg after it was a nightmare!!!! went to psychiatry hospital they tried several medications (a nightmare) dizziness severe severe (of course only me experimented this , the others had no problems!!!!!) i ended up one year later with lamictal 50 (upping the dose was too much and 50 is also kind of too much for dizziness!!) added on prozac 10 mg , i try to get off lysanxia benzo for xanax as it is short half life and wean off lorazepam for the night , my psychiatrist is really not concerned telling it is in my head, i saw an oto neurologist to do vestibular rehab but i even can not take a car or taxi as i am sick! depression worse with this! i suspect lamictal not to help, oto neuro tells me to take only an antidepressant and i have different responses from others...tired of all this.... do not want to to do rehab as the medication is not yet stable for depression and dizziness problem, .....sorry for this pessismistic message, just would like to know if someone has a severe case like me; my mother is caring all the chores, i can do absolutely nothing!!!! tired of doctors , specialists and medications for which they deny the adverse effect . thank you everyone
cannot walk 100m!!!!!
0 likes, 51 replies
anne92030
Posted
Is gingko biloba as effective as betahistine?
thank you very much
rachel08024 anne92030
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anne92030 rachel08024
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anne92030
Posted
eleftherio33095 anne92030
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Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
he told me i have a deficiency (?) inner ear left, told me to first cure the depression with a small antidepressant (small in terms of dosage) and eliminate the other products if possible and do rehab , but after seeing him the psychiatrist changed the medicine again. I phone the oto neurologist 's secretary that i cant do rehab because i cannot walk and take taxi and she told me maybe the actual medication is not for me , i do not have the energy to go back the oto neurologist because the will probably tell me to change medication so i m lost ,and physically and mentally tired even to go to see him as i have no strenght .....maybe the depression itself causing all this, this is a crazy story
anne92030 eleftherio33095
Posted
Following my previous message (under this one ) would you think a defiency of an inner ear only can cause this constant dizziness , motion sickness and unable to walk more than 100m without feeling so sick?
eleftherio33095 anne92030
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From an oto-neuro, I am very unimpressed by his or her diagnosis of "left ear deficiency". There are many causes of left ear peripheral dysfunction, and he or she should have been more accurate. This is not helping you. Do you know how they came to the conclusion of left ear deficiency? Was it from the clinical examination (them seeing your eye movements) or was it from a test (calorics for example), or both?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
he made a caloric test and something related to a nystamus issue ( i have just a slight one), he told me there are many reasons that's all, gave me betahistine
anne92030 eleftherio33095
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eleftherio33095 anne92030
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1) Stand with both your legs next to each other, feet touching side by side. Then close your eyes and I want you to tell me to which side you fall.
2) Hyperventilate (deep breaths, 2 per second) for up to three minutes. Let me know if you see the room move from side to side.
Do you have hearing problems?
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
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1/ i fall on the right side directly
2/ yes the room is moving
strange sensation in my ear and head (a fullness)
anne92030 eleftherio33095
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anne92030 eleftherio33095
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eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
anne92030 eleftherio33095
Posted
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
anne92030 eleftherio33095
Posted
i am sorry to ask you the following question (after this i will stop making suppositions concerning the dizziness issues) last year i have an small injury, my right thumb got stuck really bad in a iron door and i immediately collapse due to the nerve sudden pain , several weeks after i had pain on the same side from the top of my left head till the shoulder like burning sensation, and body heaviness on this side,it happens frequently.....so stupid question but dizziness can be related to this ? i am sorry of my stupid question........but
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
i am sorry the left thumb... it has recovered by itself
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
I have withdrawed lamictal (I m only at 25 mg) I withdraw benzodiazepine, I just have prozac 7 mg.
I saw the doctor and told me to do the rehab and lessen medecine , I did not begin rehab....I am too dizzy when I walk even 10 m, I am not convinced about rehab as when I try to walk (I have to be with my mother) everyday for 10minutes, I have no improvement and it lasts since one year..;I am really desesperate, i may again change antidepressant whch is really not good for the brain dizziness issue.....I dont know but it cant be possible that ear deficiency (around 35%) can make someone disable at this point...I dont know what to do....I think medecine for depression can improve it but each one gives me dizziness and without it is more awful...can it be the depression causing an inability to walk.... If i do rehab I must make 100 times I am sure, just moving eyes is terrible, as I have done rehab last year, I wont manage to make them , can it be possible to be like this?
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
i saw a previous doctor who told me first to do rehab also , he is not an oto but he told me there is the only way improve...i am in the futile circle I admit, I need to change the prozac but changing meds will cause me dizziness again...doctors told me to do rehab, the only thing.....are they some exercise at home to improve? like turning on myself and stop?
eleftherio33095 anne92030
Posted
Eleftherios S. Papathanasiou, PhD, FEAN
Clinical Neurophysiologist
Fellow of the European Academy of Neurology
anne92030 eleftherio33095
Posted
I have Betaserc, prozac 7 mg, I withdraw benzodiazepine and feel worse, I was told that I have to get of sedating meds, it was worse with them, without is insane. No doctor here can cure me , MRI done three years ago , PEA and VNG, dizziness so insane and intense H24/H24
thank you very much for your concern