permanent dizziness vertiigo / more than one year

Yes it is what I think  but doctors tell me it is not the medecine, it is psychological, we tried for 15 days to withdra them and it was a nightmare, so what is better... but i am convinced about the lamictal worsening this Terry

I have found that since suffering this condition anything that states dizziness as a side effect is magnified by the condition. Things, medications, that did not once pose any issue in taking now make dizziness worse since the apparent damage to the vestibular system. Sinus issues also now cause many more issues when I am congested.

Sounds vestibular and, that enhances the anxiety. I had anxiety before the vestibular issues but it was manageable. The vestibular created anxiety is less manageable for me. The vestibular system is where the fight or flight sensations reside within the nervous system. I don't think that it is all in our heads. That's an easy out for the medical profession.

i totally agree with you 

if i wasnt in major depression i would leave all medication because all enhance the dizziness, and changing medications regurlarly to find the best is worsening the problem , i mean for my part, hope having an issue but doctors are driving me crazy , i am told to listen to them, yes but..... we loose our instinct in a sense of knowing what is good what is not

Hi Terry, saw my psychiatrist , told it is not the lamictal, no comment....

i ll see the otoneuro tomorrow really hope he will help me this time

That is certainly a strange position for them to take given the fact that the known side effects of lamictal are ataxia, blurred vision, diplopia, dizziness, drowsiness, headache, insomnia, nausea, rhinitis, skin rash, tremor, vomiting, abdominal pain, and fever.  Somebody experienced these or they would not be "known" side effects.

I have a friend that was suffering with what was diagnosed as ataxia for almost 6 years.  Just out of the blue he would loose his balance and control of his legs and fall.  Went from doctor to doctor for years with no answers.  I convinced him to see the neurotologist that I am seeing and he, the neuro, determined that it was not an inner ear issue but, a statin that he was taking for cholesterol.  He stopped taking the statin and within 2 weeks the problem was gone.

What amazes me that they can tell us what it is not but, not what it is.  Hope your visit tomorrow goes well, though. 

your friend has 6 years this issue.........

​i really really do not understand that doctors do not tell us yes it is a side effect of this medecine , i cant understand this position, and it is written in the adverse effects.

​we are not that stupid to feel what is going on in our body

​thank you hope tomorrow i ll get some help, but i dont know if an oto neuro can give you medecine for mental health and withdraw some without going to the psychiatrist, because i reallly dont want to see this latter again;

​i am also amazed each time i told something was going wrong with a med the doc tells me , it is not the medecine it is your head, one time a psychiatrist told me you know blind people got blind because they had a trouble with something seeing and it is in the head, how can you hear that!!!! you just want to be cured and not being told that you are blind because something happened in your life........! really crazy

​have a nice evening

He, my friend, didn't have any dizziness, they thought he had a condition called ataxia, which is caused by a cerebellum disorder. Ataxia is a neurological condition that involves voluntary coordination of muscle movements that includes gait abnormality. It is a non-specific clinical manifestation implying dysfunction of the parts of the nervous system that coordinate movement.  He saw a neurologist that told him it was a cervical spine issue, a neuro-surgeon that told him that it wasn't, an ENT that told him it was vestibular, and then a neuro-opthamologist, 3 times, that diagnosed it as ataxia and a final neurologist that told him that it was not neurological.

It is an easy out for a doctor to tell you it is in your head because they are not trained well enough to determine what it is.  I do agree that the anxiety caused by it does create some symptoms as well.  It can become a vicious cycle and even more so if you struggled with anxiety prior to the vestibular issues.

Hope the best for you.

saw today the otoneuro, make rehab and stop the lamictal and find a good antidepressant small dose, i have 34% ear deficiency

​have to find a ne psychiatrist, going through wigthdrawal and make at least 20 rehab on paralllel coping with major depression ...  a big challenge once again

 

They should be able to prescribe something for you to lessen any withdrawl symptoms from the lamictal as you ramp up on a new anti-depressant.  Have you tried any SSRI drugs?

hi Terry,i saw the nurse and told me i dont care what the otoneuro told  and the psychiatrist told me the same:  that the lamictal is not the problem, can you hear this!

​i am more and more depressed because of them, so called doctors, i am trapped and do not know what to do.

​the psychiatrist told me you were without medecine for 15 days and you still had dizziness so it is not the meds.... i am so sick of what they said, wrying everyday

I have read that it takes 4 to 6 weeks for lamictal side effects to resolve.  No doubt that the lamictal may not be causing the dizziness but, based on the known side effects, though, is it adding to it, would be my question.  I cannot see lamictal being prescribed for depression onless it is prescribed to aid another drug in producing the desired benefits.  What I have read is that it is prescribed for bi-polar conditions that involve depressive episodes.

"  Specifically, this drug is used to treat partial seizures, focal seizures, tonic-clonic seizures, and seizures resulting from Lennox-Gastaut syndrome (severe epilepsy). It was the first drug since Lithium to be approved for usage as a mood stabilizer and is commonly used as a maintenance medication for individuals with Type-1 Bipolar disorder. It has been found effective at preventing depressive episodes in bipolar patients, but isn’t as effective at treating manic symptoms."

The rehab for the 34% deficit of the inner ear will help to retrain the brain how to interpret the signals it is receiving.  If a drug is causing additional symptoms I just don't see how the brain can compensate for the vestibular loss.

I am not a doctor but, everything that I read about lamictal is scary.  I am in the United States and the first line of treatment for the dizziness and the anxiety that it creates is an SSRI.  It doesn't seem that the lamictal is helping with your anxiety need either, is it?  Does your psychiatrist say why that is?  If it's all in your head why can't they find a drug therapy that will help you overcome that?

*hi Terry,

?the psychiatrist put me on lamictal because i hade side effects with other AD, but i m not convinced as he gave me too high dosage , i agree that the lamictal if i still have it while doing the rehab is not worth, i find it really a non sense from all of them! and 15 days without medecines to know howthe patient behaves is not enough to judge , total non sense ; i just wish i find a new doctor concerned about my case which i doubt, i thank you terry for your concern, happy but sad that patients are aware and right about those medecines issues,...i totally agree with your post. Concretely i just don't  know what to do because time is passing by, one year like this being less confident , thanks for your concern! i am in france now it 9 :30 pm i took a new f****medecine he gave me i ll see, and tomorrow when the doctor comes he will see my f**** tired dizzy person on the sofa in pyjama maybe , i say maybe he will understand (no that sure hahha) i m going to sleep now, i feel dizzy now with this new med.....hahahahaha (a false smile) take care and thanks for the reply, makes me not alone, hope you are fine

thank  you i m going to look at this, just need to have the strenght because all the doctors i have seen was a waste of time that is the reason why i am tired, fist of all: is this psychological?, then the inner ear?, then the medecine ? so what to do..... and the major depression ?...., if the oto neurologist tells me it may this medecine or this one and if i need a medication for depression that i must not take and so on..... time to withdraw to get used to another one ....but i will see the oto neurologist again , dont know if it a waste of time like the psychiatrist and the others .sorry to be pessimistic

see a neurologist maybe but dont know if he knows better than an oto neuro for dizziness issues