PH manometry test

Yea I totally agree that there is no other option for  this then the op I know recovery isn't a walk in the park but I would take all the suffering if it means after I am

Better I know my friends and family are probably sick and tired of me and hearing about this but I honestly never imagined something like this could effect so many aspects of your life x

Ps I hope you get your opp soon so your quality of life improves.

I think it honestly depends on the day as sometimes I've eaten stuff and it's been fine then the next time it's bad acid x

Of this for me as it is so intense some days! I'm glad your mouth is a bit better! Keep on trying the hospital they may have some advice for you that can help

Give you comfort! This week I have really had enough I'm close to tears and really fed up do you ever get like this? X

At the moment my stomach feels odd, like I'm full easily or like I'm feeling a bit nauseous. I so hope the gastritis isn't coming back as I don't know how you can have that on the ppis. I get really scared really easily nowadays. I never used to be like that.

I was looking through my leaflet from the hospital and it says you can take ranitidine ( Zantac) til 3 days before your appointment - maybe this is something you could

Ask your doc about. It might make things a bit easier for you x 

With your rib pain, does anything make it worse? I was trying to figure this out yesterday.

On the plus side, the consultant said that for people who have surgery it can be life changing. I so hope so, plus I hope

That our tests give us the opportunity to change our lives xx

As for the rib pain mine is pretty much non stop it is worse once I have eaten thou and at times it feels like something is caught in my ribs which makes the pain more intense!! 

I have also had the feeling of being full bloated and sick that did seen to pass after a few days so hopefully yours will be the same!! 

I really hope the op changes our life's as I really am at my witts end and don't think I can take much more of this x

Roll on August/ September. I so hope we 'pass' our tests xx

Ps whenever you feel down just drop me a message. We will get through this! Xx

No I have had no word from the hospital to be honest I think my appointment will be on the day I was allocated as the wait is so long I doubt anyone would give up the opportunity! 

Things have been pretty bad this weekend I slept with 3 pillows not for last night I have woken up with bad acid and a throat that feels like it's been cut! Also my rib pain has been quite intense the last few days!! Also I've started to notice my hair is falling out quite badly I asked my doctor she said she Woyld say it's related to this condition!! 

How are things for you? You must feel like you do not know what your doing for the best in regards to if you stop your medication or not as they haven't told you what's the best plan of action how do you feel about that? X

Funnily enough I've had lots of hair loss over the past few months... Makes you think...

I'm having a rubbish time too. Bad acid ( or whatever it is) this morning, and I have the bed elevated 8 inches! I just don't understand. The bloating thing and chest pain are horrendous, plus went to the ENT and dentist on Friday and they both said I have inflammation from acid. I'm on anti biotics at the moment for a mouth infection and it's made things 10x worse!

I really feel like there's something bad happening inside that's been missed, especially my stomach as it feels so bad. My other half wants me to stop the tablets as they make me so ill but I feel like I'm trapped into taking them. 

From what I've seen on the internet it may be best to stop the meds before the test but that terrifies me as I think if I feel this bad on them what's it going to be like off them?

I just wish I could talk to someone or get an answer to this. Think I'm going to have to go to the docs again about the bloating as I think that's what is making the reflux worse, like the pressure is forcing stuff back up. Wish I could have another gastroscopy to check what's going on. So not happy this morning

How long have you been off your meds now? Hopefully things may settle down a bit if you've had acid rebound. They say it can take a month x 

My hair is falling out really badly I have started to put a hair tonic on to try to try and stop it falling out Everytime I brush my hair there is a big clump of hair! 

I am always bloated  at times I look pregnant it's so bad my clothes look terrible when it's really bad I feel so uncomfortable full and sick!! 

I have I often felt tlike this is something more then they have said but then after reading so many posts I feel like that what I'm going through as nasty as it all is seems to be pretty normal 

Ive been off my meds for 8 weeks at times my chest feels like it's uncomfortable very tight bad rib pain my throat feels full and like something is lodged in there it is so hard not to take them but I just keep praying for a cancellation yesterday I was sick it was all acid after I ate x

What date is your test x

I don't understand why we have to do the ph test when we have these problems. Oesophageal damage and throat symptoms are 2 boxes ticked. I have all 3 as I have Barretts too. 

I get so worried that on the day my ph test will come back normal. Grrrr! Why can't they just go off the evidence? Might be something to argue though, especially if they expect us to take ppis forever! X

I have decided if after the test my doctor says no operation I am going to cry and get a letter from my gp pushing for the op as I really am at my witts end I've even been put on anti depression tablets as she said it's really getting me down and making me ill but hopefully my test shows that there is enough! And yours does too! 

What is barrets I've heard of it but not 100% sure? 

I've had a blood test she first thought I had thyroid and was anaemic but both said I was normal so now she's not so sure what it is!!

I think everything aggravates my ribs even eating and drinking for me it's one if the worst parts of this and it's so tender too!! 

Hopefully the weeks to your test fly by x

My doc has already started saying he thinks the burning is functional - meaning that even though I'm in pain it's doing no damage, so if this test comes back borderline I've had it, even though the ENT doc and my dentist have confirmed that the inflammation is back. I've made an appointment at my GP for Thursday so going to go and cry and ask what I should do about taking the meds. God, I can feel the gaviscon coming up whilst I'm writing this. I wish we didn't have to do this stupid test! I'm adopting the same tactics as you tho - if it comes back as not enough, cry and beg! 

Have you thought that it might be all the stress of this that's affecting your hair? Stress is awful and this condition presses all of your stress buttons big time!

I feel down too. I was on anti depressants til I found that the ones I was on made reflux worse. Now I've got these stupid antibiotics which have flared things up!

I so hope that by this time in 6 months we will both be sitting here smiling at all of this x

It must be such a worry having barrets even thou your doctors think it's nothing to worry about I bet it plays on your mind I hope it doesn't turn nasty and stays as it is for you! 

I hate gaviscon I think it is disgusting I can't even drink the liquid one it makes me gag it is so vile!! 

I don't see how your doctor or any doctor for that matter can say that this is normal and expect you to suffer and pop pills for the rest of your days it's just awful as I think it effects so many aspects of your life!

I don't know what it is with my hair but it is  awful It could be stress but I think the fact I'm loosing it makes me even more stressed then I was to start with! 

Hopefully in six months this willl all be over I hope that your right I don't even care if it takes me a year to recover I'll do whatever it takes to be back to normal again!! 

I hope you feel a bit better now my doctor told me once to eat Greek yogart when taking my pills as it's really ment to help things give that ago see how you get on x

I'm So having a bad time. I've got two more days of the antibiotics then I can work on getting my stomach back to how it was before I started them x 

Chin up 

Charley xxx

Things sound rubbish for you at the moment. I wish they could move your test forward so you could get back on the tablets

Things are definitely better for me since I finished the antibiotics. Less lump in throat and burning mouth but it's still there. The rib pain has been horrendous, to the point where when I described it to my gp she sent me to hospital to check for heart attack - I told her it was my stomach! The doc there says that the same nerves supply the heart and stomach so you can't Tell. I had awful stabbing pains yesterday and took gaviscon and hey presto! They went. As I'm feeling a bit better I'm more worried than ever about the test coming back negative. My doc also referred me back to gastro rapid access clinic so I'm going to take that opportunity to ask a lot of questions, so i will let you know what they say, can you think of anything you want me to ask? Xx

I am having a rough time this week I feel really fed up today but think being exhausted doesn't help that very much I had a terrible nights sleep last night and today my ribs are so sore and my throat feels tight and like something is caught in there!! 

I'm glad your feeling better! I think we will worry about the test untill we see our consultant I'm really dreading the test I really am worried but there is not much we can do as we need to have it for the bigger picture!! 

I'm glad your being sent to that clinic I think it will help you to put your mind at rest and find out things! Hopefully you will get seen quickly and before the test!! Erm I can't think of any questions right now but I will have a think and let you know xx

I so hope you have a better night tonight. Got everything crossed for you xxx

Yes please investigate the rib pain mine is the worst side effect for me and I can only take paracetamol and they are useless my doc said I can't take anything that has ibuprofen or that has anti inflammatory or muscle relaxers in as they can make things worse and also will bring on an ulcer not that I think this could get much worse!!

I hope your appointment is soon & also that your not paying for your meal 2mro!! 

Thank you once again for your support you are a star 😘

You ok? 

I've just been to my gp she has referred me for a cheat X-ray for the rib pain just to check that out! Also I have been given real pain killers to use at night she has given me three weeks worth so I don't become addicted which is a start! Also I asked her about the test and said I was scared that they wouldn't operate if the results wernt enough she told me that they wouldn't refer you for the test if they didn't think the op was a must and it's just a step they take before the operation to see where the acid comes from so that has put my mind at rest a bit x

I hope your pain killers work. I've been swilling my mouth with alkaline water and that seems to help. 

When I get really worried about the test I just remind myself that I'm getting symptoms on meds so off meds they should pick something up! 

I still have to decide whether to stop every tablet. You have set a really good example though and made me braver! You are a star too! Xxx

Glad you have found a short term remedy and a cheap one at that!!

I too am worried about the test and my doctor said today that it's just another step on the road of this journey so maybe that's the attitude we should take you have been really brave so far and your test is soon so you need to concentrate on the day to day symptoms and nearer the time think if you could cope with no medication only gaviscon do you think you could do this x

Because he thinks I am in pain with no damage I can now say that ENT have found new damage and do has my dentist so it can't be functional, it is real damage, if it's damage then it has to be acid so it needs dealing with. I feel like a hamster on a wheel... Keeps going round and round in my head, daft bugger I am! Xxx

I've also found a big lymph node on my neck whilst I was feeling my sore throat. Completely freaked me out! Flipping reflux. Wouldn't have been anywhere near my throat but for that!

How's things with you? Has your stomach settled down a bit? Xx

How is your throat today? Oh is there anything you can do for the lymph node? 

This week has been on and off I've had that feeling of something in my throat and also my ribs been sore but more annoying then all that I have had stomach ache after everything I have eaten have you ever had that I read on another group on here that it's ibs and the two things appently run hand in hand x

I'm convinced the rib pain is the hernia. I have a hernia in my groin and the pain used to be quite similar ( the stabbing pain). There's quite a few on this topic who say similar.

Trying desperately to ignore my lymph gland. Have an appointment with my gp Monday so I will get him to check it. 

I really hope you get a date for your test through soon. Mines 4 weeks away today, I'm hoping you get yours around the same time. Will you go back on meds whilst you are waiting for the results? Xxx

My stomach seems to have been ok today so hopefully things are on the mend for me with that aspect!! 

As for the rib pain mine has been at it's worst yesterday and today in little spats of real bad pain but I have noticed it's more intense when I'm either full or hungry!! 

Yes I will most defiantly be back on them the second the tubes are out I've been so tempted the last few days to take them but have been so scared Incase I get the call!! 

How is your throat now? 

Yes please do not worry about the lymph node I am sure it is just part and parcel of this lovely condition we have been unlucky enough to endure!! 

Thinking of you and sending well wishes xx

I've managed to ignore the lymph gland and to mostly keep off Google :-/

I have doctor at 8:30 Monday morning so not long to go! I just wish my mouth would stop hurting! Had a slice of toast today and one side of my tongue now has blood blisters! I'm convinced it's non acid reflux that's to blame. The cure? Surgery! Back to square one...

Going to push for this surgery with all of my might. Have to turn my stubborn side on. Either that or cry... Hmmmm....

I have read sooo much about the surgery now I almost feel like I'm on the waiting list....

Honestly, a few months ago this would have been last on my wish list, and now it's top!!!! Xxx 

Sorry to hear your having a rough time your mouth sounds so painful and must really be getting you down have you tried to gargle salt water for those blisters I know it might sting but could give you some relief!! 

I too have had the same crazy lets not eat thought I actually even tried it once but then the acids and the pain kicked in again and I thought what the May aswell just eat!! 

My ribs are at there all time worst tonight I've actually been in tears I am in agony when I breath in I feel like I am being stabbed in the side it's so intense I've tried my asthma pump and pain killers theve both not helped at all! 

Yes please avoid self diagnoses

As I often do that and convince my self I am either dying at any minute or that my illness is the worst kind!! Hopefully Monday you will have some peace of mind as it's one less thing for you to worry about please as ever do let me know I am thinking of you!! 

I think we will be bullying them into this op but I just keep thinking what my doctor told me that this test is just the step before the op and they wouldn't offer you it if they

Didn't think you needed it!! 

Hopefully we will both be ok we have each other for support xx

My mouth has been diagnosed by doctor Google as an awful cancer. Bloody Dr Google! I can't wait I to get a bit of balance from the doctor tomorrow. :-/ 

I am now down to rice and porridge as my main food sources as everything else hurts too much to chew. This is silly. Also according to the dragon who does the referrals there is no such thing as a rapid access clinic for gastro, even though I've been to it! Going to take the letter in tomorrow and have an argument! 

I'll let you know what the doc says. He's notorious for fobbing people off do I'm going to push it at the ENT in the afternoon. If all else fails I have a dentist appointment on Wednesday so I'll hassle him about it 

Hope you're Sunday is going ok.

Always here for you too xxx

Doctor google! 

I am sure it is not the big c I am praying that it isn't please try not to worry I know it's easy for me to say and hard for you to do 

Please let me know

😘😘 xx

thing is, I have mentioned this pain to two dentists and the last ENT I saw a couple of weeks ago and no one has said anything so I'm just hoping its just another manifestation of this bloody horrible illness we have! 

Pits been really sore today. Hurts to talk even! I have GP then ENT and then already have dental appointment on Wednesday so I'm taking a three pronged approach to reassurance. Going to definitely ask for tests as its just been too easy for them to say "acid reflux" when, there should be no acid coming up because I'm on a high dose of ppis, and I'll mention it to them, especially my gp who seemed to think that the ppis would cure all of my problems!

ill let you know what the two docs say tomorrow. Just keeping my fingers crossed they are dismissive.

what would you do about the swollen lymph node, point out where it is or let them have a feel and see if they notice anything. Not sure what the best approach is really. 

Im so sick of being in pain and worrying, grrrrr!!!!! Xxx